tag:blogger.com,1999:blog-1388997078122972684.post2862391531451536516..comments2024-03-09T20:35:18.983-06:00Comments on Kayli is Loving Life Trisomy Style!!!: Kayli's spine surgery was a success!!! Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-1388997078122972684.post-26592953322518883412013-08-31T05:00:35.415-05:002013-08-31T05:00:35.415-05:00Kayli was in pain, so the dr's increased her p...Kayli was in pain, so the dr's increased her pain meds, then her sedation. Kayli kept fighting the sedation, so they increased the meds. Heavily medicated, she finally fell asleep (the goal is to get some rest for the first 24 hours). Unfortunately, the sedation meds were too much and although her oxygen and heart rate were fine, her blood pressure dropped. The team reversed a little of the sedation, and her blood pressure came back up. Kayli does not appear to be in pain, but she is fighting the sedation and refuses to sleep! lol I was talking to her and holding her hand, and she squeezed my hand while looking at me (telling me she is in there, fighting). Kayli's habit is to fight, and truly her strong will, and fight, are part of the reason she is still with us. I explained to her that I know she wants to fight by nature (that is, after all, what her name means...warrior), but that she needs to get some rest. I told her what a magnificent job she has been doing in fighting, and she can do more of it in time, but right now she needs to let her body rest. I reminded her of the promise to "work well with others" in this new journey. I told Kayli we are all here for her, and asked her to let us take care of her while she rests. She is now falling back to sleep on her own accord.... <3 Kayli is Loving Life Trisomy Style!!!https://www.blogger.com/profile/06064497403668311159noreply@blogger.com