tag:blogger.com,1999:blog-1388997078122972684.comments2024-03-09T20:35:18.983-06:00Kayli is Loving Life Trisomy Style!!!Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.comBlogger171125tag:blogger.com,1999:blog-1388997078122972684.post-1043034144910669932017-11-17T22:44:59.486-06:002017-11-17T22:44:59.486-06:00Hi,
My name is Jamie and my 3 year old daughter w...Hi, <br />My name is Jamie and my 3 year old daughter was just diagnosed with Trisomy 19. I'm having such a hard time understanding all of this and there is very little on the internet about it. My email address is Jmurr615@gmail.com if there is anyone willing to tell me about thier experiences I'd love you hear from you. Anonymoushttps://www.blogger.com/profile/11316934788487308061noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-22977464423121683112016-10-12T12:15:31.633-05:002016-10-12T12:15:31.633-05:00Thank you a bunch for sharing this with all of us ...Thank you a bunch for sharing this with all of us you actually realize what you are talking about! Bookmarked. <br /><a href="http://dr-fadi.com/" title="النجوم" rel="nofollow">النجوم</a><br />Anonymoushttps://www.blogger.com/profile/00248296275628982891noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-21188493279720404872016-04-24T16:07:23.755-05:002016-04-24T16:07:23.755-05:00If you listen from your heart, you will be shown t...If you listen from your heart, you will be shown the way...<br />You are an amazing person, who has triumphed over so much! <br /><br />This story reminds me of something that happened when I was about 7. My mother and aunt decided that they were going to make 2 extra turkeys (with fixins) at Thanksgiving for someone in need. My mother asked who we were making this for, but my aunt said that God would tell us who they belonged to when we were finished. I remember it being a sacrifice, and that most of the good food didn't stay on our table, but even at my age then, it felt good to help someone. <br /><br />When the cooking was done, my aunt opened the phone book, (this tells you how old I am-people still used phone books back then :) and said that she felt we should call this charity, and see if they needed anything. A woman answered the phone in tears. She said the donations that they normally received had fallen through. They had needy families coming tonight, and nothing but mashed potatoes to serve them. When we arrived to drop off the food, two amazing women came out to greet us. Tears swelled in everyone's eyes as we were thanked over and over again. They said that we were an answer to their prayers. It was a small sacrifice to us, but to them, and the families they served it meant everything. We asked how they would make it stretch, and even offered our own Thanksgiving turkey, but the ladies refused, saying we had done enough. She said if God had provided this much, he would find a way to make it last for everyone, like the loaves and the fishes. <br /><br />It taught me a valuable lesson about the power of giving to others even when you are in need yourself. Charity fills your heart till it over flows. <br /><br />Thank you for sharing your inspiring story, and may God bless you and your family. Blondiee10https://www.blogger.com/profile/00178093460464655793noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-90346605522142093442016-04-22T05:24:39.490-05:002016-04-22T05:24:39.490-05:00I saw one of your videos about Kayli on YouTube, a...I saw one of your videos about Kayli on YouTube, and she seemed to just light up whenever she was listening to music (had headphones on). Does she still enjoy it? <br /><br />I am amazed by your faith, and your strength. Kayli hit the mommy lottery when she got you!<br />God bless your family. Take care. Blondiee10https://www.blogger.com/profile/00178093460464655793noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-52191736242847903882015-12-08T19:11:52.139-06:002015-12-08T19:11:52.139-06:00Just saw your story on youtube. Praying for God...Just saw your story on youtube. Praying for God's continued grace in your lives. Love from NY for your familyAnonymoushttps://www.blogger.com/profile/06816924399909011121noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-54857304868642253462015-09-14T05:31:33.965-05:002015-09-14T05:31:33.965-05:00This is so helpful! Thank you that you took the t...This is so helpful! Thank you that you took the time to record it so others can help grieving ones. Candycehttps://www.blogger.com/profile/00791445516459504137noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-24118446068180446762015-05-17T04:40:32.804-05:002015-05-17T04:40:32.804-05:00I saw Kayli's story on YouTube and I just want...I saw Kayli's story on YouTube and I just wanted to say she is absolutely precious! There is so much support and love for your sweet baby! She is truly a miracle of God! Xoxo Alexis alexishttps://www.blogger.com/profile/11677374108840447872noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-88693253121392515912015-04-20T17:02:12.377-05:002015-04-20T17:02:12.377-05:00http://adeli-center.com/en/about-us/about-the-adel...http://adeli-center.com/en/about-us/about-the-adeli-medical-center/<br /><br />The ADELI Medical Center is an international rehabilitation centre which specialises in treating patients with neurological disorders. From the time it was established in 2003, the ADELI Center has successfully treated more than 2,000 patients, mainly with conditions following a brain injury.<br />Patients from more than 20 countries, including Germany, Austria, Switzerland, Italy, Netherlands, Czech Republic, Slovakia, Russian Federation, Ukraine, Saudi Arabia, Kuwait, Libya, Egypt, Oman, UAE, Spain, United Kingdom, Turkey, Romania, Albania, Israel, USA and Canada, have been treated till now at the ADELI Center.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-50253905089021574412015-03-16T06:33:21.662-05:002015-03-16T06:33:21.662-05:00Kayli you are a miracle, adorable little angel sen...Kayli you are a miracle, adorable little angel sent from above. I am so proud of your parents too.. Their love, dedication, determination is very challenging. Praying for you everyday sweet little angel. <br />Evanoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-73060360967469867362015-01-16T18:50:29.837-06:002015-01-16T18:50:29.837-06:00Your story means a lot to me. I have a lot of disa...Your story means a lot to me. I have a lot of disabilities from a brain injury at birth. I get treated like you described at our local hospital, they treat me like I'm faking being sick. I can't fake it, when I get, sick I can die without the proper help.<br /><br />The local hospital is about 30 mins away, and the home hospital as you call it, is 3 and a half hours away.<br /><br />We need to educate the local hospitals about people like us out there so we all can get care and treatment with respect and dignity.<br /><br />Best of luck, and may God Bless you and your family. He knows what's next for us in our lives.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-60196603589488524792015-01-01T22:16:39.772-06:002015-01-01T22:16:39.772-06:00Dancing water speakers http://www.youtube.com/watc...Dancing water speakers http://www.youtube.com/watch?v=LEYw1PjUtp4 ... <a href="http://edancewater.blogspot.com" rel="nofollow">edancewater.blogspot.com</a><br />Dance Water Speakershttp://edancewater.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-59949672064576846082014-10-31T10:47:02.502-05:002014-10-31T10:47:02.502-05:00Kayli is a true blessing from GOD!Kayli is a true blessing from GOD!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-82613090793832747682014-10-27T10:14:59.038-05:002014-10-27T10:14:59.038-05:00Consider this therapy...http://www.brainstatetech....Consider this therapy...http://www.brainstatetech.com/ - very interesting medical studies for those with traumatic brain injury.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-27359247747807430452014-10-17T10:23:49.681-05:002014-10-17T10:23:49.681-05:00Great Testimony!
God is Good all the time. I have ...Great Testimony!<br />God is Good all the time. I have been saved several times, and it is thanks to our Lord. We just have to believe in him, and he will help us come thru any situation..<br />I'm happy for you and your family! May the Lord keep blessing you all, specially Kayli!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-42982587600247857282014-10-11T14:47:14.031-05:002014-10-11T14:47:14.031-05:00are her AFOS getting too small they should never c...are her AFOS getting too small they should never cause bruising hoping the casts work well for her and they can get her braces so they do not cause bruising I have AOS as well for cerebral palsy love minejennyhttps://www.blogger.com/profile/01890297146944964240noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-76638366894550677332014-09-11T13:00:38.120-05:002014-09-11T13:00:38.120-05:00I have no idea when this was written .I just know ...I have no idea when this was written .I just know that I needed to see this RIGHT NOW TODAY ...Thank you Lord for the person posting this and for opening my heart to take you in .I will leave my worries at the foot of the cross and they will be answered ! I HAVE AN AWESOME GOD Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-81698929673174128322014-08-14T07:43:00.457-05:002014-08-14T07:43:00.457-05:00Thank you so much for sharing Kayli's incredib...Thank you so much for sharing Kayli's incredible story... <br />May God continue to bless your very beautiful family...<br />Very sincerely,<br />Yoli Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-58298117471194086332014-07-28T12:25:25.064-05:002014-07-28T12:25:25.064-05:00God is a great God and i am so glad you enjoy your...God is a great God and i am so glad you enjoy your life with kayli. god bless and i will pray for yo and kayli. with love from octavia 12 years at all.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-53340119861970202062014-07-08T10:41:05.923-05:002014-07-08T10:41:05.923-05:00This comment has been hidden from the blog.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-32318748323525296812014-06-13T08:21:04.694-05:002014-06-13T08:21:04.694-05:00I am also allergic to an antihistamine. I'm a...I am also allergic to an antihistamine. I'm allergic to Benadryl. Doctors and other medical professionals always give me a bit of the stink eye when I tell them I'm allergic to allergy medicine. :DAnonymoushttps://www.blogger.com/profile/02752282225179946695noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-34551075888046803212014-06-12T01:33:18.438-05:002014-06-12T01:33:18.438-05:00Wow, awesome blog structure! How lengthy have you ...Wow, awesome blog structure! How lengthy have you ever been running a blog for?<br />you made running a blog glance easy. The whole glance of <br />your site is magnificent, as neatly as the content!<br /><br /><br />Here is my blog - <a href="http://seofornown4eva.com" rel="nofollow">search engine optimization</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-50223466968982060282014-05-21T14:19:17.379-05:002014-05-21T14:19:17.379-05:00Thank you for sharing your miracle with the world....Thank you for sharing your miracle with the world. You are touching lives that you will never even hear about- I'm sure your faith will assure you this is so! I don't know how you find the time to put this together, let alone update it, but please don't stop! You're right- Kayli has a purpose put together by our God. I love her so much and she will be in my prayers, heart and mind for eternity...Blessings to her siblings, mommy & daddy too!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-70185551408137784492014-05-17T12:43:16.352-05:002014-05-17T12:43:16.352-05:00I'm just someone out there that just "hap...I'm just someone out there that just "happened" to run across your story on YouTube. What an amazing story. It's a reminder to me of how great God's love is for each one of us, and how we are to love.Joan Baconhttps://www.blogger.com/profile/12045555902907276985noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-43581996562854493042014-05-08T12:27:01.136-05:002014-05-08T12:27:01.136-05:00Hi there! I've been following Kayli's sto...Hi there! I've been following Kayli's story on FB and I sent you a private message there. I would love to talk to you about hosting a fundraiser for Kayli. My name is Claudia Edwards Gibson and my email is GibsonClaudiaL@gmail.com. I'd love to do this and talk further with you about it. :) Anonymoushttps://www.blogger.com/profile/14701819995794595887noreply@blogger.comtag:blogger.com,1999:blog-1388997078122972684.post-87778469844064052722014-05-05T23:57:32.949-05:002014-05-05T23:57:32.949-05:00Just saw the video. We nearly lost 2 of our 3 chil...Just saw the video. We nearly lost 2 of our 3 children early in their lives. They're now all above 11 years now, and like Kayli, they were all born in April. My heart remembers those days very clearly. I think when people do ask, they're used to people telling them what the future will bring. They're used to being told the weather tomorrow, the tour will go this long and cover these locations, their fast food will be here in 90 seconds, and that Jimmy's expected to grow 5 inches in the next week (as a parent of teenagers, I know this as fact). They're not used to living from one breath to the next. They've forgotten what it feels like to have no rudder and no oars in the water, that feeling of utter helplessness and confusion as a crisis swirls around the heads and hearts of those involved. <br /><br />I think your answer is awesome! It's hard to trust in Someone you can't see for the very real needs you feel. I imagine even another medical bill is enough to rattle one's cage after enough sleep has been lost. Yet you are not without help. You are not without hope. You are perplexed, but not in despair. 2 Cor 4:8-12. Let God carry you through the dark and tough times and press into him in the sunny, easy times (remember those?) and rest in His grace to meet your needs. He will do it! He is faithful even when we aren't. I pray you (and Kayli and your whole family) will feel His peace today. In Jesus name!Stevehttps://www.blogger.com/profile/05707188504449041953noreply@blogger.com