tag:blogger.com,1999:blog-13889970781229726842024-03-15T20:09:36.969-05:00Kayli is Loving Life Trisomy Style!!!Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.comBlogger210125tag:blogger.com,1999:blog-1388997078122972684.post-16391953102426589292015-08-25T14:19:00.000-05:002015-08-25T14:19:11.225-05:00When she is in heaven <div class="MsoNormal">
<b><span style="font-family: "Comic Sans MS"; font-size: 16.0pt; line-height: 107%;">When she
is in heaven<o:p></o:p></span></b></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: "Comic Sans MS";">Our daughter was
deemed to die, before she was even born, with Trisomy 18. We fought an uphill battle, fighting for her
rights to treatments and life.
Fortunately, we are at a phase of her life, where her medical
professionals are handpicked (instead of taking whoever would be willing to
help her), and she is flourishing against all odds that come her way. <o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-family: "Comic Sans MS";">Years ago, I made
a bucket list for all 4 of our kiddos.
We thought Kayli would have more challenges in marking things off, but
we found instead, that she helped us to see all the things we and others take
for granted and don’t even put on their bucket list. To this day, Kayli has done everything on her
bucket list, which also consists of all things on her brother’s bucket
lists. Kayli and her brothers have done
more in their lives, than many adults have!
My hubby and I find ourselves the challenged ones, as we struggle to
think of things to put on her bucket list, so we feel like we’ve given Kayli a
full life. The pressure was on us to do so,
since the very first time a fellow human being told us that Kayli would only
have a life of suffering and our family of regrets, even while we expressed our
desire to not only give birth to our daughter, but to raise her as we do our
boys. The uphill battle has not been
about raising a child with a terminal prognosis, nor of a medically influenced
childhood….it has been a battle of wills between Kayli and those who had once
not believed in her. It has been a
battle of mind, as the thoughts go through our heads; “is this the last time…”. These thoughts come regularly, as we push
Kayli in a swing, take a walk around the block, celebrate her birthday, sit her
on a pony, take our cheerleader to her brother’s games, or are admitted to the
hospital. As the years go by, the fear
has calmed, but the wonders never cease.
<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-family: "Comic Sans MS";">I have been
released of the fear of death, greatly due to the fact that my faith holds me
to the understanding that while it is us who will cry, those who die will be fulfilled
with peace and love, and free of any judgments, challenges, and harm, once home,
with our maker. While I find peace in
Kayli’s, and all of our, imminent death, I find that I’ve refocused on what
Kayli will say of us when she lives within God vs her present state of God
living within her. <o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-family: "Comic Sans MS";">I wonder if she
will tell God she knows of our great love for her. Is she proud of the choices we’ve made for
her? As I did as a child, will she
exclaim what she would do differently in a parental role? Will she only remember the great times, or
will she remember lessons learned? Would
she say she wanted one more ride on the roller coaster, or hayride? Would she wish she could have climbed that
tree on her own? Would Kayli sit on
Jesus’ lap and tell him stories of the greatest moments of her life, or cry
because she wasn’t done on earth yet? Will she vouch for us and beg for us to join
her in His kingdom, or will she know of His plan to keep us on earth
longer? <o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-family: "Comic Sans MS";">In truth, what will
our boys say? What will we say? In this way, I think Kayli is no different
than we are. We are all children of
God. We are all challenged and we are blessed. We’ve adapted, and we’ve been stubborn. We have struggled, and we have found
peace. <o:p></o:p></span></div>
<br />
<div class="MsoNormal">
<span style="font-family: "Comic Sans MS";">If you were to
look at Kayli today, you would see jaw stabilizers in her cheeks, a trach in
her throat, eyeglasses on her face, a hearing aid in her ear, a feeding tube in
her stomach….and a sparkle in her eyes. You will see a will to live that is stronger
than any other, and a depth to her eyes, that holds the secrets of her will to
live. You won’t see the appreciation for
those who care for her every need, but you somehow know it’s there. If you are open to looking past your
expectations of what Kayli’s life “should be”, you will see the life lessons
that she’s taught so many, as a selfless token of God’s love. You will be Blessed to be in the presence of
a child who could tell God, as she sits on his lap when arriving in heaven,
that she has never caused harm to another, but has only shone them His
love. Kayli is likely to be one of the purest,
who will ever go to heaven. For this
reason, many have called her His angel, on earth. She has been granted the most Blessed of all
lives, to be one of His pure souls, here on earth! She will never sin, as we do. Her life is simple (not complex like so many
in the medical field claim her to be), yet most valued, as she has lived with a
purpose, to share God’s love, unconditionally.
She is not the defective result of a fluke at birth, she is
perfect. She is a gift from God. She is perfect for him, and perfect for us, in every way. </span></div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-26564792599795466512015-01-22T14:33:00.003-06:002016-01-10T18:31:17.197-06:00Resources to share with,for, and help a grieving family<div class="mts _50f8" style="font-size: 12px; line-height: 15.3599996566772px; margin-top: 5px;">
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;"><span class="timelineUnitContainer" style="position: relative;"></span></span><br />
<div class="uiSelector inlineBlock audienceSelector timelineAudienceSelector audienceSelectorNoTruncate dynamicIconSelector uiSelectorNormal uiSelectorDynamicTooltip" style="display: inline-block; margin-left: 1px; margin-top: -3px; max-width: 200px; vertical-align: top; zoom: 1;">
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;"><span class="timelineUnitContainer" style="position: relative;"><br /></span></span>
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;"><span class="timelineUnitContainer" style="position: relative;"><select style="border-color: rgb(189, 199, 216); display: none; padding: 2px;"><option value=""></option><option selected="1" value="80">Public</option><option value="40">Friends</option><option value="10">Only Me</option><option value="111">Custom</option><option value="10150104849737796">Status updates</option><option value="10150321435487796">T18 family</option><option value="See all lists...">See all lists...</option><option value="10150450436737796">Cary, Illinois Area</option><option value="10151534050562796">Illinois special needs friends</option><option value="10151126637472796">Anoxia</option><option value="10151238333147796">Trach Family</option><option value="10150104085032796">no status'</option><option value="10151518063867796">EOE</option><option value="10150750894652796">CHD Family</option><option value="10152238591597796">Trisomy Advocate</option><option value="10152080039387796">Parents of CHD Warriors & Angels~ a place for support</option><option value="10151636823947796">Trisomy Families</option><option value="10150521047667796">Larkin High School</option><option value="10150450436722796">Family</option><option value="Go Back">Go Back</option></select></span></span></div>
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;"><span class="timelineUnitContainer" style="position: relative;">
</span></span></div>
<div class="_5k3v _5k3w clearfix" style="font-size: 14px; line-height: 20px; margin-top: 16px; word-wrap: break-word; zoom: 1;">
<strong><span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Resources to share with, for, and help a grieving family: </span></strong><br />
<strong><span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></strong>
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;"><strong>Funeral/Burial cost help</strong> (negotiate price of funeral (with funeral home) BEFORE paying with funding assistance) </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">1. Local funeral home (some discount or free services for children)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">2. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.prenatalpartnersforlife.org%2F&h=yAQHMJcBx&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.prenatalpartnersforlife.org/</a> (Headstone or Urn for children)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">3. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.missfoundation.org%2Ffamily%2Ffuneral.html&h=8AQEq02Rr&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.missfoundation.org/family/funeral.html</a> (Help setting up and possibly funding a funeral/cremation)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">4. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.ehow.com%2Flist_6741160_grants-pay-funeral-costs.html&h=iAQFzD0RT&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.ehow.com/list_6741160_grants-pay-funeral-costs.html</a> (grants)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">5. Local churches or charities </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">6. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fkidswishnetwork.org%2Fprograms%2Ffuneral-assistance%2F&h=3AQE5ReLy&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://kidswishnetwork.org/programs/funeral-assistance/</a> </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">7. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.afoofa.org%2F&h=2AQEdWi1G&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.afoofa.org/</a> (funeral costs)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">8. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.connorkirbymemorial.org%2Fapplyforassistance.htm&h=CAQHLhZQ9&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.connorkirbymemorial.org/applyforassistance.htm</a> (Maryland and PA residents only)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">9. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.theunforgettables.com%2Fburial-assis.asp&h=JAQF1vG-O&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.theunforgettables.com/burial-assis.asp</a> (southern CA only)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">10. http:// <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.thetearsfoundation.org%2F&h=wAQHs_o0V&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">www.thetearsfoundation.org</a> (funeral costs) (NJ,CO,SC, or Washington State only)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<strong><span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Setting up support</span></strong><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">1. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.carecalendar.org%2F&h=ZAQF2jZci&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.carecalendar.org/</a> (meals, sibling childcare, transportation, errands, answer calls/door, play with siblings, dishes, laundry/housework or yardwork, etc)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">2. grieving family's local coupon organization (stockpile help)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">3. Post an event on facebook and invite others to post Blessings/Memories</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">4. Make a photo album/Memory book, print the Blessings/Memories and send one a day, week, or month to the grieving family to fill the handmade book so they can see the impact their child/family had on other's lives for days to come. </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">5. Send out information to send pictures to the family's address of their child with yours/your family so they can post it on a board at the services. </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">6. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.mealtrain.com%2F&h=cAQG8ijwK&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.mealtrain.com/</a> (meals)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">7. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Ftakethemameal.com%2F&h=_AQGcYW0F&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://takethemameal.com/</a> (meals)</span><br />
<br />
<strong><span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Monetary</span></strong><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">1. <a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.giveforward.com%2F&h=1AQGsjLoT&s=1" rel="nofollow" style="cursor: pointer; text-decoration: none;" target="_blank">http://www.giveforward.com/</a></span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">2. set up a paypal account with/for the family</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">3. Give out the grieving family's address/set up a po box to receive cards, prayers, monetary gifts</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">4. Set up a business account (you as the co account holder) at the family's bank and post donation information with obituary</span><br />
<br />
<strong><span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Gift ideas</span></strong><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">angel wings</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">personalized Christmas ornament (with deceased child's name)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">a personalized teddy bear</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">personalized jewelry</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">donating to a treasured non profit organization</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">A scrapbook album of deceased child/memories</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">send inspirational words/phrases daily or weekly</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">a prepaid phone card</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">gas giftcard, fast food gift certificates, movie giftcards</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">(if coworker) donate vacation/sick time</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">plant a tree in honor/memory of ....</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">a personalized garden stone</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">a framed photo of the deceased child's name in the sand</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Reborn doll </span><br />
<br />
<strong><span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Books</span></strong><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Empty Cradle Broken Heart</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">I Will Carry You by Angie Smith</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Any of Cs Lewis grieving books</span><br />
<br />
<br />
<strong><span style="color: #351c75; font-family: Verdana, sans-serif;">Do's</span></strong><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Allow them to express as much grief as they are able and are willing to share with you. </span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO allow them to express as much unhappiness as they are feeling and willing to share with you.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO allow them to talk about their loss as much and as often as they want to. </span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO be available. to listen, to run errands, to help with the other children, or whatever else seems needed at the time. </span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO deal with the grieving individual gently and positively. </span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO encourage them to be patient with themselves and not to expect too much of themselves.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO encourage them to not impose any “shoulds” or “I should be” on themselves. </span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO give special attention to the child's brothers and sisters at the funeral and in the months to come (they are often in need of attention which their parents may not be able to give). </span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO let your genuine concern and caring show.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO offer specific help such as running errands, helping complete tax or medical forms, or helping to go through their loved one’s belonging.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO offer to be a friend.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO recognize that grieving has no time limit and varies from individual to individual both in the way they express their grief and the time required to stabilize.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO talk about your memories of the deceased child and the special qualities that made the child endearing.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO tell the family how sorry you are about the child’s death and about the pain they must be feeling.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Acknowledge the death through visits, phone calls, sympathy cards, donations, and flowers. </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Remember important days such as birthdays, the death anniversary, Mother's Day, Father's Day, and any other significant day, which may be difficult for the bereaved. A telephone call, visit, or card means a great deal to a bereaved parent.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Make specific offers to help, i.e.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">i. I am going to the store. What do you need? </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">ii. Can I take your kids on Sunday afternoon?</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">i. On Thursday I will be bringing by dinner for the family.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">ii. I will take your child to skating lessons on Sunday.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">iii. Can I come and baby-sit tomorrow evening to give you a break.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">iv. Do you want to get out tonight to talk, walk, or both.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO offer to take the children to schools, birthday parties, and extra-curricular programs.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO immediately following the loss, take charge of the household and inform family and friends of the tragedy, help answer the phone, help dress and feed the children (if applicable), and set up a meal plan.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Call. Call often.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">When you call the bereaved, ask, "How are you doing today?"</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Appreciate that your bereaved relative or friend doesn't always return phone calls right away.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO appreciate that nothing you say will ever make the bereaved parent sadder than the reality of what has happened to their child.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Talk in your natural tone of voice.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO remember that when you phone, even if it is to only leave a message, the bereaved feel comforted by your efforts.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO tell the bereaved family how much you care.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO remember it is usually the simple little things you say or do that mean so much.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Listen.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO continue to support bereaved parents well beyond the acute mourning period, even if it means years..</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Congratulate the bereaved on good news while appreciating that they still carry a tremendous burden of grief.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Find local support through bereavement groups, church, synagogue, bereavement organizations and forward the information to the bereaved family.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Be sensitive that being in the presence of other children of similar age to the deceased may make the bereaved parent uncomfortable.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Give the bereaved time to resume the activities they participated in before their loss.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Know that effort of any kind is appreciated. </span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Learn how to give good hugs. The bereaved need every heartfelt hug they can get.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Expect your relationship with the bereaved to change. When you are bereaved, every relationship is affected in one way or another.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Share your own good news with the bereaved. They still want to hear it.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">Say any of the following:</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">i. Call me at any time if you ever need to talk.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">ii. I can't begin to imagine how you feel.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">iii. I am so sorry for your loss.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Feed and walk the dog who has probably been forgotten about.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Talk to your children about the loss.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Talk to your children about death and the rituals surrounding death.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Find the right time and the right materials to broach the discussion of loss and bereavement with your children.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Consult with your libraries and bookstores for bereavement reading materials for children.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Provide your surviving children with a picture of the departed child as a cherished momento.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Give children the option to attend the funeral.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DO Give children the option of visiting at the cemetery.</span><br />
<br />
<span class="fbUnderline" style="background-color: #cfe2f3;"><strong><span style="color: #351c75; font-family: Verdana, sans-serif;">Dont's</span></strong></span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON’T avoid mentioning their loss or the child's name out of fear of reminding them of their pain (they haven't forgotten it!).</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON’T change the subject when they mention their dead child.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON’T tell them what they should feel or do.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T avoid the bereaved parents because you are uncomfortable (being avoided by friends adds pain to an already painful experience.)</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T let your friends, family or co-workers grieve alone. There is a tremendous sense of isolation and abandonment during the grief process. You can help by caring, by being there, and by being the best friend you can.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T make any comments which in any way suggest that their loss was their fault.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON’T point out that at least they have their other children (children are not interchangeable; they can not replace each other).</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T say "Your loved one is waiting for you over there," "God wanted him," "It was God's will," or "God knows best."</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T say “you can always have another child.”</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T say “you should be coping or feeling better by now” or anything else which may seem judgmental about their progress in grieving.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T say that you know how they feel (unless you've experienced their loss yourself you probably don't know how they feel).</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T suggest that they should be grateful for their other children. Grief over the loss of one child does not discount the parents’ love and appreciation of their living children.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T tell them not to cry. It hurts us to see them cry and makes us sad. But, by telling them not to cry, we are trying to take their grief away.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T tell them what they should feel or do.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T try to find something positive (e.g. a moral lesson, closer family ties, etc.) about the loss.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Allow your own fears from preventing you from offering support to the bereaved.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Fear that bringing up the dead child's name will create sadness.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Say, "If you need anything call me" because the bereaved don't always know how to call and ask for your support.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Be afraid if you make your bereaved friend or relative cry.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Think that good news (family wedding, pregnancy, job promotion, etc.) cancels out grief.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Have expectations for what bereaved parents should or should not be doing at different times in their grief.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Forget the overlooked mourners (grandparents, uncles, aunt's, close friends etc.) who need your support too.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Force bereaved people to talk about their loss. They will engage you when the time is right.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Find yourself saying any of the following:</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">i. It was God's will.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">ii. It was meant to be.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">iii. He's in a better place now.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">iv. Time heals all wounds.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">v. I know just how you feel.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">vi. You are still young enough to have more children.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">vii. Are you not over it yet?</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">viii. At least you have other children.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">ix. Your child is in a better place.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">x. It was for the best.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">xi. Now you will have an angel in heaven.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">xii. It could have been worse...</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">xiii. It's been ______ amount of time and you have to get on with your life.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Expect grieving parents to be strong and don't compliment them if they seem to be strong.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Tell a grieving parent how they should feel.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Be afraid of reminding the parents about the child. They haven't forgotten.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Be afraid to cry or laugh in front of the bereaved.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Assume that when a grieving parent is laughing, they are over anything or grieving any less.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Wait until you know the perfect thing to say. Just say whatever is in your heart or say nothing at all. Sometimes just being there is comfort enough.</span><br />
<br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Underestimate the impact of grief on children. Children understand and retain a lot more than they may show.</span><br />
<span style="background-color: #cfe2f3; color: #351c75; font-family: Verdana, sans-serif;">DON'T Think that children are too young to appreciate loss or death.</span></div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com2tag:blogger.com,1999:blog-1388997078122972684.post-21546240979874258612014-12-16T14:56:00.000-06:002014-12-16T14:58:22.401-06:00Kayli is not guaranteed medical treatments, as you are. <div role="article" style="line-height: 17.0666675567627px;">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 20px;">
<div class="text_exposed_root text_exposed" id="id_54909aa5947fe0495068106" style="display: inline;">
<span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3; color: #3d85c6; font-family: Verdana, sans-serif;">We were recently on a family retreat in KY (about 8 hours from home), when Kayli got seriously ill. On our long way home, we bagged her, gave her nebs while in the vehicle, and administered other life saving methods while struggling to get her back to her "home hospital", rather than stopping at a hospital on the way home. For those of you wondering why it was so important that Kayli made it back to her home hospital, we will explain why it is so much more than just being "comfortable" at home settings. Unfortunately, for many families (including ours) it has been quite the challenge to find dr's, nurses, and hospitals who agree to treating kiddos with a trisomy diagnosis (Kayli has Trisomy 18). We struggled again<span class="text_exposed_show" style="display: inline;">st the dr's pressuring us to terminate her pregnancy, even as with every breathe we said we intend on carrying her as far as she will go. It is our faith that God is the only one who knows of Kayli's term here on earth. Kayli is not a loaf of bread, she does not have an expiration date. We have fought since Kayli was in the womb, to get her unbiased medical treatments. At many hospitals, Kayli has been turned away, refused treatments, and we were even told, "she needs to go home and die!". When leaving the state, Kayli's pediatrician has coached us on what to do in the event she gets sick out of state, because it is a known fact that the majority of dr's and hospital across our nation will refuse to care for Kayli, solely based on the trisomy diagnosis she carries. As ridiculous as it sounds, even in this day and age, Kayli has had many DNR's (Do Not Resusitate) placed on her, and in her chart, without our consent, nor knowledge, solely based on the trisomy diagnosis (not based on her as an individual). Kayli has been denied simple things like antibiotics, oxygen, a feeding tube, and even ortho services, simple because she carries an extra chromosome. Imagine if you will, going to the dr or hospital, looking for medical support, and being told they won't give you any antibiotics, because they don't think you will live long anyways (even if you are in your 30's!). Absurd, right?! We want everyone to be aware of the bias, in hopes that one day it will all change! All God's children should be treated as gifts, not as a tragic pregnancy! We've asked the dr's who've refused to treat (or even examine) Kayli, how they can refuse to care for her, when they've taken the dr's oath to do no harm (which in our opinion means not making our daughter suffer through an illness that is easily treated). Their response has been "we will not prolong her death". <i class="_4-k1 img sp_vOYEWpFssLd sx_850e0d" style="background-image: url(https://fbstatic-a.akamaihd.net/rsrc.php/v2/yA/r/_Z8-fcANn0c.png); background-position: 0px -7778px; background-repeat: no-repeat; background-size: auto; display: inline-block; height: 16px; vertical-align: -3px; width: 16px;"></i> What many dr's don't seem to understand, is that we want them to help us give Kayli the best chance for an amazing life, no matter how long she is with us! We want to enjoy her, love her, and care for her while she IS here with us! She is a member of our family, not a statistic. We ask that the medical professionals support our family care plan, whether it is of their personal opinion or not. We hire them solely for their medical opinion. Only God knows His plan for Kayli (and others like her). We have always asked that the medical professionals respect our parental rights, our parental love. We are Kayli's parents, the same as we are our boys' parents. Just as we ask of medical treatments for our boys (each with rare medical conditions as well), we ask for our daughter. We will live with our decisions, every day, for the rest of our lives, even while the dr's end their work day and go home to their own family. We don't want our forever memories to be that something more could have been done to make Kayli's life more pleasurable while still living, yet professionals refused to help her. That would bring anger and resentment, rather than the comfort that the neglectful professionals claim we would have. It has taken us years to find them, but we are proud to say that Kayli's "home hospital" has NEVER focused on the overcasting "doom" of the trisomy diagnosis, but has rallied with us to support and lift Kayli up as a patient, and as a beloved human being. That, dear friends and supporters, is why it was so very important that Kayli made it back to her home hospital, even when she was in such dire need of life saving medical treatments. Unfortunately, Kayli is never guaranteed to be medically treated, as you and your family most certainly are. </span></span></div>
<div class="text_exposed_root text_exposed" style="display: inline;">
<span class="userContent" data-ft="{"tn":"K"}"><span class="text_exposed_show" style="display: inline;"><span style="background-color: #d9ead3; color: #3d85c6; font-family: Verdana, sans-serif;"><i class="_4-k1 img sp_vOYEWpFssLd sx_d8cc37" style="background-image: url(https://fbstatic-a.akamaihd.net/rsrc.php/v2/yA/r/_Z8-fcANn0c.png); background-position: 0px -7863px; background-repeat: no-repeat; background-size: auto; display: inline-block; height: 16px; vertical-align: -3px; width: 16px;"></i></span><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/trisomy" style="background-color: white; color: #3b5998; cursor: pointer; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; text-decoration: none;">#trisomy</a><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/stopthebias" style="background-color: white; color: #3b5998; cursor: pointer; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; text-decoration: none;">#stopthebias</a><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/kayliskrusade" style="background-color: white; color: #3b5998; cursor: pointer; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; text-decoration: none;">#KaylisKrusade</a><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/treatourchildren" style="background-color: white; color: #3b5998; cursor: pointer; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; text-decoration: none;">#treatourchildren</a><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/godschildren" style="background-color: white; color: #3b5998; cursor: pointer; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; text-decoration: none;">#Godschildren</a></span></span></div>
</div>
<div class="_wk" style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">
</div>
</div>
</div>
</div>
<div class="__jh" style="background-color: white; border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12.222222328186px; height: 30px; line-height: 17.0666675567627px; margin: 12px 12px -12px -12px; padding: 8px 0px; width: 510px;">
<div class="clearfix" style="zoom: 1;">
<div class="_3el2 lfloat _ohe" id="u_j_o" style="float: left; position: absolute;">
<span style="font-size: 12.222222328186px; line-height: 17.0666675567627px;">You can follow Kayli's story on fb, at Kayli's Krusade,</span><span style="font-size: 12.222222328186px; line-height: 17.0666675567627px;"> </span>https://www.facebook.com/KaylisKrusade?hc_location=timeline <br />
<div data-reactid=".62">
<div class="__ji _2cx6" data-reactid=".62.0" style="cursor: pointer; font-size: 13px; margin-left: 12px; margin-top: 2px;">
</div>
</div>
</div>
</div>
</div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com2tag:blogger.com,1999:blog-1388997078122972684.post-71828259580139017152014-11-11T22:14:00.002-06:002014-11-12T14:46:09.366-06:00Illinois Resources<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Some of the following
resources are restricted to certain areas of Illinois. Some of the
following resources are outside of state funding organizations, with
eligibility for IL families. Please
check the websites for more information. <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Ambucs: funding for
adaptive bikes, through AmTryke Wish List) <a href="http://www.ambucs.org/scholars/">http://www.ambucs.org/scholars/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Arc of Illinois: Conference
stipends, family support network, family to family health center, Illinois
lifespan. <a href="http://www.thearcofil.org/">http://www.thearcofil.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Aubrey Rose Foundation:
financial assistance for medical bills not covered by insurance. <a href="http://www.aubreyrose.org/">http://www.aubreyrose.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Believe in Tomorrow:
educational/recreational and supportive services, helping families
reconnect. Hands on Adventures, and hospital and respite housing
programs. <a href="http://www.believeintomorrow.org/about.html">http://www.believeintomorrow.org/about.html</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Blind Citizens: Assistive
Technology Fund (ATF) provides funds to cover 50% of the retail price of
adaptive devices or software. <a href="http://www.blindcitizens.org/assistive_tech.htm">www.blindcitizens.org/assistive_tech.htm</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"><o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Camp New Hope: A family retreat resort in NC. <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Cerner- First Hand
Foundation: funding for treatment, adaptive equipment, vehicle modifications,
etc. not covered by insurance. <a href="https://www.cerner.com/About_Cerner/Community_Impact/">https://www.cerner.com/About_Cerner/Community_Impact/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Chai Lifeline: trips,
hospital stay help, camps, and counseling. <a href="http://www.chailifeline.org/">http://www.chailifeline.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Chicago Hearing Society:
Hearing aid bank and help with evaluations. <a href="http://www.chicagohearingsociety.org/audiology-clinic-a-hearing-aids/chicago-hearing-society-audiology-clinic-and-hearing-aid-service/hearing-aid-bank">http://www.chicagohearingsociety.org/audiology-clinic-a-hearing-aids/chicago-hearing-society-audiology-clinic-and-hearing-aid-service/hearing-aid-bank</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Chicago Lighthouse:
advocating, independent living resources, deaf/blind program. <a href="http://chicagolighthouse.org/">http://chicagolighthouse.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Children's Charity Fund:
funding for adaptive equipment or
education (0-18 years old) <a href="http://www.childrenscharityfund.org/">http://www.childrenscharityfund.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Different IZ Good: Gifts
iPhone, iPad, or iPod touches to speech impaired, minimally verbal, or
non-verbal persons. <a href="http://differentizgood.org/gift-a-voice/">http://differentizgood.org/gift-a-voice/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Different Needz Foundation:
grants for medical equipment or services. <a href="http://www.differentneedzfoundation.org/">http://www.differentneedzfoundation.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Disabled Children's Relief
Fund: assistive technology, vision devices, hearing devices, therapies, etc. <a href="http://www.ok.gov/abletech/documents/Sec%204%20Disabled%20Children's%20Relief%20Fund.pdf">http://www.ok.gov/abletech/documents/Sec%204%20Disabled%20Children's%20Relief%20Fund.pdf</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Dream Catchers, USA:
Outdoor/nature wish organization (fishing/hunting). <a href="http://www.dreamcatchersusa.org/">http://www.dreamcatchersusa.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Division of Rehabilitative
Services (DRS): Home based support, and
home livingprogram assistance. <a href="http://www.dhs.state.il.us/page.aspx?item=29736">http://www.dhs.state.il.us/page.aspx?item=29736</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Faith’s Hope Foundation:
Family assistance for expenses for long term hospital stays (food/utilities/car
payment/lodging/house payment/property tax/ etc. <a href="http://www.faithshopefoundation.org/">http://www.faithshopefoundation.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">First Hand: Displacement
assistance, and specialty services or equipment. Treatments, Equipment, Displacement, vehicle
modifications. <a href="https://applications.cerner.com/firsthand/">https://applications.cerner.com/firsthand/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">First Transit: Medicaid
paid for transportation to/from dr appts. Also has a
program where parents become approved transporters and are reimbursed for
mileage. <a href="http://www.firsttransit.com/About-Us">http://www.firsttransit.com/About-Us</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Friends of Man: Equipment,
Prosthetics, Wheelchairs, mobility equipment/vehicle modifications. <a href="http://www.friendsofman.org/ReferOutsideCO.php">http://www.friendsofman.org/ReferOutsideCO.php</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Gia Nicole Angel
Foundation: funding of specialty item(s) for low income/single parent
families. <a href="http://www.giafoundation.com/extensions">http://www.giafoundation.com/extensions</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Gigi's Playhouse: For
Trisomy 21 only. Events and play dates for kiddos with T21. <a href="http://gigisplayhouse.org/">http://gigisplayhouse.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Gracie’s Hope: Funding for
HBOT and other treatments/therapies. <a href="http://www.gracieshopehyperbarics.com/application/">http://www.gracieshopehyperbarics.com/application/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Grottoes of North America
Humanitarian Foundation: Helps cover the costs of dental treatment, including
hospital and anesthesia costs when needed, for children with cerebral palsy,
muscular dystrophy (and related neuromuscular disorders), organ transplant
recipients or those with mental retardation. <a href="http://www.hfgrotto.org/programs/the-dental-program/">http://www.hfgrotto.org/programs/the-dental-program/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Hands to Angels: Financial
assistance for families facing a rare condition (like Trisomy). <a href="http://www.handstoangels.org/index.html">http://www.handstoangels.org/index.html</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">The Hearing impaired Kids
Endowment Fund: grants for hearing aids and assistive devices. <a href="http://www.thehikefund.org/Application/ApplicationFormsPortal.html">http://www.thehikefund.org/Application/ApplicationFormsPortal.html</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Helping from heaven, the
Lexi Kazian Foundation: Lexi's Closet (equipment loan center),
funding for adaptive/therapy equipment, and free events. <a href="http://www.helpingfromheaven.org/">http://www.helpingfromheaven.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">HIPP progam: State
pays insurance deductibles and/or COBRA if elegible for private
insurance and on Medicaid. <a href="http://www.dhs.state.il.us/page.aspx?item=19239">http://www.dhs.state.il.us/page.aspx?item=19239</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Illinois Assistive
Technology: Assistive technology loan center. <a href="http://www.iltech.org/">http://www.iltech.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Illinois Elk's Children's
Care Corporation: funding for adaptive equipment, bikes, and services. <a href="http://www.illinois-elks.org/ccc/">http://www.illinois-elks.org/ccc/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Internet essentials: $9.95
monthly for home internet for families with kids who qualify for/receive free
school lunches. <a href="http://www.internetessentials.com/">http://www.internetessentials.com/</a><o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">The Kids Equipment
Network: Funding help for equipment. <a href="http://www.tken.org/">http://www.tken.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Kids on the Go: mobility
program through variety- funding for adaptive sports, bikes, and wheelchairs. <a href="http://www.varietyofillinois.org/kidsonthego/">http://www.varietyofillinois.org/kidsonthego/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Kids Wish Network: Wish
granting, hero of the month, toys/clothes/necessities tour, holiday of hope
gifts, funeral assistance. <a href="http://kidswishnetwork.org/programs/">http://kidswishnetwork.org/programs/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Kya’s Krusade: Adaptive
equipment and therapeutic services funding: <a href="http://www.kyaskrusade.org/info/programs-and-services/financial-assistance-program/">http://www.kyaskrusade.org/info/programs-and-services/financial-assistance-program/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">The Lindsay Foundation:
Financial assistance for seating and transportation equipment, therapies,
medical procedures, medical supplies, communicative devices (excludes iPads),
and rehabilitative equipment. <a href="http://www.lindsayfoundation.org/about.html">http://www.lindsayfoundation.org/about.html</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Make a Wish: Chicago has
one of the biggest/wealthiest chapters of Make a Wish! If your SN
child is considered terminally ill or has a life threatening condition, he/she
could qualify for a wish! Wishes are in 4 categories; to be someone,
to meet someone, to go somewhere, or to have something. <a href="http://illinois.wish.org/">http://illinois.wish.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Miracle Ear Foundation:
Hearing aids for low income after exhausting all resources. <a href="http://www.miracle-ear.com/en-us/miracle-ear-foundation/eligibility">http://www.miracle-ear.com/en-us/miracle-ear-foundation/eligibility</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Molly Bear Foundation:
Supplemental financial assistance for families facing a Trisomy 18 diagnosis. <a href="http://www.mollybear.org/">http://www.mollybear.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">The Morgan Project: Small
grants, and gently used disability equipment. <a href="http://www.themorganproject.org/">http://www.themorganproject.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Northern Illinois Special
Recreation (NISRA): Year round recreational activities for the disabled. <a href="http://www.nisra.org/">http://www.nisra.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Normal Moments: After
enrollment, you can ask for a "David". Normal moments will
send volunteers, or hired help for around the house needs (cooking, cleaning,
yard work, etc). They also give Thanksgiving and Christmas
dinners to enrolled families, and connect your family with donators for
Christmas gifts. <a href="http://www.normalmoments.org/">http://www.normalmoments.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Options & Advocacy:
Early Intervention, sibshops, apply for PUNS, life management
program. <a href="http://www.optionsandadvocacy.org/">http://www.optionsandadvocacy.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">The Lindsay Foundation:
Financial assistance for seating and transportation equipment, therapies,
medical procedures, medical supplies, communicative devices (excludes iPads),
and rehabilitative equipment. <a href="http://www.lindsayfoundation.org/about.html">http://www.lindsayfoundation.org/about.html</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Parker Lee Project: Medical
supplies, including diapers. <a href="http://www.theparkerleeproject.org/">http://www.theparkerleeproject.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Parker’s Purpose: Monetary
grant up to $1,000. <a href="http://parkerspurpose.net/index.php?page=application-for-assistance">http://parkerspurpose.net/index.php?page=application-for-assistance</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Pass It On Center:
classifieds for used assistive technology <a href="http://passitoncenter.org/locations/SearchResults.aspx">http://passitoncenter.org/locations/SearchResults.aspx</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">The Prayer Child
Foundation: Prayers and other help for children with syndromes or illnesses
(emotional, physical, etc) with no fault of their own. <a href="http://prayerchild.org/">http://prayerchild.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Project Reach: Illinois
Deaf Blind Services: Technical assistance, training, information, and family
support. They also give away iPads when available. <a href="http://www.philiprockcenter.org/">http://www.philiprockcenter.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal">
<div style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">PUNS: A lottery system for
a waiver program that gives your family a lump sum of money to spend on
nursing, medical equipment, etc. <a href="http://www.thearcofil.org/applying-for-services-and-puns">http://www.thearcofil.org/applying-for-services-and-puns</a> <o:p></o:p></span></div>
<div style="line-height: 11.75pt;">
<br /></div>
<span style="background-color: #d9ead3;"><span style="color: #0b5394; font-family: Verdana, sans-serif; line-height: 11.75pt;">ReachOut Wireless: Free cell phone/minutes if low income qualified. </span><span style="color: #0b5394; font-family: Verdana, sans-serif;"><span style="line-height: 15.6666669845581px;">https://www.reachoutmobile.com/</span></span></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Save the Kid
Fund, Inc: medical treatment funding, grants for; medications, handicap
aids, adaptive bikes, diapers, leg braces, etc. http://www.savethekid.org/ <a href="http://www.savethekid.org/">http://www.savethekid.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Small Steps in Speech: Funding for supplemental therapy and
treatments for children. <a href="http://differentizgood.org/gift-a-voice/">http://differentizgood.org/gift-a-voice/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Songs of Love Foundation: a
(free) personalized song for children and teens. <a href="http://www.songsoflove.org/">http://www.songsoflove.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Social Security Insurance
(SSI): supplemental federal funding. <a href="http://www.ssa.gov/pgm/ssi.htm">http://www.ssa.gov/pgm/ssi.htm</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Special Needs Assistance
Program – Modest grants for medical and therapeutic equipment, not covered by
health insurance or in the case of no health insurance, throughout the United
States, from birth to age 22. <a href="http://www.snap4kids.org/">www.snap4kids.org</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"><o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Special Spaces: Room
makeovers. <a href="http://www.specialspaceschicagoland.org/">http://www.specialspaceschicagoland.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Starlight Foundation: Hosts
Great Escapes, and gives donated tickets to events in the area, for
enrolled, special needs families. <a href="http://www.starlight.org/">http://www.starlight.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">State Waiver programs:
There are a various of different waiver in IL. (will update
later)<o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Sunshine Foundation: Wishes
for 3-18 y/o. <a href="http://www.sunshinefoundation.org/">http://www.sunshinefoundation.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Thumbuddy Special:
funding for adaptive equipment. <a href="http://www.thumbuddyspecial.org/">http://www.thumbuddyspecial.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">United Healthcare
Children's Foundation: funding for adaptive equipment, hearing aids,
therapies, etc (quality of life and improvement opportunities) up to
$5,000 per year, with a $7,500 lifetime max per child. <a href="http://www.uhccf.org/about/">http://www.uhccf.org/about/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Used Home Medical
Equipment: database of adaptive equipment for sale (search by zipcode) <a href="http://usedhme.com/">http://usedhme.com/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Western Wishes Foundation
USA, Inc: Western themed wishes (rodeo, country concerts, riding
horses, etc) <a href="http://www.westernwishes.org/">http://www.westernwishes.org/</a> <o:p></o:p></span></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<br /></div>
<div class="MsoNormal" style="line-height: 11.75pt;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Variety- The Children's
Charity of Illinois: funding for adaptive equipment, van and home lifts,
adaptive bicycles, and stair lifts. <a href="http://www.varietyofillinois.org/">http://www.varietyofillinois.org/</a> <o:p></o:p></span></div>
<br />
<div class="MsoNormal">
<br /></div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-4262890611201543162014-11-09T13:08:00.001-06:002014-11-09T13:34:52.247-06:00Transitioning to Home Care, Equipment and Supplies <span style="font-family: Verdana, sans-serif;">Transitioning to Home Care series</span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">While it is exciting to be leaving the hospital for the first time with your complex child, it can be overwhelming. One of the stressors is making sure you have all the equipment and supplies needed, for home care. These are lists of commonly used equipment and supplies for children, including those with any/all of the following: Tracheostomy, Feeding tube, Vent dependent. The hospital social worker or discharge co-ordinator can help set you up with a DME (durable medical equipment supplier). For personal recommendations of a DME near you, try asking in your local fb groups. You will need physician scripts for all home care equipment and supplies, which the co-ordinator can supply to the DME. Your home care physician should supply the DME with future equipment/supply orders. </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif; font-size: large;">Home Care Equipment:</span><br />
<br />
<span style="font-family: Verdana, sans-serif;">Air Compressor~ This is to support the function of the Fisher Paykel humidification system. Specific supplies needed to operate: o2 tubing, filter(s). </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Apnea monitor~ Machine used to monitor apnea (pause in breathing) events. Supplies needed to operate: mask, sensors</span><br />
<br />
<span style="font-family: Verdana, sans-serif;">Co2 monitor~ Positive air pressure usually used for sleep apnea or airway obstruction. Supplies needed to operate: trach connector, sensor, mask. </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Concentrator~ A concentrator is oxygen that is continuously being "made" by pulling from the surrounding air. This is used to either support the Fisher Paykel system, or can be used individually for 02 support in the home. Specific supplies needed to operate: o2 tubing, filter(s). </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Cough Assist~ </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">CPAP machine~ Supplies needed to operate: mask, travel bag, car charger, </span><br />
<div>
<br /></div>
<div>
<span style="font-family: Verdana, sans-serif;">CPT wand~</span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Humidified air system~ called the Fisher Paykel. This system is used to humidify the tracheostomy airway. While our noses have hair (filters) to keep humidity in our upper airway, our trachea (mid airway) does not have a natural filter to keep humidity in the airway. The Fisher Paykel system supplies humidity to keep the airway from drying up, which can cause mucus plugs and/or collapsing of the airway. Specific supplies needed to operate: heated (coiled) tubing kit, humidified chamber, o2 tubing, sterile o2 bags. </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Mechanical lift (and slings) </span><br />
<div>
<br /></div>
<span style="font-family: Verdana, sans-serif;">Nebulizer~ a device that delivers breathing treatment medications. Specific supplies needed to operate: nebulizer kit, filter(s).</span></div>
<div>
<span style="font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="font-family: Verdana, sans-serif;">Oxygen (02) tanks~ portable tanks used for transit, or in the home when a vent and/or humidification is not needed for moments in time. It is good to have o2 tanks for back up in the home as well (for when power goes out). Tanks come in many sizes, where the higher the alphabetical number, the bigger the tank (more oxygen it holds). The size "H" tank is too large to use in transit, but hold enough oxygen for back up supply at home. Another o2 tank option is liquid o2. This must be prescribed specifically by the physician, and carries extra risks in home care use. Specific supplies needed to operate: o2 tubing, on/off key, regulator, portable cart and/or wheelchair tank holder. </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Oxygen analyzer~ gives accurate reading of percentage of o2 output. </span></div>
<div>
<br /></div>
<div>
<span style="font-family: Verdana, sans-serif;">Portable concentrator~ a rechargeable concentrator that holds o2. This can be used in home for emergency backup, or on an airplane (02 tanks are not allowed on the flights). Specific supplies needed to operate: o2 tubing, battery, wall plug, car charger. </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Pulse oximeter (pulse ox)~ There are two types of pulse ox machines. Portable (can take with you outside of the home) and Stationary (stays at bedside). Depending on the pulse oximeter, you are able to monitor oxygen saturations (o2 levels) in the blood, heart rate (some with visual rythm), and/or Co2 levels. The Pediatrician, Cardiologist, and/or the Pulmonology specialist can write the script for this device(s). Specific supplies needed to operate: pulse ox sensors. </span></div>
<div>
<br /></div>
<div>
<span style="font-family: Verdana, sans-serif;">Scale~ If the patient's in/outs are being measured, you will need a scale to weigh diapers/nappers/briefs. </span></div>
<div>
<span style="font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="font-family: Verdana, sans-serif;">Shake Vest~ </span></div>
<div>
<span style="font-family: Verdana, sans-serif;"><br /></span></div>
<span style="font-family: Verdana, sans-serif;">Suction machine~ There are two types of suction machines. Portable (can take with you outside the home) and Stationary (stays at bedside). The suction (sx) machine is used to clear the airway of secrections (saliva/drooling). The pediatrician or PCP (primary care physician) can write the script for this device(s). Specific supplies needed to operate: </span><span style="font-family: Verdana, sans-serif;">filter, sx canister, sx tubing, car charger, wall charger, extra battery, sx catheters (oral and/or deep suctioning for trach).</span><br />
<br />
<span style="font-family: Verdana, sans-serif;">Ventilator (vent)~ Used for dependent breathing support. Specific supplies needed to operate: white circuit tubing, swivel trach adapter, battery, car charger, bag (for in travel). </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif; font-size: large;">Home Care Supplies: </span><br />
<span style="font-family: Verdana, sans-serif; font-size: large;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><i><b>Trach/vent care</b></i></span><br />
<span style="font-family: Verdana, sans-serif;">Trachs</span><br />
<span style="font-family: Verdana, sans-serif;">Trach ties</span><br />
<span style="font-family: Verdana, sans-serif;">Surgi lube (or KY jelly)</span><br />
<span style="font-family: Verdana, sans-serif;">Trach cleaning kits</span><br />
<span style="font-family: Verdana, sans-serif;">HME's (heat and moisture exchangers)</span><br />
<span style="font-family: Verdana, sans-serif;">Gauze (for stoma), split 2X2 </span><br />
<span style="font-family: Verdana, sans-serif;">Medical tape (to secure split gauze)</span><br />
<span style="font-family: Verdana, sans-serif;">Trach collar (mask) </span><br />
<span style="font-family: Verdana, sans-serif;">o2 tubing</span><br />
<span style="font-family: Verdana, sans-serif;">Heated/coiled tubing </span><br />
<span style="font-family: Verdana, sans-serif;">Humidfied Chambers (for Fisher Paykel/vent systems)</span><br />
<span style="font-family: Verdana, sans-serif;">Vent connector pieces</span><br />
<span style="font-family: Verdana, sans-serif;">Scissors (to cut trach ties) </span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><i><b>Feedings/GI care</b></i></span><br />
<span style="font-family: Verdana, sans-serif;">Feeding bags</span><br />
<span style="font-family: Verdana, sans-serif;">Formula</span><br />
<span style="font-family: Verdana, sans-serif;">Ferrell bags</span><br />
<span style="font-family: Verdana, sans-serif;">Mic Key or Mini buttons</span><br />
<span style="font-family: Verdana, sans-serif;">Gtube extensions</span><br />
<span style="font-family: Verdana, sans-serif;">Syringes (for venting and flushes) </span><br />
<span style="font-family: Verdana, sans-serif;">Chux pads</span><br />
<span style="font-family: Verdana, sans-serif;">Diapers</span><br />
<span style="font-family: Verdana, sans-serif;">Colostomy bag</span><br />
<span style="font-family: Verdana, sans-serif;">Double stick Colostomy tape</span><br />
<span style="font-family: Verdana, sans-serif;">Tape measure (for girth) </span><br />
<div>
<br /></div>
<span style="font-family: Verdana, sans-serif;"><i><b>Medication care</b></i></span><br />
<span style="font-family: Verdana, sans-serif;">Crushing syringes/</span><span style="font-family: Verdana, sans-serif;">Pill crusher</span><br />
<span style="font-family: Verdana, sans-serif;">Pill cutter</span><br />
<span style="font-family: Verdana, sans-serif;">Nursing drug book</span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><b><i>General Care</i></b></span><br />
<span style="font-family: Verdana, sans-serif;">Scissors</span><br />
<span style="font-family: Verdana, sans-serif;">Flashlight</span><br />
<span style="font-family: Verdana, sans-serif;">Tegaderm</span><br />
<span style="font-family: Verdana, sans-serif;">Duoderm</span><br />
<span style="font-family: Verdana, sans-serif;">Cotton tipped applicators (sterile qtips) </span><br />
<span style="font-family: Verdana, sans-serif;">Saline bullets</span><br />
<span style="font-family: Verdana, sans-serif;">Medical tape (paper, transparent, or silk)</span><br />
<span style="font-family: Verdana, sans-serif;">Distilled water</span><br />
<span style="font-family: Verdana, sans-serif;">Vinegar</span><br />
<span style="font-family: Verdana, sans-serif;">Face masks (for care takers)</span><br />
<span style="font-family: Verdana, sans-serif;">Protective gowns (for care takers)</span><br />
<span style="font-family: Verdana, sans-serif;">Adhesive remover pads</span><br />
<span style="font-family: Verdana, sans-serif;">Thermometer</span><br />
<span style="font-family: Verdana, sans-serif;">Stethoscope</span><br />
<span style="font-family: Verdana, sans-serif;">Blood pressure cuff/kit</span><br />
<span style="font-family: Verdana, sans-serif;">Extra batteries for machines </span><br />
<span style="font-family: Verdana, sans-serif;">Toothettes </span><br />
<span style="font-family: Verdana, sans-serif;">Hydrogen Peroxide </span><br />
<span style="font-family: Verdana, sans-serif;">Sterile Gloves</span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><b><i>Respiratory Care</i></b></span><br />
<span style="font-family: Verdana, sans-serif;">Suction tubing</span><br />
<span style="font-family: Verdana, sans-serif;">Suction filters</span><br />
<span style="font-family: Verdana, sans-serif;">Nebulizer filters</span><br />
<span style="font-family: Verdana, sans-serif;">Little Suckers (with or without covers), Nasal suckers, yankauers</span><br />
<span style="font-family: Verdana, sans-serif;">Suction catheters (for trach suctioning) (can be sleeved or un-sleeved)</span><br />
<span style="font-family: Verdana, sans-serif;">Pulse Oximeter sensors</span><br />
<span style="font-family: Verdana, sans-serif;">Sterile water bags for the Fisher Paykel system</span><br />
<span style="font-family: Verdana, sans-serif;">Nebulizer kits</span><br />
<span style="font-family: Verdana, sans-serif;">Ambu bag</span><br />
<span style="font-family: Verdana, sans-serif;">Passi Muir valve</span><br />
<span style="font-family: Verdana, sans-serif;">Posey wraps</span><br />
<span style="font-family: Verdana, sans-serif;">Aspirator</span><br />
<span style="font-family: Verdana, sans-serif;">O2 tanks</span><br />
<span style="font-family: Verdana, sans-serif;">Generator (for back up)</span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><i><b>Urinary Care</b></i></span><br />
<span style="font-family: Verdana, sans-serif;">Urinary catheters </span><br />
<span style="font-family: Verdana, sans-serif;">Foley/indwelling with a small bag </span><br />
<span style="font-family: Verdana, sans-serif;">Diapers</span><br />
<span style="font-family: Verdana, sans-serif;">Diaper liners</span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><b><i>Wound Care</i></b></span><br />
<span style="font-family: Verdana, sans-serif;">Sanitary napkins (to absorb blood)</span><br />
<span style="font-family: Verdana, sans-serif;">Tega derm</span><br />
<span style="font-family: Verdana, sans-serif;">Abdominal pads </span><br />
<br />
<span style="font-family: Verdana, sans-serif; font-size: large;">Pharmaceutical items</span><br />
<span style="font-family: Verdana, sans-serif;">Alcohol wipes</span><br />
<span style="font-family: Verdana, sans-serif;">Heparin syringes/flushes</span><br />
<span style="font-family: Verdana, sans-serif;">Gauged needles (for PICC lines, and Ports)</span><br />
<span style="font-family: Verdana, sans-serif;">Glucose monitor, needles, and strips</span><br />
<span style="font-family: Verdana, sans-serif;">Chest port surgical kits</span><br />
<span style="font-family: Verdana, sans-serif;">IV supplies (caps, butterfly needles, surgical kit) </span><br />
<span style="font-family: Verdana, sans-serif;">Ketone strips</span><br />
<span style="font-family: Verdana, sans-serif;">Sterile water</span><br />
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><br /></span>
<br />
<br />Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-66601293903723671472014-09-08T09:54:00.001-05:002014-09-08T09:54:25.668-05:00Conformable casts<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Kayli has had 3 surgeries to correct her club feet with tenatomies and joint contracture releases, but with each surgery once she was out of the casts, she recurred (went back to club foot positioning). This last set of AFO's (ankle foot orthotics), have caused bruising and skin break down, so we met with Kayli's physiatrist ( medical dr who specializes in physical and rehabilitative services for the <span style="line-height: 15.3600006103516px;">musculoskeletal system) </span>and PT (physical therapist) to see if there was another more comfortable option. They recommended the Conformable casts. Kayli went to get fitted last Friday, and went home with them the same day. The casts are open at the front of the leg, and Velcro'd together for easy access. We can take Kayli's casts off for bathing, aquatic therapy, and time in the stander. While in the stander, Kayli will wear her AFO's for firmer support. So far, Kayli's feet and ankles look like they are healing well, and her feet are still correcting. We will go back in a couple of weeks, to adjust her feet positioning back into a 90 degree bend. </span><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUoNAlYdhoOpTVNExl4xMGq5qH2507w2wqvAAy96E7k84gvz1vnA5JFfdZ0H3GMd6bv4e07AfiVJYf5LhEZOPCWKUKwV2jHj5RgtUtBJki82u5S4re5cn-M84F4-mQNIS18vwp4E52OA8/s1600/comforable+casts.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUoNAlYdhoOpTVNExl4xMGq5qH2507w2wqvAAy96E7k84gvz1vnA5JFfdZ0H3GMd6bv4e07AfiVJYf5LhEZOPCWKUKwV2jHj5RgtUtBJki82u5S4re5cn-M84F4-mQNIS18vwp4E52OA8/s1600/comforable+casts.jpg" height="320" width="240" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">The inside of the casts are made of a very soft and plush cotton, so Kayli does not need to wear socks underneath. Between the cotton lining and outer casting, are cotton pads to relieve pressure of the skin breakdown (from the AFO's) and any pressure spots. The casts will need to be changed every 8-12 weeks, which will be convenient because her PT for this casting is also her aquatic therapist. We will be able to schedule the appoints back to back, so no extra trips will be needed for casting. </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">These conformable casts were an excellent recommendation for Kayli's needs! We are excited to have found the perfect orthotic support for her! </span></div>
<br />Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com1tag:blogger.com,1999:blog-1388997078122972684.post-60805393223355967372014-07-06T08:46:00.001-05:002014-07-06T08:56:51.423-05:00Therapies for brain injuries/developmental delays<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">Kayli sustained trauma to her brain, at 4 months old, when she passed away for 32 minutes, in a PICU room, 8 hours after open heart surgery. She lost all abilities and reflexes, with the exception of breathing. Kayli spent the first few years of her life, in 9 therapies to overcome her delays caused by the hypoxia. She did well in the therapies, and learned to move her muscles well enough to push adaptive buttons! Kayli was in the following therapies: </span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;"><br /></span>
<span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;"><b>Early Intervention;</b></span></span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">PT (physical therapy)</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">OT (occupational therapy)</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">DT (developmental therapy)</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">DTV (developmental vision therapy)</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">DTH (developmental hearing therapy)</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">ST (speech therapy)</span><br />
<span style="background-color: #d9ead3;"><br /></span>
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="font-size: 14px; line-height: 20px;"><b style="background-color: #d9ead3;">Outpatient:</b></span></span><br />
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">PT</span></span><br />
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">OT</span></span><br />
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">ST</span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="font-size: 14px; line-height: 20px;"><br /></span></span>
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="font-size: 14px; line-height: 20px;">A couple of years ago, Kayli trialed, and proved she could handle, a Passi Muir (speaking) valve. Although we were told a person cannot get reflexes back once lost, and that if there is absolutely no therapy to help with complete loss of muscle tone in the trachea and/or larnyx, we found that Kayli started controlling her secretions and started swallowing on her own when she wore the Passi Muir valve!!! This was a HUGE accomplishment for Kayli!!! </span></span></span><br />
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">Even with her success, Kayli has faced many more traumatic medical inflictions. She has gone on to survive 6 more traumatic and life medical altering incidents. She has been granted a total of 8 miracles of life, for which we are grateful, but unfortunately, she also sustained more brain damage. Kayli keeps fighting to stay with us, and thrives with therapies, so it is our every intention to stay one step ahead of her in hope's of paving a smoother path for her. </span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="font-size: 14px; line-height: 20px;"><br /></span></span>
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="font-size: 14px; line-height: 20px;">Currently, Kayli gets </span></span></span><br />
<span style="background-color: #d9ead3;"><br /></span>
<br />
<ul>
<li><span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">PT</span></li>
<li><span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">OT </span></li>
<li><span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">DT</span></li>
<li><span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">ST </span></li>
<li><span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">DTV - iPad, Smart board, eyeglasses</span></li>
<li><span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">CVI therapy (eye training for eye gaze programs)</span></li>
<li><span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">DTH - FM system and hearing aided</span></li>
</ul>
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"> at school, but those therapies are limited, as they only apply to academic goals. </span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>
<span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">Current/evolving outpatient therapies include</span></span><br />
<span style="background-color: #d9ead3;"><br /></span>
<br />
<ul>
<li><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">ST - Vital Stim, Passi Muir valve</span></span></li>
<li><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">PT - Aquatic therapy</span></span></li>
<li><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">OT - Reflex Integration Therapy</span></span></li>
<li><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">CVI - <a href="http://trisomy18.blogspot.com/2014/01/special-needs-ipad-apps.html" target="_blank">iPad apps</a></span></span></li>
</ul>
<span style="background-color: #d9ead3;"><br /></span>
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><br /><span style="font-size: 14px; line-height: 20px;">Last year, we put Kayli in Aquatic therapy, and she did VERY well! She was able to kick her legs, and splash the water with her hands! Kayli has always loved her baths, and well, any time she can spend in the water! </span></span><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"> Kayli was in aquatic therapy 6 hours a week, and loved it! </span><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">Unfortunately, the therapeutic</span><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"> pool she was using, closed for renovations, and Kayli was dropped from Aquatic therapy. :-( </span></span><br />
<span style="background-color: #d9ead3;"><br /></span>
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">We recently found another therapeutic pool in our area, that was just built, so she will be going back into Aquatic therapy soon! :D Kayli's current outpatient therapies include PT and Svetlana Masgutova Reflex Integration therapy (through OT). The reflex therapy is unique in that primary reflexes, that somehow were lost or not further developed, are re-taught. Kayli is doing well with this therapy! We even saw a great improvement in her bladder reflexes, during the evaluation session! lol </span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="font-size: 14px; line-height: 20px;"><br /></span></span>
<span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">In the last month, we had Kayli evaluated for Hippotherapy (Equine), but she was not eligible because her spinal rods were a contraindication. We were told she would be eligible for Horse driving (where she would sit in a wagon led by a horse), but the therapy is limited in the areas it is practiced. We may revisit this method at a later date. </span></span><br />
<div>
<span style="background-color: #d9ead3;"><br /></span></div>
<span style="color: #333333; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="background-color: #d9ead3; font-size: 14px; line-height: 20px;">Kayli will also starting Vital Stim therapy soon. Vital Stim is a ST, that will help Kayli strengthen her trachea (airway) muscles, and her Larynx (vocal chord) muscles. It is another aggressive therapy, where she will be attending therapy sessions 3 times a week, for 8-12 weeks. We can't wait for her to start! :D </span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>
<span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">We recently contacted a University in the USA, that practices stem cell therapy, but alas Kayli was not a candidate for the clinical trial, because she does not have her own cord blood (we were denied saving it at birth, because of her Trisomy 18 diagnosis). </span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>
<span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">We are always looking for more avenues to help Kayli in her recovery, and are considering these additional therapies for Kayli, to aid her in recovering brain function:</span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;"><br /></span>
<span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">Cuevas Medek Exercises</span></span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">G-therapy</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">Advanced Biomechanical Rehabilitation</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">Hyperbaric treatments</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">Neuro suit therapy</span><br />
<span style="background-color: #d9ead3; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">Anat Baniel Method</span><br />
<span style="background-color: #d9ead3;"><span style="color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">Biomedical Protocol </span><span class="text_exposed_show" style="color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;"><br />Institutes for the Achievement of Human Potential </span></span><br />
<span style="background-color: #d9ead3;"><span class="text_exposed_show" style="color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;"><br /></span>
<span class="text_exposed_show" style="color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;">If you can suggest or give your opinion of any other therapeutic methods, please feel free to leave a comment or message us! </span></span><br />
<span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; line-height: 20px;"><br /></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com2tag:blogger.com,1999:blog-1388997078122972684.post-969719215525990132014-07-06T08:04:00.000-05:002014-07-06T08:34:12.155-05:00Unconditional faithThis past winter:<br />
As I drove alone to the 2 appts of the day, I struck up a conversation with God. On my left were expensive houses with plenty of houses sitting on grand yards. One caught my eye, and I told God that if He planned on us owning our own home again, I'd like one like THAT one...only a ranch with many rooms to spread out in...and no stairs so that Kayli could go throughout the house with us, in her wheelchair...but the yard was good, and the airy feeling of the walk out backdoor looked good...so I guess a basement would be ok. I turned the corner and as I drove on, the houses started looking a little less grand. I found myself thinking about a friend who's furnace was out and she, her husband, and her daughter with special needs sat in the cold, yet our furnace was working and my kiddos with special needs were warm at home. I thought about all the people who's house windows were not new like ours, but rather breezy even with plastic covering them. And those who's car wouldn't start today, yet here I drive, with a new battery. The guilt and shame grew like fungus, in my mind. Here we are, no longer homeless, and my choice of conversation with God was about what more I wanted...not of Thanks. So, I started thanking God. I thanked him for always being there for me. For Blessing me with my kiddos with special needs, to teach me about life with Him. For carrying us through the life threatening syndromes and diseases. For the warm house and full cabinets. And for the dimes (see my previous story about God and the dime, <a href="http://trisomy18.blogspot.com/2013/04/faith-in-every-day.html" target="_blank">here</a>). <br />
<br />
That's when it hit me. I needed to leap in my faith. Many don't know this about me, but I carry shame every day. I give freely to others, but when I am thanked....I feel guilt. You see, I only give to others when it doesn't affect me. I don't sacrifice anything when I'm helping others. I give away extra medical supplies, and clothes that the kids have outgrown. I give away groceries that I know I probably won't make or eat, and I make excuses when I'm asked to sacrifice something. My time, my money, my understanding....I reason why I can't right now. I hold them all close to me and judge others while checking my inventory to see if I have anything extra to share. As I passed a shabby house with plastic on it's windows and a minivan 2 decades old, in the rock driveway, I asked God to help me take the leap of faith in Him. I told Him that I want to give something that we (my family and I) need, to someone else in need. I asked God to help guide me, so that I would know who He wanted me to give to. I asked God to use me, to carry out His plan in someone else's life. I felt God tell me that I was to stop at a house, and give $100 to the family that lived there. It was a perfect plan! $20 would be easily excused for our family, so that would not be enough. $100 would be enough to notice missing in our pockets when paying bills. <br />
I started searching, with my soul, for the family to share my faith with. Nervously, I turned onto a side street, and hesitantly crept into the driveway that seemed to pull me in. I looked at the house and thought to myself, "what if this is just where I want to go, and not where God wants me to be?". I backed out of the driveway, and started driving away, afraid of making a wrong decision, and failing as God's servant. Unsure of my choice, I decided to put God to the test. I said to Him, if You want me to give the money to someone in this house, then surely you will give me a sign. I then took one more look for a sign of faith. My eyes focused on the shabby house again, and although the first sight of the old leaking windows, and de-compensating roof showed a need for the money, I had not seen any sign of God there. At the second look, I saw the sign from God appearing out of nowhere.... a simply perfect cross made of palm leaves, on their door! A smile came over my face, as a chuckle escaped my throat. "Thank you God!", I say out loud. "You are always with me, and hear me". I quickly backed up my vehicle, pulled in the driveway, and rushed up to the door. Thanks be to God, for showing me the way!!! I anxiously knocked at the door, without a plan in mind. A man, wearing a coat even though he was in his house, answered the door. I stumbled my words with excitement, as my hand extended to his, with the $100 bill. I said "God Blessed You, this is for you!". The man stuttered with words of confusion, asking me why, and assuring me it was not his to take. I told him it might be because he prayed for it, or maybe because God knew he needed it? I told him I didn't know why I chose him, but I have faith that God does. It is his to keep, because he has Jesus in his life. With tears swelling in his and my eyes, and as he stared at the bill in his hand, I thanked him, and drove off with such love in my heart. Love for my fellow follower, and love for our mentor and best friend, in Jesus Christ. What an exhilarating feeling, to give something that I needed, to someone who also needed it. Not necessarily for monetary value, but for a reminder of our unconditional faith in God. <3 Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com2tag:blogger.com,1999:blog-1388997078122972684.post-47950054219678498082014-06-15T08:48:00.000-05:002014-06-15T15:40:27.377-05:00When you feel you are drowning in life, don't worry, your lifeguard walks on water! Kayli's Potassium overdose<span style="background-color: white; color: #333333; font-family: Verdana, sans-serif; line-height: 20px;">Recalling the Potassium overdose, a year ago: </span><br />
<span style="font-family: Verdana, sans-serif;"><span style="background-color: white;"><span style="color: #333333;"><span style="line-height: 20px;">Kayli had some pre operative blood work done for her spine surgeries. We got a call from the hospital, because her Potassium level came back at a critically low, 1.7 (life </span></span><span style="color: #333333;"><span style="line-height: 20px;">sustaining</span></span><span style="color: #333333;"><span style="line-height: 20px;">/safe levels are between 3.5-5). She was on the Ketogenic Diet, and because she wasn't managed well in any of the 3 Ketogenic clinics, she was starving and even suffered de-compensated heart failure in the recent past. When we received the call, we were at the nail salon getting her nails done for the first time (and marking it off her bucket list), for her upcoming Celebration of LIfe (bd</span></span></span><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; line-height: 20px;">ay party). We were already having a challenging day, because Kayli was discriminated against at the first nail salon (they refused to treat her while in her wheelchair). As advised, we took Kayli into the ER for a "K rider" (an IV dose of Potassium) to quickly get her critical Potassium level up. If the Potassium level is too low or too high, it can cause a heart to stop. Potassium is an electrolyte, and this is why a person's heart can stop when they are dehydrated (the Potassium/electrolyte level is too low). While in the ER, Kayli's Ketogenic dietician and neurologist spoke with the ER dr and they advised us to give Kayli otc (over the counter) Potassium supplements and Morton's Lite Salt to keep her levels up. The next day, we gave her the newly ordered supplements, and within minutes Kayli went into convulsions and her heart rate was over 200 bpm (beat per minute). Her eyes rolled, and she started having diarrhea. We called 911, and by the time they arrived, just 3 minutes later, Kayli was incoherent, pooping, and her heart rate was up to 280 bpm and then dropping to 38 bpm! She was sure to go into cardiac arrest! When we arrived at the ER with her, she had been stooling (diarrhea) for half an hour straight, and her heart rate was all over the place. The cardiologist refused to see her in the ER (he thought she was a lost cause), even as the nurse yelled out to him, standing just feet away from Kayli's ER room! The ER dr came in and ordered blood work after I told him that Kayli had taken some newly prescribed Potassium supplements. The Pediatrician on call came in and was shaking his head (also thinking Kayli would not make it through this). Kayli continued to have convulsions, eyes rolled back, entire body shaking, and stooling. Her heart rate well into the 300's now, and dropping frequently to the 20's and 30's. We were told she would go into cardiac arrest </span><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; line-height: 20px;">(they were surprised she wasn't yet), and she would not make it out of cardiac arrest. The blood work came back, and I overheard the ER dr speaking with the Pediatrician..."her Potassium level is 8". I jumped into the conversation, saying "what does that mean"? I knew it was high, but I wanted to know what that meant for treatment. The dr's brought their heads down, looking to the ground and said "that's incompatible with life...she is dying and won't make it through this". I'd heard incompatible with life before, the first time, to describe Kayli (because she has Trisomy 18). This time, the dr's were saying her condition was incompatible with life. I told the dr's I understand it isn't looking good, but that they needed to TRY to help her! She's survived "incompatible with life" before! The nurse who never left Kayli's side, had already put the paddles on her, and explained what they could do to try to help Kayli. The nurses and dr's said it is unlikely to survive levels in the 7 range, and they've never seen someone in the 8's range survive..... Kayli was in V-tach (the top of her heart stopped beating, and the bottom quivered) and was expected to go into cardiac arrest and die before our eyes on the ER table..... </span></span><br />
<span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Verdana, sans-serif; line-height: 20px;">The dr's gave her some meds, but they weren't working. Kayli's levels were still too high, and weren't coming down. The dr's said they can give one more round of meds, but that was all they could do for Kayli. She will die. There is nothing more they would be able to do for her. That's when I pushed past the nurse by Kayli's side, to be with my daughter. With a lump of panic in my throat, an<span class="text_exposed_show" style="display: inline;">d tears streaming down my face, I looked into Kayli's eyes to see if she was ready to go (be with our Lord and Savior). She had a blank stare on her face. Instead of seeing Kayli's soul like I did when she passed away for 32 minutes (at 4 months old), I saw a shell of a body. That was it. Her soul was gone, and she was a confused, lost little girl. That's when it hit me. Kayli did not know what was happening to her! She is not in her body, and her soul was nowhere to be seen. How would she know she was dead, if she wasn't present for her death?!!! Kayli left her body so that she was not suffering, but I just couldn't let her go without HER making the choice to die! For the first time in her 4 years of life, I begged for Kayli to come back to me. I begged her to stay with me, and not leave me! I wanted HER to make the conscious choice, and I wanted her death to be peaceful (like it was the first time)! I didn't want her to suffer, but at the same time I knew Kayli wasn't there to talk to...to decide if she was ready to go or not. I leaned into her, with my heavy heart that seemed to come out through my mouth, I put my trembling lips on her ear, and begged. I begged her to come back to me, even if just to say goodbye. My tears filled her ear, like a lake overflowing after a heavy rain storm. I begged her to come back just long enough to decide for herself. I told her that she doesn't have to stay long, but I NEEDED her to come back to me. And...she did. Her eyes filled with her spirit again! She was scared, but she was there with me. I cried and told her I'm scared too, and it's ok because we're in this together. I told her what happened, and how bad it was. I told her we aren't giving up on her, and no matter how bad she's hurting right now she is not alone. She will never be alone. I asked her to trust in me. I begged her to stay with me, and fight to get better. I told her I know she doesn't understand right now, but that I needed her to trust me and stay with me until she could understand what was happening. I asked Kayli to slow down her heart rate. At that moment, Kayli's heart rate began to drop down a little. Kayli was trusting me! I cheered her on. Her nurse saw her heart rate dropping, and cheered her on too. We cried, and laughed because our emotions were all over the place. I was relieved that Kayli was responding to me, and was trusting me. Kayli's heart rate continued to come down, as my tears of joy and praises of God enveloped her little quivering body. Kayli's status became "unstably stable". That meant there was no telling when the next heart beat would be, but there was a suggestion of a promising trend. Flight for life was called, and the plan was to transfer Kayli in the unstably stable condition, to better equipped hospital. Kayli ended up being transported by a critical care team via ambulance instead. She was not expected to survive the transport, but she did! Kayli continued to get better, in the new PICU (pediatric intensive care unit), but there was something different about her. The next day, her heart rate was stable, and she had survived the impossible!! Or so we thought. As the days went on, we noticed Kayli was inconsolable. She cried ALL the time, and wailed even harder if we talked to her or tried to comfort her, or hold her. Kayli had no idea who were were! Of all the heartache in Kayli's journey, this was the hardest to take. Kayli was alive, but no longer knew of our love for her. She was scared, and lonely. I questioned my decision to beg her to stay with us. My daughter was still here with me, but she didn't know love. What kind of life is it, if you don't know of love? Kayli feared me, and all those around her who love her. Her nurses were in tears, and were heartbroken. We all grieved Kayli's life as we knew it. We just wanted our Kayli back. As the weeks went on, we continued to hold her, even as our tears fell and she cried. Eventually, Kayli tired of crying, and tolerated our love. She wasn't happy, and she didn't know who we were, but she tolerated our unconditional love for her. Then we noticed Kayli would awake from her sleep in what we thought were seizures. But the seizures were strange, because when we talked to Kayli during them, she seemed to keep from going into the seizures. We learned to cope with our "new" Kayli, and support her in every way we could. In time (months), Kayli learned to trust us again, and embraced our love for her. A year later, she now completely trusts us, loves us back, and shows happiness and joy in her life. 6 months or so after the Potassium overdose, Kayli was diagnosed with Hyperekplexia, aka Startle Syndrome. Basically, she has an exaggerated scare response and wakes up as if having night terrors. I imagine it's because her brain was affected from the extreme Potassium levels. Hyperekplexia does not affect her brain like seizures would. In fact, other than feeling startled, it has no affect on her. Once the startle stops, Kayli is completely "herself" again. As time has gone on, Kayli's Hyperekplexia appears to be decreasing. She is in reflex therapy in hopes of calming, and bringing her out of her new condition. Kayli faced death for the 8th time in her short life, and God granted her another miracle of life! We often ask ourselves, "Why Me?". "What did we ever do to deserve this life with Kayli?" Not because we are frustrated, angry, nor burdened with Kayli, but because we are truly Blessed. God is good ALL the time. Through all life's trials and tribulations, He shows us the glory. </span></span><br />
<span style="font-family: Verdana, sans-serif;"><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; line-height: 20px;"><span class="text_exposed_show" style="display: inline;"><br /></span></span>
</span><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; line-height: 20px;"><span class="text_exposed_show" style="display: inline;"><span style="font-family: Verdana, sans-serif;">When you feel you are drowning in life,</span><span style="font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px;"> don't worry, your lifeguard walks on water. </span><i class="_4-k1 img sp_0lgMbL3QtCR sx_351634" style="background-image: url(https://fbstatic-a.akamaihd.net/rsrc.php/v2/yc/r/LJ-cweib97-.png); background-position: -162px -940px; background-size: 314px 994px; display: inline-block; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.63636302947998px; height: 16px; vertical-align: -3px; width: 16px;"></i></span></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-58991728379811142402014-04-20T22:55:00.000-05:002014-04-21T00:03:18.600-05:00Kayli is 5 years old!!!! <span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">(April 21st) Happy 5th Birthday, Sweet Pea!!! You did it!!! Thank you for every breath you give us, every pat on your butt. Thank for every smile you share, and each and every snarl in your hair! No a moment goes by us, that we aren't in love with you, admire you, cherish you, are inspired by you, in awe of you, and adore you...our precious angel on earth. Praise be to God in the Highest, Kayli is 5 years old!!! </span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com1tag:blogger.com,1999:blog-1388997078122972684.post-49406185208100801282014-03-23T19:02:00.000-05:002014-03-23T19:02:28.628-05:00What is Kayli's prognosis? <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBhzgNLZn8ZAALYxDpblRJwQZ51_7YQW0Y7n6ZGwb4bYjML9MiuzLeDnpw1LB-fP0yDprDVpxfUwTeEJzLKWjbmoWIww51MOr5y479WPW8ypcpLxH9Z8Ut8ffmX_k-o9AmA7u5EjRsl8c/s1600/Kayli's+prognosis.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBhzgNLZn8ZAALYxDpblRJwQZ51_7YQW0Y7n6ZGwb4bYjML9MiuzLeDnpw1LB-fP0yDprDVpxfUwTeEJzLKWjbmoWIww51MOr5y479WPW8ypcpLxH9Z8Ut8ffmX_k-o9AmA7u5EjRsl8c/s1600/Kayli's+prognosis.jpg" height="257" width="320" /></a></div>
<br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"><span style="line-height: 18px;">What is Kayli's prognosis?</span><br style="line-height: 18px;" /><br style="line-height: 18px;" /><span style="line-height: 18px;">It is a question asked of me time and time again, because Kayli has a diagnosis of Trisomy 18 (a diagnosis that carries a less than 10% chance of surviving to the age of 1). I'm sure the intent of the question (</span><span class="text_exposed_show" style="display: inline; line-height: 18px;">in most cases) is not malicious, but one that is asked with anticipated dread and a nervous tone. My quick reply is, "Kayli has outlived her prognosis". That usually is not a sufficient answer to quench the desire to know more about Kayli's iminent demise hanging over her head. The push for a more definitive answer leads me to respond with educated statements, with hope to connect the inquiring mind with God and Kayli's intent here on Earth with us:<br /><br />First, I reflect on the definition of Prognosis: A forecast of probable outcome.<br /><br />My extended response to questions of Kayli's prognosis, is that she will live long enough to strengthen your faith, to share hope with you, to educate you, and to connect you with your spiritual being. Kayli's prognosis of life next to yours, is determined on your understanding and acceptance of her abilities as well as her challenges. Kayli's prognosis in life on Earth is not limited to a determined life expectancy because she is unique and nobody has been granted the identical extraordinary life she has been granted. The prognosis of her body is the same as your bodily prognosis, there is no way to determine what tomorrow holds, only the desire to make the best of the days we have been given. She may live through the day, or she may live through 100,000 more days. Her body is a wonderfully and fearfully made creation, a one of a kind miracle by God just as yours is. Kayli's medical prognosis is somewhat dependent on the gifts God has granted the doctors, nurses, and medical professionals crossing her path, and what THEY choose to do with their gifts. One may say her medical prognosis is dependent on the care that is offered and provided to her. I guess in short, my answer to your question of Kayli's prognosis , or "forecast of probable outcome" is that she will have a qualitative life of profound inspiration to those who have the honor of connecting with her. Which brings me back to my short answer....Kayli has outlived her prognosis. She has exceedingly reached far and wide to connect with others, inspired many to share her faith and love for God and His son, and she has outlived the understated forecast of probable outcome set by many medical professionals.... I pray that my prognosis is as bright and as inspiring as hers is! <i class="_4-k1 img sp_ertcmg sx_ef59ec" style="background-image: url(https://fbstatic-a.akamaihd.net/rsrc.php/v2/y_/r/g8S--lVHybx.png); background-position: -288px -74px; background-repeat: no-repeat no-repeat; background-size: 314px 132px; display: inline-block; height: 16px; vertical-align: -3px; width: 16px;"></i></span></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com4tag:blogger.com,1999:blog-1388997078122972684.post-3450613845137348412014-03-12T19:47:00.000-05:002014-03-12T20:38:34.163-05:00A medical room, fit for a princess<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">There are many things to consider when organizing your medical supplies in your household. Space and financial resources can be limited, even while the need to have access all supplies and equipment are prevalent. We have our house organized by necessities, body system supplies, accessibility. </span><br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-PXK3jBJ7_WsRBKzqskX00JhlaRGDmp6cl313kWTJuz54RTbTn6RlY-3MuLT-rJJzGcXIdaYsRn_YdOroUO-N2ZuHwD-rg31yLoRf5FRMgwjUawasCiLmhdzczd2__slIR4Xg4dNKbpU/s1600/DSCN8768.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-PXK3jBJ7_WsRBKzqskX00JhlaRGDmp6cl313kWTJuz54RTbTn6RlY-3MuLT-rJJzGcXIdaYsRn_YdOroUO-N2ZuHwD-rg31yLoRf5FRMgwjUawasCiLmhdzczd2__slIR4Xg4dNKbpU/s1600/DSCN8768.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">The shelving unit that we built, sits on Kayli's dresser. </span></td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">The most used supplies are stocked in our daughter's room. We built a shelving unit, bought shelving, and used things around the house to accommodate our organizing needs. </span></span><br />
<span style="background-color: #d9ead3; color: #674ea7;"><span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Inside the shelving unit, are the following organized bins, ready for easy access to medical supplies used daily....</span></span><br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsRuwahR_0IjdMX3sNR_9gJh4D5jTqGquNm_lzNtTpi3ecr-QOjrTtemipKkU60c92BBH3RnKymB9zJea-qjjR6nVbJJNBNLTZk_FSnXmRRNw0h2e2OkEyNYamYlLZJaLhjY9vqY9Ey6E/s1600/DSCN8739.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsRuwahR_0IjdMX3sNR_9gJh4D5jTqGquNm_lzNtTpi3ecr-QOjrTtemipKkU60c92BBH3RnKymB9zJea-qjjR6nVbJJNBNLTZk_FSnXmRRNw0h2e2OkEyNYamYlLZJaLhjY9vqY9Ey6E/s1600/DSCN8739.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Inside a pull a smaller pull out drawer, we hold her tape, thermometers, scissors, lip gloss, eye lube, tape measures, and creams</span></td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinkTnQhqAf6Sf95rLV82yF01CsdB-EySHMhoSmwBLAwCHwHiD28pIRDR0B4XWkV_2TzJX5XVAQmEHJejxMf9i6EeE8nuYrl0-s8DZl9yVOhoKxQ2PaaUmZfBVI7_byk1B64x9u6TX1Gms/s1600/DSCN8740.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinkTnQhqAf6Sf95rLV82yF01CsdB-EySHMhoSmwBLAwCHwHiD28pIRDR0B4XWkV_2TzJX5XVAQmEHJejxMf9i6EeE8nuYrl0-s8DZl9yVOhoKxQ2PaaUmZfBVI7_byk1B64x9u6TX1Gms/s1600/DSCN8740.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Another small pull out drawer</span></td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcZEPTes-btSt_1BwUyN650LSsqfI-toNOTfME2ho5yzFwh3G6ZzO8niAaBDEAUcyOrEdGD0dGwrdd2I1qRVXyGlbxBOqabNpgydnkJhtJtj4Ej1LT0eJoNuIdZGmaIU0lFzpUnKbHGuA/s1600/DSCN8741.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcZEPTes-btSt_1BwUyN650LSsqfI-toNOTfME2ho5yzFwh3G6ZzO8niAaBDEAUcyOrEdGD0dGwrdd2I1qRVXyGlbxBOqabNpgydnkJhtJtj4Ej1LT0eJoNuIdZGmaIU0lFzpUnKbHGuA/s1600/DSCN8741.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">In this general supply drawer, we hold the trach ties, alcohol wipes, 3 different size/types of gauze, and surgi lube. They are in a tub from another organizing system once in our basement. </span></td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs7dwuun1WqAc7EJBQnhDDpJEwOJHXTYXLRWSZxpInJa3To5s5ogo9nJ2_-LcmKELjPK_RD0R9LAiaWM-gG0Tep2BWbVnv3qUoyKR8U8r8MPILa3wgkaHStOOkcHUrBc4Ngoe_pR_RR90/s1600/DSCN8742.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs7dwuun1WqAc7EJBQnhDDpJEwOJHXTYXLRWSZxpInJa3To5s5ogo9nJ2_-LcmKELjPK_RD0R9LAiaWM-gG0Tep2BWbVnv3qUoyKR8U8r8MPILa3wgkaHStOOkcHUrBc4Ngoe_pR_RR90/s1600/DSCN8742.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">In this pull out bin, we store the posey wraps, pulse ox sensors, and Gtube button hole covers</span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfUjN_u127WOgcEu7ikKyk3buIpsTIgRNyDrXzjRZj_dDermlSaJzacW9A1EsUKeMLAvrlhPV_BadkWdQ_OdDFmcVtE5LJJd4EY17u72lW5O6J6uDIi5Ht2JpC5ctFJk9u28eUGsy9-bs/s1600/DSCN8753.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfUjN_u127WOgcEu7ikKyk3buIpsTIgRNyDrXzjRZj_dDermlSaJzacW9A1EsUKeMLAvrlhPV_BadkWdQ_OdDFmcVtE5LJJd4EY17u72lW5O6J6uDIi5Ht2JpC5ctFJk9u28eUGsy9-bs/s1600/DSCN8753.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">In this GI bin, we store 2 Mic Key buttons, and a month supply of daily extensions</span></td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtXw6cl6-WUqAcKM4PuGZ6lBFNNeUx9la6pQCfRUtC6GfHfIGxkmcUEHD9-EVAvN3XkV0wdozVR-qg60SPmNdnZmeZotL3bQlOKEI3nglbOrHZ9mgn4OCsCy5N8GSk8R4Ndid1xUJcJ0Q/s1600/DSCN8758.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtXw6cl6-WUqAcKM4PuGZ6lBFNNeUx9la6pQCfRUtC6GfHfIGxkmcUEHD9-EVAvN3XkV0wdozVR-qg60SPmNdnZmeZotL3bQlOKEI3nglbOrHZ9mgn4OCsCy5N8GSk8R4Ndid1xUJcJ0Q/s1600/DSCN8758.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Then nurses' blank paperwork is stored in the bin, and their notes, etc are filed in the binder</span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzPPB26U-PxYu517Ul-0QzLgQnbgVUKyAZyqgDyJh1k5Odfdbo13PzzC8q7L_sPTDrxlWdDYdqQ-kd9x0InSlkDLG-a0lJFYJrIOx6Wip7C67IfFKj2injpfYC3zyaC8aDpclIBKEqCQM/s1600/DSCN8752.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzPPB26U-PxYu517Ul-0QzLgQnbgVUKyAZyqgDyJh1k5Odfdbo13PzzC8q7L_sPTDrxlWdDYdqQ-kd9x0InSlkDLG-a0lJFYJrIOx6Wip7C67IfFKj2injpfYC3zyaC8aDpclIBKEqCQM/s1600/DSCN8752.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">The spare parts for the respiratory equipment is stored in here</span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBZFB_-m7IRUtGmWDuaAbxVIncXQK0qG1ddozFX09fIDwc9Z-E3Aaafv2F51ngvI88s72TWmz2OVM8Fwfw96FgOhDZjUADiv8aMC6cCFaJvQ-zfq6pp1ifgVBheqFKBD-gt0ata_f8tpo/s1600/DSCN8751.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBZFB_-m7IRUtGmWDuaAbxVIncXQK0qG1ddozFX09fIDwc9Z-E3Aaafv2F51ngvI88s72TWmz2OVM8Fwfw96FgOhDZjUADiv8aMC6cCFaJvQ-zfq6pp1ifgVBheqFKBD-gt0ata_f8tpo/s1600/DSCN8751.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">The respiratory supplies, and the book of CD's for Kayli's music player</span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik8lEfPj8gHJmUSQZ6m17WnMwYxkw8qJbHh4D2Nz7nZsXxqjRqOcQIdHROhurDm3HwpUXB-Whgk9WZ-Am1Fl-lOPauzYW1jaOHmV7QsuNeocvIPi7HNnWXltbYj1KY3WL3_ejAD1UNGQc/s1600/DSCN8750.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik8lEfPj8gHJmUSQZ6m17WnMwYxkw8qJbHh4D2Nz7nZsXxqjRqOcQIdHROhurDm3HwpUXB-Whgk9WZ-Am1Fl-lOPauzYW1jaOHmV7QsuNeocvIPi7HNnWXltbYj1KY3WL3_ejAD1UNGQc/s1600/DSCN8750.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Even a space for books!</span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGewjWfej_f8jkfxP2d92Qpnbi188gzf65nsvVvQRfYjmJCTSz-34gN1wwq6Z1Kd7dkHmPZWG4sjP9Q_bJh0Lk_26F7-5n285C6mBYTVq7z1dMqunFaKcRr9R0FQsrs9K29tZAhQov7kE/s1600/DSCN8749.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGewjWfej_f8jkfxP2d92Qpnbi188gzf65nsvVvQRfYjmJCTSz-34gN1wwq6Z1Kd7dkHmPZWG4sjP9Q_bJh0Lk_26F7-5n285C6mBYTVq7z1dMqunFaKcRr9R0FQsrs9K29tZAhQov7kE/s1600/DSCN8749.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Storage bags for hearing aids, FM system, and cleaning supplies</span></td></tr>
</tbody></table>
<div class="separator" style="clear: both; text-align: center;">
</div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7;"><br /></span></td></tr>
<tr></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtf3DX6_bmzaS8BLieJLnT_CS0oeVjrevOGq-EJOhr8Q8L_uGhs993L4owqjfrEyFHmeikwq2_EWEKylWXkmUXGpGiBLSPzKt3KgOOYdgW8uDhtSu9CXiErES13nd0BJLxDNjFLuQLAsY/s1600/DSCN9127.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtf3DX6_bmzaS8BLieJLnT_CS0oeVjrevOGq-EJOhr8Q8L_uGhs993L4owqjfrEyFHmeikwq2_EWEKylWXkmUXGpGiBLSPzKt3KgOOYdgW8uDhtSu9CXiErES13nd0BJLxDNjFLuQLAsY/s1600/DSCN9127.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">The nurses station in Kayli's room </span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjR811luE0lTFM6LeAgENat6uEBJmAXgw2Zu8gIf3o6ZOcUBZ_Mqv0AfZyztTlNRK4dF12eYZXpP2Do2jnd27o3vfZGu2pzZfWQ7AafRkk59Px90Av79w1F0SS9MpK7_JS58SaDzGV46oA/s1600/DSCN7725.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjR811luE0lTFM6LeAgENat6uEBJmAXgw2Zu8gIf3o6ZOcUBZ_Mqv0AfZyztTlNRK4dF12eYZXpP2Do2jnd27o3vfZGu2pzZfWQ7AafRkk59Px90Av79w1F0SS9MpK7_JS58SaDzGV46oA/s1600/DSCN7725.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">The flower box holds lotions, dry erase markers, and the flowers in</span><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">the vase have pens attached to them, so the nurses don't accidentally</span><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">walk off with them. </span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi75DDRAxyMueqefLIjZKPXX2CxsZodR6uhk9rDrsNwRR5MJPx95bPNyGZZy6wdSdxFnnK94k0Es0CHm0CSR1KC9KVYHmN2_16jfel0SQn_PjlabuDO0LLJr7Wzq2oyVsmhaDzVWwRpRSw/s1600/DSCN9128.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi75DDRAxyMueqefLIjZKPXX2CxsZodR6uhk9rDrsNwRR5MJPx95bPNyGZZy6wdSdxFnnK94k0Es0CHm0CSR1KC9KVYHmN2_16jfel0SQn_PjlabuDO0LLJr7Wzq2oyVsmhaDzVWwRpRSw/s1600/DSCN9128.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">We use a dry erase board for quick information such as address (in case of emergency), family cell numbers, last trach</span><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">change, last gtube change, notice of new medications, etc. </span></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td></td></tr>
<tr><td class="tr-caption"><span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
</td></tr>
</tbody></table>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; text-align: center;"><tbody>
<tr><td style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: #d9ead3; color: #674ea7;">.</span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Kayli's Hospital Bed: Made by Beds by George, it is the Dreams Series, size twin. It is made of 100% Mahogany with a dark stain. The bed has an electric lift, head raise, and foot raise. We opted for windows all around, and a hole in each corner of the bed, for easy Fisher Paykel tubing to fit through when the sides are up. <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinhSCNYE4ve3FSvw_o-g43gE_sEobJg6ucbkoDDUhodD7JMK-JmB8v33kHyD_bJuIxi0YTTok2c4Zy0aT8VwFHo8gPHDbUWwGVrUG4_nLqpxhv6N0-FZ2WvoBZ_r4DxYS2yubdjxrTxz4/s1600/kayli's+bed1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinhSCNYE4ve3FSvw_o-g43gE_sEobJg6ucbkoDDUhodD7JMK-JmB8v33kHyD_bJuIxi0YTTok2c4Zy0aT8VwFHo8gPHDbUWwGVrUG4_nLqpxhv6N0-FZ2WvoBZ_r4DxYS2yubdjxrTxz4/s1600/kayli's+bed1.jpg" height="240" width="320" /></a></span><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"> The headboard is engraved with "Jesus Loves Me". The bed is on lockable wheels for easy movement. We ordered the attached IV pole. The mattress was included, and is water resistant and comfortable for her spine. We added an egg crate mattress as well. </span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4nBNX2XaJDbwOJ5LHbOTSytDqzFCwqKrra6RE28d-dfwuIKqxSh-rl448ly8YdbrewoZsBnwt4TPvJURyXHR11M-R0xjIp1T8mqYGvSfsfStUCLrgFBhHhek1vhzD07fwJMsCGNJR0hA/s1600/Kayli's+bed2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4nBNX2XaJDbwOJ5LHbOTSytDqzFCwqKrra6RE28d-dfwuIKqxSh-rl448ly8YdbrewoZsBnwt4TPvJURyXHR11M-R0xjIp1T8mqYGvSfsfStUCLrgFBhHhek1vhzD07fwJMsCGNJR0hA/s1600/Kayli's+bed2.jpg" height="240" width="320" /></span></a></div>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">This is Kayli's bed with an added canopy, to add to her princess room! We hang baby links with toys to her canopy frame. The canopy was a great $10 garage sale find, that we suspend from the ceiling, so it doesn't affect the hospital bed warranty. The drapes were included, and we are using them as the front post material. The back posts are made with the material from the flat bed sheet! We also have rope light suspended with the inside frame of the canopy, to give a wonderful visual affect, that acts as a night light and visual stimulation as well!</span><br />
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiS1Zf-V1eF28qgt9eT2WNqOoN36q7gDVX5yCKMpndsClUR3HQxVWl8XsONpZd1-ZglzJqsl42KqXHPscaDQLsE46-QkbH6veKd43t4Uq1yjZ4sPMLkBdPqhvx4UUMkDTp25w-Z1Tpl9ts/s1600/DSCN7726.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiS1Zf-V1eF28qgt9eT2WNqOoN36q7gDVX5yCKMpndsClUR3HQxVWl8XsONpZd1-ZglzJqsl42KqXHPscaDQLsE46-QkbH6veKd43t4Uq1yjZ4sPMLkBdPqhvx4UUMkDTp25w-Z1Tpl9ts/s1600/DSCN7726.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Glove box holder and a basket to hold diapers and wipes. Kayli's super cape is in the picture also, hanging from her bed post. </span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
</td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyA8QAFaSHN0AhEtUHW_Py9voM4QcmQvN9rig9cAj9im9YxVrncWx0V1pSf070mhCKsuy_3l_r_Zrgu0zHxefE02sVR1nuHP54gCF_0zBJtgJnUBCWKkyG41F8Z_w43UFYI6S-xt5mWUA/s1600/DSCN9119.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyA8QAFaSHN0AhEtUHW_Py9voM4QcmQvN9rig9cAj9im9YxVrncWx0V1pSf070mhCKsuy_3l_r_Zrgu0zHxefE02sVR1nuHP54gCF_0zBJtgJnUBCWKkyG41F8Z_w43UFYI6S-xt5mWUA/s1600/DSCN9119.JPG" height="320" width="240" /></span></a></div>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Immediately next to Kayli's bed, is a towel rack that supports the Kangaroo Joey feeding pump, and Fisher Paykel system. It is suspended high enough to clear the raising bed side, and the sterile water bag and feeding bad that is suspended from the attached bed IV pole.</span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjBIZyoERunRzYdXDezvV8RIIjQSHtD4167Vf7znh8GpoBUsFJVfid35rYmgkQ5_bwsOM-YOIyoEVu4wCnUGmiV4omZB10fmtD32dnJtQ5ZNLdzwfC0OBu62fB2SwC3jghY-KU-he1-3I/s1600/DSCN9118.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjBIZyoERunRzYdXDezvV8RIIjQSHtD4167Vf7znh8GpoBUsFJVfid35rYmgkQ5_bwsOM-YOIyoEVu4wCnUGmiV4omZB10fmtD32dnJtQ5ZNLdzwfC0OBu62fB2SwC3jghY-KU-he1-3I/s1600/DSCN9118.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">The IV pole is hidden behind the canopy post</span></td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1K6vvt5Tn-uC4X2mNbWaEh67dm-D-5dMjDc_XvMe7SJSsSUkYWjCdaRj-padIG3QVZYdtycl38FxxXCQmRDFHDks1GORJNsgPhIGD5WyCg-k_w3sZBCdmH9BKJ-Ticc6tKm3x5lb8yfs/s1600/DSCN9122.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1K6vvt5Tn-uC4X2mNbWaEh67dm-D-5dMjDc_XvMe7SJSsSUkYWjCdaRj-padIG3QVZYdtycl38FxxXCQmRDFHDks1GORJNsgPhIGD5WyCg-k_w3sZBCdmH9BKJ-Ticc6tKm3x5lb8yfs/s1600/DSCN9122.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><div style="text-align: start;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Next to Kayli's bed, we have an IKEA Lack Wall Shelf unit. It holds her Suction machine, catheters, pulse ox, and princess decorations. The portable suction machine fits neatly underneath!</span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
</td></tr>
</tbody></table>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgh_OXAFyCBLv7pSzSpfxD1CAuFKlF2MmoSpg4CFsGW7g1iCQsx8Q56x5pm0S_-kPB3vHBUmBprNnjcJK56G-GebswRFdP0IcbAgCNK5LutFyApCAQcu61-4adDFTkDuTnPAcgHpZ6RuLw/s1600/DSCN9123.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgh_OXAFyCBLv7pSzSpfxD1CAuFKlF2MmoSpg4CFsGW7g1iCQsx8Q56x5pm0S_-kPB3vHBUmBprNnjcJK56G-GebswRFdP0IcbAgCNK5LutFyApCAQcu61-4adDFTkDuTnPAcgHpZ6RuLw/s1600/DSCN9123.JPG" height="320" width="240" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">On the shelf, we have a command hook to hold the suction tubing when not in use. </span></td></tr>
</tbody></table>
<div class="separator" style="clear: both; text-align: center;">
</div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ4_oGIh0MFW7gxVEqm439-RkY5iL7fXgPWLGGgib766rxTbj6uF53HGCImqKAdrp-1znxcYMP3xsOtx_94LCxmLtM49G1q0oLJAuEciaLPHNDgH2f5f1aTxhutPm91naxyOFxm1BBnKQ/s1600/DSCN9124.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ4_oGIh0MFW7gxVEqm439-RkY5iL7fXgPWLGGgib766rxTbj6uF53HGCImqKAdrp-1znxcYMP3xsOtx_94LCxmLtM49G1q0oLJAuEciaLPHNDgH2f5f1aTxhutPm91naxyOFxm1BBnKQ/s1600/DSCN9124.JPG" height="240" width="320" /></span></a></td></tr>
<tr><td class="tr-caption"><span style="text-align: start;"><span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Since we sleep on a different floor level than Kayli does, we have a wireless doorbell in her room. The wireless doorbell is easy to install, with a command strip. It is installed on the ledge of the IKEA shelving unit, so it doesn't take up valuable space. The nurses can ring the doorbell, and it will chime in our room.</span></span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7; font-size: small; text-align: start;"><br /></span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLZILAm8Rsw5sWuG6JZRjN0P7TRYBSo3xGAVqUB5a6kR7yRuBluIhcsd_sYVUX7g51cQ0Kk99QLZ0IAs4xEVmbm5V-NxIxLD4q-fgb3-QL2rKXbNAlMy79_QDJB0Uo4XZwNRmAtFOfMOQ/s1600/DSCN7730.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLZILAm8Rsw5sWuG6JZRjN0P7TRYBSo3xGAVqUB5a6kR7yRuBluIhcsd_sYVUX7g51cQ0Kk99QLZ0IAs4xEVmbm5V-NxIxLD4q-fgb3-QL2rKXbNAlMy79_QDJB0Uo4XZwNRmAtFOfMOQ/s1600/DSCN7730.JPG" height="240" width="320" /></span></a></div>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">We have a flower box under the other window in Kayli's room, to hold her emergency medications, eyeglasses, and hearing aid.</span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtxToi0-PpCxzAXKh8CEi1dipc57P_zVXuX2RzIrTus0qXikQZnddgP6ifE3-hidGVcDuvaMK3Uy_2vidTTo1ZivRb7c-QjU4KRQU-7GzfJbVhZJZFrKPa5sHZ5XyWiDZ1AXpqL5IkKQQ/s1600/DSCN7729.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtxToi0-PpCxzAXKh8CEi1dipc57P_zVXuX2RzIrTus0qXikQZnddgP6ifE3-hidGVcDuvaMK3Uy_2vidTTo1ZivRb7c-QjU4KRQU-7GzfJbVhZJZFrKPa5sHZ5XyWiDZ1AXpqL5IkKQQ/s1600/DSCN7729.JPG" height="320" width="240" /></span></a></div>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">And a bag holder to collect shopping bags, for the bathroom garbage can.</span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEje58zslYXfT9v-0d9yH6L96XnEcA8f3wyR_XA7Sgds61UqYypkC0qi8-GNzsfzCTl_5IIgfnhUyXm8BKAzuV_p3MONO_D3lTM2SpWlX9vVNJlFJNX5-x350JGeXkQmFzURbKIxETGFLuY/s1600/a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEje58zslYXfT9v-0d9yH6L96XnEcA8f3wyR_XA7Sgds61UqYypkC0qi8-GNzsfzCTl_5IIgfnhUyXm8BKAzuV_p3MONO_D3lTM2SpWlX9vVNJlFJNX5-x350JGeXkQmFzURbKIxETGFLuY/s1600/a.jpg" height="240" width="320" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Kayli has a jewelry station in her room. The backdrop of the jewelry station is fabric that was placed on the wall with spray starch. It is an easy on/off and doesn't damage the wall! </span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjftF5NvBAq3EWvzkYQF4iLLiElG_Wd8__E73EAUOKNT4MlNuUS0-ootM5dr2PEO8Co7KpAP8DHqDnWhdEvr_kKBhW-cbx7DXJ4059cVRW9tPksPTijBGOAnoyM3xnqczfo08_sewAAplw/s1600/aa.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjftF5NvBAq3EWvzkYQF4iLLiElG_Wd8__E73EAUOKNT4MlNuUS0-ootM5dr2PEO8Co7KpAP8DHqDnWhdEvr_kKBhW-cbx7DXJ4059cVRW9tPksPTijBGOAnoyM3xnqczfo08_sewAAplw/s1600/aa.jpg" height="320" width="240" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><span style="font-family: Verdana, sans-serif; font-size: small;">Kayli also has shelves in her room, for pictures of the places she's been and all her awards. In her closet, she has </span><span style="font-family: Verdana, sans-serif; font-size: small;">hooks below her clothes, for her coats (a space saver). </span></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="color: #674ea7; font-family: Verdana, sans-serif; font-size: small;"><b style="background-color: #d9ead3;">Bathroom</b></span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;"><br /></span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1LBZC6VH90ZIDwKcuzKtd7KchIkdDVpm8OOUl8btOH1oD0L4wDuPT0Y2a6jHXa1EiUKn0EjClrVO8MqYoA9b2kQ2hJnzblvmIdzf5iunsoT-YSqVo3GSmwZE2bSc3KSiP0VHcOfJ6K8A/s1600/DSCN7731.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1LBZC6VH90ZIDwKcuzKtd7KchIkdDVpm8OOUl8btOH1oD0L4wDuPT0Y2a6jHXa1EiUKn0EjClrVO8MqYoA9b2kQ2hJnzblvmIdzf5iunsoT-YSqVo3GSmwZE2bSc3KSiP0VHcOfJ6K8A/s1600/DSCN7731.JPG" height="320" width="240" /></span></a><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Kayli's bathroom is small, so we have to be organized.</span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWpR55f2rNBg9H4hMEA9EJQJyWWx98EReqeFCmybr85YnrXARaR_gHhoIAeOlZyZg0AR-BCdOQmHIhOAOrIQyS78ELdlqbKs4chCHcV3aCFx6C6jA31tV85tZhMoH3aKP164sfMgixP3c/s1600/DSCN7733.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWpR55f2rNBg9H4hMEA9EJQJyWWx98EReqeFCmybr85YnrXARaR_gHhoIAeOlZyZg0AR-BCdOQmHIhOAOrIQyS78ELdlqbKs4chCHcV3aCFx6C6jA31tV85tZhMoH3aKP164sfMgixP3c/s1600/DSCN7733.JPG" height="240" width="320" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_8fp9f5yKwhiApkeUmAfxFKQE2bs3ABDrPBH_KHG4KICxUiaPi0edbFudn1s1rAIxrYx6EhoOWcDjCLdwIFi4RSiLS58cz1DEeaKteXOlpnwgTdvTSyYJfAh0UWnBegMWN462rwxIoT8/s1600/DSCN7732.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_8fp9f5yKwhiApkeUmAfxFKQE2bs3ABDrPBH_KHG4KICxUiaPi0edbFudn1s1rAIxrYx6EhoOWcDjCLdwIFi4RSiLS58cz1DEeaKteXOlpnwgTdvTSyYJfAh0UWnBegMWN462rwxIoT8/s1600/DSCN7732.JPG" height="240" width="320" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Her soft hairbands are on a jewelry bracelet holder, and the harder ones are in a vase</span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5tjXGuThBnemxI-z_MO-Qb0Sjqxgs0JR3iQBF3eeTwq4XI42TFjonXUECeK7KgXV1NtSyan2qRvGdbxWZs6_U95N3nYB9NAoKjtbwH5I8yvrdz4D-7mX4MxftqoIjw8shN6UT_-FpMuM/s1600/DSCN7735.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5tjXGuThBnemxI-z_MO-Qb0Sjqxgs0JR3iQBF3eeTwq4XI42TFjonXUECeK7KgXV1NtSyan2qRvGdbxWZs6_U95N3nYB9NAoKjtbwH5I8yvrdz4D-7mX4MxftqoIjw8shN6UT_-FpMuM/s1600/DSCN7735.JPG" height="240" width="320" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Her hairbows are on a tutu that hangs on the side of her shelving unit, next to the bathroom. (front side of tutu)</span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi81PiaHGoPowMwyMZMixhxqIkG15eKsMGGGw0uGLZD_RK35QrnkyhBxuYUZ-BS-bKcF5GMfTtYkiqIz5w2D9IieuZNXEecdhObmxjlMtp3I9bNhi6FVllje5XiHDOIteC4zIwbk1MyMK0/s1600/DSCN7736.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi81PiaHGoPowMwyMZMixhxqIkG15eKsMGGGw0uGLZD_RK35QrnkyhBxuYUZ-BS-bKcF5GMfTtYkiqIz5w2D9IieuZNXEecdhObmxjlMtp3I9bNhi6FVllje5XiHDOIteC4zIwbk1MyMK0/s1600/DSCN7736.JPG" height="240" width="320" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">(back side of tutu)</span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><span style="font-family: Verdana, sans-serif; font-size: small;"><br /></span>
<span style="font-family: Verdana, sans-serif; font-size: small;">PICTURE TO COME</span></span><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Kayli has a home made nail polish holder (made with a cultery holder, wire hangers, and some spray paint).</span><br />
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">PICTURE TO COME</span><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">She has a towel holder for a hand towel, paper towels, and drying washclothes.</span><br />
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZdtBmoIgUpnw-gvARAXNJkJmH3Ylj25m7eq9Pe__9glUgHfjEN7tCJKCoS9TpoPNKBHHCAnWpommx1MNVlkaxzjibnR8-i2VcXbGxyI1pW9FgEgIK8sMJG-p-5Py1-1wl0vCTCL6j5LU/s1600/DSCN9125.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZdtBmoIgUpnw-gvARAXNJkJmH3Ylj25m7eq9Pe__9glUgHfjEN7tCJKCoS9TpoPNKBHHCAnWpommx1MNVlkaxzjibnR8-i2VcXbGxyI1pW9FgEgIK8sMJG-p-5Py1-1wl0vCTCL6j5LU/s1600/DSCN9125.JPG" height="320" width="240" /></span></a><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">We use a pull out drawer under her window in the bathroom, for her shampoos, etc.</span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<h3>
<span style="background-color: #d9ead3; color: #674ea7;">
Kayli's therapy room</span></h3>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRrDlLKRTQ1f6OO2D9JAkP6_bzkqZUM1gUhtVbD0H6uo0HtV1yJF8MXD2N5-vB-oZ3N_z2EVfC0iXDwNBTMSUJUldfuPlf8bx4o30s55-IU8Hqkkiqd-XDOQaAbDOYq4n_VasKR1a9fWo/s1600/DSCN9134.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRrDlLKRTQ1f6OO2D9JAkP6_bzkqZUM1gUhtVbD0H6uo0HtV1yJF8MXD2N5-vB-oZ3N_z2EVfC0iXDwNBTMSUJUldfuPlf8bx4o30s55-IU8Hqkkiqd-XDOQaAbDOYq4n_VasKR1a9fWo/s1600/DSCN9134.JPG" height="320" width="240" /></span></a><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Across the hall from Kayli's bedroom, is her therapy room. It was a bedroom, that we turned into a supply and therapy room. While Kayli's bedroom has stock of frequently uses medical supplies, we had to find a place to store her extra supplies, and less frequently used medical supplies. We put shelving units in the room's double wide closet. </span><br />
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVYzH8RPZ5ZOmUA2wxyqIQQdL-zjNONLGzfMb2SnxwCg3hcO-rHfJXzQBFIWEB2lhVuNEIfJllhyMdsku1agUgyztVSU59GRyy0NyRQimqoAxHDWillvCb_oVZ3nJYlbcrprtwWIc9PWI/s1600/DSCN7742.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVYzH8RPZ5ZOmUA2wxyqIQQdL-zjNONLGzfMb2SnxwCg3hcO-rHfJXzQBFIWEB2lhVuNEIfJllhyMdsku1agUgyztVSU59GRyy0NyRQimqoAxHDWillvCb_oVZ3nJYlbcrprtwWIc9PWI/s1600/DSCN7742.JPG" height="320" width="240" /></span></a><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">We have an armoire in the therapy room, to store her drool pads, blankets, and mattress pads. We decorated the front of the armoire with pictures by taking cork board and covering it with fabric. Kayli can see her support team, and her nurses can put faces to all the specialists, nurses, and dr's on Kayli's team!</span><br />
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGpLtpBvfcuf53h7ZLHzFUVdtgC2dMlamQriO5AQYhb1iAE0yY4oBL4zaW3WgJN7ShIGBU4NFmDMR4KyRK-sM2CgmbuhVlV-9Id_mZzfuyfhF8mUoyiDf0Iz5KhYYj4tcvPWiOuzTFg9s/s1600/DSCN9129.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGpLtpBvfcuf53h7ZLHzFUVdtgC2dMlamQriO5AQYhb1iAE0yY4oBL4zaW3WgJN7ShIGBU4NFmDMR4KyRK-sM2CgmbuhVlV-9Id_mZzfuyfhF8mUoyiDf0Iz5KhYYj4tcvPWiOuzTFg9s/s1600/DSCN9129.JPG" height="320" width="240" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Kayli's exercise ball is set aside, resting on a re-purposed basketball hoop. We hang her baby link toys on the basketball hoop, for easy access and sight. The peanut ball (top left) will have a smaller basketball hoop of it's own. </span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhS0RD4H4AYrpdDA56tSumfngKdht8UD6gMAlNccS1CFW_TMKYqihhobA6RgP31KdelvfEHjBB15dASXstloYJg3vYaQUUsrTH6lvOFpSFe7Iwo_W8GsQ8JKMIT0DWQ1K7nLT0iKIEsfFE/s1600/DSCN9130.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhS0RD4H4AYrpdDA56tSumfngKdht8UD6gMAlNccS1CFW_TMKYqihhobA6RgP31KdelvfEHjBB15dASXstloYJg3vYaQUUsrTH6lvOFpSFe7Iwo_W8GsQ8JKMIT0DWQ1K7nLT0iKIEsfFE/s1600/DSCN9130.JPG" height="240" width="320" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">We built a shelving unit around her switches, sensory toys, and light box dimensions. Above this, we mounted a large screen tv, and a shelf that holds a DVD player, and a VHS player.</span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtu8bAVvkmllMEtlV-EpM4Z4xQlNM76lkE2rhasRJc-4jSQxKaooB0YorG172PRn78LmKQWeWQIxIjMmbCmol2TPYYilTFpDo58mfEJOr5OwuFk5op08V9bu4Tz-wmnjNWyNM357piuls/s1600/DSCN9132.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtu8bAVvkmllMEtlV-EpM4Z4xQlNM76lkE2rhasRJc-4jSQxKaooB0YorG172PRn78LmKQWeWQIxIjMmbCmol2TPYYilTFpDo58mfEJOr5OwuFk5op08V9bu4Tz-wmnjNWyNM357piuls/s1600/DSCN9132.JPG" height="320" width="240" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">And found a (free) tall shelving unit to store Kayli's musical/auditory assitive technology</span></div>
<div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="color: #674ea7; font-family: Verdana, sans-serif; font-size: small;"><b style="background-color: #d9ead3;">Kitchen</b></span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<br />
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7AvYmHxPQxHORglI07tfUWGh1ElA3W1ahLycMgeoFDYqv1N18vtUnFder_m3k1RfqnhcVa73eNxLDrA81h4uaO165Amd3PwTFO03C9ZKiD9BMmZVSXZHuYicrv0YFrWXoRlHOR1crKss/s1600/DSCN9382.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7AvYmHxPQxHORglI07tfUWGh1ElA3W1ahLycMgeoFDYqv1N18vtUnFder_m3k1RfqnhcVa73eNxLDrA81h4uaO165Amd3PwTFO03C9ZKiD9BMmZVSXZHuYicrv0YFrWXoRlHOR1crKss/s1600/DSCN9382.JPG" height="320" width="240" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">We keep syringes, medicine cups, formula containers, etc in these bins to dry and store. This is in the kitchen at "Kayli's counter". </span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6IuXxeswuiykFIJtQaMKQmdHQS0O9cEC71bIsfyb3b1xA3Xqj0EKj9sa7dkg7Xdn_V0BIW4ykxUYhoxaCYLcsjbVM-5Sg4yyFWSjPEqQ295FtqNG6WegollFMnCudlo2ONYPCjjiYVMs/s1600/DSCN9381.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: #d9ead3; color: #674ea7;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6IuXxeswuiykFIJtQaMKQmdHQS0O9cEC71bIsfyb3b1xA3Xqj0EKj9sa7dkg7Xdn_V0BIW4ykxUYhoxaCYLcsjbVM-5Sg4yyFWSjPEqQ295FtqNG6WegollFMnCudlo2ONYPCjjiYVMs/s1600/DSCN9381.JPG" height="240" width="320" /></span></a></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">Above "Kayli's counter" in the kitchen, is her cabinet. We store her medications, formula, etc up here, with the daily medications in the pull out white bin (with handle). We made cheat sheets of medications/times on index cards, and put cork board on the inside door to post them for quick access. </span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif; font-size: small;">We also have shelving units in the garage, where we store the bigger boxes of supplies. We take from the larger garage stock, to fill the indoor storage bins for every day, accessible use. </span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<div class="separator" style="clear: both;">
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span></div>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
<span style="background-color: #d9ead3; color: #674ea7;"><br /></span>
</td></tr>
</tbody></table>
<div>
<br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
</div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-27412146229805840742014-03-08T10:52:00.001-06:002014-03-08T10:52:54.539-06:00Trisomy Awareness, looking beyond a diagnosis<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"><span style="line-height: 18px;">Trisomy can be a devastating diagnosis, especially when your loved one is first diagnosed. We, as Kayli's parents, worried that we did something to cause Trisomy. We were swiftly assured that we played no active part in causing the Trisom</span><span class="text_exposed_show" style="display: inline; line-height: 18px;">y diagnosis. In rare cases, a parent can be a carrier of Trisomy, and not even know it, but in most cases Trisomy happens as a "fluke" during conception. When the cells divide, they are unevenly divided, and an extra chromosome (partial or full) is formed. (This is why we like to say "Trisomy: when Extraordinary starts at conception". <i class="_4-k1 img sp_2xmdb1 sx_9395d0" style="background-image: url(https://fbstatic-a.akamaihd.net/rsrc.php/v2/y6/r/3uoXBx2HIE3.png); background-position: -18px -158px; background-size: 314px 194px; display: inline-block; height: 16px; vertical-align: -3px; width: 16px;"></i> ) Then when the cells duplicate, they carry that uneven division throughout. The type of Trisomy depends on when the division/duplication happens. If a cell is unevenly divided/duplicated in the first 32 cell divisions, it is likely that the Trisomy will be a full Trisomy. If the uneven division/duplication is later in the process, then the baby is likely to have mosaic (not all the cells in the body will be affected). If a portion of a chromosome is duplicated in the division, the Trisomy is partial (a portion of a third chromosome is formed and duplicated throughout the cells). While there is a great variety and spectrum of Trisomy diagnosis' (Trisomy 1- Trisomy 23, Full, Mosaic, Partial, Translocation, Balanced Translocation, Ring, and many combinations within those diagnosis'), it is important to remember that each person is unique in their own rare diagnosis. No person will be exactly the same, so it is unrealistic to categorize any person under one prognosis based on a diagnosis or statistic, alone. It is vital that the new parents have support while processing the new diagnosis with reportedly grim statistics (that are outdated and questionably accurate in my opinion), and grieving their idea of a perfect child. As the family learns the new challenge of being a parent of a child who will most likely to have special needs, and revise their idea of a "perfect" child, they will also need to be reminded that their child is not a diagnosis, but he/she is still THEIR CHILD. They will not love their child any less, nor should you (as a friend, family member, coworker, etc). There is no manual for the parents, and the baby will not know of the statistics. There is no way of knowing, with great accuracy, what challenges their baby will have. One of the best ways to support the family, is to respect their journey but not fear it, encourage them to get to know their baby (in the womb, stillborn, or alive). No soul is ever wasted, and only a body is to be mourned. If we, or others around us (professionals, friends, or family) find ourselves lost in Kayli's diagnosis, we go back to the list of WHO Kayli is, which pulls us away from the dark depths of the diagnosis she HAS. We strive to stay one step ahead of Kayli, but recognize that only she and God knows of her great plans in life, no matter how long or short it is to be. We share with you, a capture of Kayli, beyond her diagnosis....</span></span><br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;"><span class="text_exposed_show" style="display: inline; line-height: 18px;"><br /></span></span>
<div class="clearfix" style="background-color: white; color: #333333; font-family: 'Helvetica Neue', Helvetica, Arial, sans-serif; font-size: 11.818181991577148px; line-height: 13.963635444641113px; zoom: 1;">
<h2 class="_5clb" style="font-size: 24px; line-height: 28px; margin: 0px; padding: 0px;">
All about Kayli, looking beyond her trisomy diagnosis</h2>
</div>
<div class="_5k3v _5k3w clearfix" style="background-color: white; color: #333333; font-family: 'Helvetica Neue', Helvetica, Arial, sans-serif; font-size: 14px; line-height: 20px; margin-top: 16px; word-wrap: break-word; zoom: 1;">
<span class="fbUnderline"><strong>Life</strong></span><br />
Nickname~ Sweet Pea, Princess, Ms Thang<br />
Song~ This Little Light of Mine<br />
Birthstone~ diamond<br />
Birth flower~ Sweet Pea<br />
Birth order~ youngest<br />
Symbol~ heart shape<br />
View~ my way or no way at all<br />
Motto~ With God, all things are possible<br />
<br />
<span class="fbUnderline"><strong>Favorites</strong></span><br />
Color~ Purple<br />
Animal~ Jelly Fish<br />
Place to visit~ Aquarium<br />
Mentor~ God<br />
Stuffed Animal~ Eeyore<br />
Music~ Lullabys<br />
Bedtime routine~ Mobile and/or Projector<br />
Therapy~ sit to stander<br />
Jewelry~ earrings<br />
Pastime~ swimming/bathtime, watching jellyfish in LED lighting, or sitting in the tunnel of fish at the aquarium<br />
<br />
<br />
<strong>Milestones since the 32 minutes of anoxia (lack of oxygen)</strong><br />
Potty training (for a couple of months)<br />
Using switches (toys)<br />
Blinking<br />
Smiling<br />
Swallowing<br />
Pulling self up<br />
Can sign "more" and "all done" in her own way<br />
Knowing her surroundings and people in her life<br />
Eye tracking<br />
kicking/pushing away with hands if upset<br />
<br />
<span class="fbUnderline"><strong>Bucket List Achievements</strong></span><br />
Was in the Ocean<br />
Rode a pony<br />
Saw Fireworks<br />
Traveled the country in an RV<br />
Rode on an amusement park ride (two)<br />
Was in a parade<br />
Gave something of herself, freely<br />
Received mail<br />
Sent mail<br />
Sat on Santa's lap<br />
Went to a pumpkin farm<br />
Danced<br />
Has a personally decorated bedroom<br />
Has been tickled<br />
Fell asleep in Mommy's and Daddy's arms<br />
Petted an animal (goat, dog, and ferret)<br />
Dressed up for Halloween (Dorthy from Wizard of Oz, Wonderwoman, and )<br />
Smelled a flower<br />
Got raspberries on her tummy<br />
Felt rain on her face<br />
Laid on Mommy's (and Daddy's) chest<br />
Caught bubbles<br />
Played dress up/dressed up<br />
Walked in God's beauty<br />
Watched fish swim<br />
Swung on a swing<br />
Saw flowers bloom<br />
Watched a parade<br />
Played in a pool<br />
Went to a sporting event (was a part of the crowd)<br />
Hung decorations up on a Christmas tree<br />
Went to a drive in theater<br />
Watched a bonfire<br />
Had a birthday party<br />
Colored in a coloring book<br />
Found Easter eggs<br />
Went to a zoo<br />
Wished upon a star<br />
Was kissed on the forehead<br />
Laughed<br />
Held hands<br />
Made a snow angel<br />
Feels unconditional love<br />
Saw a rainbow<br />
Went to a car show<br />
Heard a live band<br />
Traveled outside her homestate<br />
Floated in a lazy river<br />
Finger painted<br />
Sat inside a petting Zoo (and a goat ate her hearing aid!)<br />
<br />
<br />
<span class="fbUnderline"><strong>Interesting Facts about Kayli</strong></span><br />
1. Kayli helped set up a new policy at her school, making it possible for kiddos with trachs to swim in the school's pool! She was the first kiddo with a trach to ever go in her school's pool!<br />
<br />
2. Kayli donated 14" of her hair in December of 2012. She was the youngest person to ever donate to Wigs for Kids, and with the most amount of hair!<br />
<br />
3. Kayli is a very spiritual girl, and has been known to leave her body and visit others.<br />
<br />
4. Kayli has been granted 8 miracles of life! The miracles include surviving: Full Trisomy 18, 32 minutes of anoxia, 7 weeks of Endocarditis and Sepsis without antibiotics, a perforated bowel, a surgically misplaced Gtube for 3 weeks, a pinhole sized airway for 3 weeks (resulted in a tracheostomy), a heart med overdose (10X the amount of Clonidine), a Potassium level of 8.2 (range is 3.5-5). <br />
<br />
5. Kayli loves to swim, and especially getting her hair wet!<br />
<br />
6. Kayli has had 18 surgeries throughout her life, including heart, spine, and abdominal. Her family has had more than 60 surgeries, and Kayli does not yet "hold the record" for the most surgeries in the family.<br />
<br />
7. Kayli has met many others with her same "rare" trisomy diagnosis.<br />
<br />
8. Kayli goes to school. She LOVES school!<br />
<br />
9. Kayli's clothes size is age appropriate, but her shoe size is still only 6-12 months!<br />
<br />
10. Kayli is the youngest of 7 (including half siblings).<br />
<br />
11. When Kayli was born, she could eat orally, and was fed breast milk for the first 9 months of her life.<br />
<br />
12. Kayli's life challenges are directly related to the 32 minutes without oxygen, and have minimal (if anything) to do with Trisomy 18 diagnosis.<br />
<br />
13. Kayli's ears were pierced for her first birthday.<br />
<br />
14. Kayli has visited 10 states in the USA<br />
<br />
15. Kayli wears lipgloss regularly (she has many different flavors to choose from!)<br />
<br />
16. Kayli teethed in a typical manner, and she has a full mouth of teeth, but her upper teeth are covered with an overgrowth of gums, caused by a seizure medication. She will be getting her gums lazored back because the gum overgrowth is causing her jaw to grow upwards instead of out. <br />
<br />
17. Kayli had a cleft palate, that closed on it's own and she is allergic to the antihistamine, Zantac (both unheard of, but unique to Kayli)!<br />
<br />
18. Kayli does not like the sun, and sneezes every time her eyes are exposed to the sun.<br />
<br />
19. Kayli does not like the cracks in the side walk, nor strolling on bricks or any gaps in solid ground.<br />
<br />
20. Kayli collects piggy banks and hair bows.<br />
<br />
21. Kayli has photo frames and earrings from each monumental place she has visited. The photo frames are placed on shelves in her room, as reminders of family times well spent. </div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com5tag:blogger.com,1999:blog-1388997078122972684.post-2199436294562853812014-02-23T18:19:00.002-06:002014-02-23T18:20:36.185-06:00Jacob made Kayli a platform swing <span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Jacob made Kayli a platform swing! We will be adding hooks to hang lights and toys/links to it for Kayli to look up at. She also has a projector that shines in the circle above her. We added red/black stickers with the white background for easy eye tracking! The flowers on the ropes twist to any position. The swing spins and rocks back and forth. </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDfM3tOgKY6Khl0pUfocQ72bpk7n1GNIVyDYD3JujhG-0vDuDuPi8amSFMIfbqIOzsx9FOB0n6Fwn60oQefh_ZOj-_Lc7cBhf8wqIXgf7ZKtEjqNKmYboGm_L9mr5XcR4iGDnJcBAhGTM/s1600/DSCN9281.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDfM3tOgKY6Khl0pUfocQ72bpk7n1GNIVyDYD3JujhG-0vDuDuPi8amSFMIfbqIOzsx9FOB0n6Fwn60oQefh_ZOj-_Lc7cBhf8wqIXgf7ZKtEjqNKmYboGm_L9mr5XcR4iGDnJcBAhGTM/s1600/DSCN9281.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Looking up at her stickers and projector</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijBSbrXPog2ZYbKSsyodovC4g_awj44xYN2ornoXvOohMKm1sD92-szOTpSa7a2moTecCJaIMwUckWfE3nfCM9QQzgdZ0GgHSue6HNYBolnPRA4NQkhb8unO-JH_CddUPf59kd9qHeaGk/s1600/DSCN9284.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijBSbrXPog2ZYbKSsyodovC4g_awj44xYN2ornoXvOohMKm1sD92-szOTpSa7a2moTecCJaIMwUckWfE3nfCM9QQzgdZ0GgHSue6HNYBolnPRA4NQkhb8unO-JH_CddUPf59kd9qHeaGk/s1600/DSCN9284.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Looking up at her lights</td></tr>
</tbody></table>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0-BEqhrFXLdIgEX8O1Aj6taVhqytHGyvLo7E-N8sGp-IdUUdd2zjEW5CbdUceGTXKc_R-aVcNHUINe-ZlhadRHJOSCp7LG9MOW7uQardWM_ZlQjOwz04K5r5zy0lds3MMGwkWvHh0ADc/s1600/DSCN9285.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0-BEqhrFXLdIgEX8O1Aj6taVhqytHGyvLo7E-N8sGp-IdUUdd2zjEW5CbdUceGTXKc_R-aVcNHUINe-ZlhadRHJOSCp7LG9MOW7uQardWM_ZlQjOwz04K5r5zy0lds3MMGwkWvHh0ADc/s1600/DSCN9285.JPG" height="240" width="320" /></a></div>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com1tag:blogger.com,1999:blog-1388997078122972684.post-23158734902492527202014-01-08T22:55:00.003-06:002015-09-28T11:01:41.464-05:00Special Needs iPad apps<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Kayli has several impairments, including (DD) developmental delays, (CVI) Cortical Visual Impairment, Hearing impaired, as well as some motor delays. Kayli was granted an iPad through IL's Project Reach, and donated to Kayli from Save R Sight. We have found many apps that have helped guide Kayli in her healing and learning. In order to pass the wealth of information along, we are sharing with you, the following list of iPad apps that we have found helpful/useful. Please feel free to share with us, your favorites, and/or share Kayli's compiled list with others!</span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">UPDATE: Kayli was granted another iPad, this time through I Can Connect. They also provided her with a head switch, an app that allows her to connect with others via her iPad (kind of like skype, but for the visually/hearing impaired), a magic arm to hold the ipad, as well as an arm to hold the head switch. I Can Connect is a Nationwide (USA) program, that helps those who are hearing/visually impaired, connect with others. They will come out to your house to evaluate which communicative device and software best matches your child's needs. I highly recommend this program! </span><br />
<br />
<ul style="line-height: 20px; list-style-type: square; margin: 10px 0px; padding: 0px 10px 0px 25px;">
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">3D Shape Shifter 2 HD (by Xanist Software)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">100's of Buttons and Sounds (by Toneaphone, LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">ABA Flash Cards & Games-Emotions (by Innovative Mobile Apps)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Alexicom AAC (by Alexicom Tech LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Animal Fun (by Brian Pfeil)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Animal Sounds - Fun Toddler (by Innovative Mobile Apps)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Answers: YesNo (by SimplifiedTouch)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Art of Glow (by Natenai Ariyatrakool)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Aquarium Colors</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Charmer and Eye Tracking Simulation (by SABER DESIGN) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby finger HD (by DJ International)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Look Tickle (by Me and the Giants)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby's Musical Hands (by Streaming Colour Studios) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Phone- Free Musical...(by Mobileroo Pty Ltd)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Rattle Plus (by Kids Place)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Rattle Toy Free (by SelenaSoft, Inc.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Screen (by Planet Sloth)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Symbolizer: High-Contrast Infant Stimulation (iPod only, by HuggaMind, Inc.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby View (by Wayne Smith)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby-Vision (by Spotty Bear Ltd.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Baby Visual Stimulation (by Ye Wang)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Bloom HD (by Opal Limited)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Blow Fish! Free Fish Popping (iPod only, by salim sazzad)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Boogie Bugs (by Twiny Vine)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Bright Start Baby - A Bright Start for Smart Babies (iPod only, by Eieio Software)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Bubble Popper (by Mob Touch Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Bubbles (by Hog Bay Software)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Captain Lazy Eye (by Ideabus)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Captain Lazy Eye Full (by Ideabus)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Cause and Effect Sensory Light Box (by Cognable)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Cause and Effect Sensory Sound Box (by Cognable)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Chase the Dot (by Microlemon)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">ChoiceBoard-Creator (by Techno Chipmunk)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Color Dots - Infant Baby (by Ellie's Games, LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Color Squares</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">CommunicAide Free: AAC/Speech Therapy (by Object Graph LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Chromatic Vision Stimulator (by Kazunori Asada)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Disney Fish Hooks (by Disney)</span></li>
<li><span style="color: #351c75; font-family: Verdana, sans-serif;"><span style="background-color: #d9ead3;">Dot Connector:Learn ABC's and 123's with dot to dot (by Ellie's Games)</span></span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Dot to Dot (Low Vision) by Ebenezer School</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">EDA Play (by Rana pece EDA)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Endless Alphabet (by Originator Inc.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Eye Exercises (by Ambroise CHARRON)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Eye Exerciser Lite (by Craftsman Apps iOS)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Eye Movement Training (Free) by Ebenezer School</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Find the Same (Free) by Ebenezer School </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Fireworks Arcade (by Big Duck Games LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Fish Fingers! 3D Interactive Aquarium (by Useless Creations Pty Ltd)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Five Sharks Swimming (by Inclusive Technology Ltd)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">fluidity HD (by nebulus design)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Focus Builder (by Cedrick Noel)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Forge of Neon 3D (by Volutopia)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Fun Sounds (by Ozan)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Fun Bubbles (by Lewis Johnson)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Fun Shooting Stars (by Lewis Johnson)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Glow Coloring (by MobiTech 3000 LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Go Away, Big Green Monster! (by Night & Day Studios, Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Go Paint Pro (basically an Etch a sketch)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">GoTalk Now Free (by Attainment Company) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Guided Video (make a video of yourself)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">I Hear Ewe - Animal Sounds for Toddlers (by Claireware Software)</span></li>
<li><span style="color: #351c75; font-family: Verdana, sans-serif;"><span style="background-color: #d9ead3;">iFluids HD or Free (by Pixelspace Media Ltd)</span></span></li>
<li><span style="color: #351c75; font-family: Verdana, sans-serif;"><span style="background-color: #d9ead3;">Inclusive Smarty Pants (by Inclusive Technology Ltd)</span></span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Infant Stimulation Card-HD (by Joyee Jonee)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Infant Visual Stimulation (by Think Design Studio LLP)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Infant Visual Stimulation (by IntelleQuest Education Company</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Infant Zoo Lite: High Contrast Visual Stimulation for Babies (by treebetty)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Injini:Child Development Game Suite (by injini)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Kiddy Imagine (by Waclaw Rosicki) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Kids Can Match-Animals, vocal memory game for children HD (by Kids place)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Language TherAppy (by Tactus Therapy Solutions Ltd.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Learn with WordFriends (Word World)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Magic Fingers (by Sweet Action games) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Music Sparkles-All in One Musical Instruments Collection HD (by Kid Games Club)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">My Choice Board (iPhone only, by Good Karma Applications, Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">My First ACC (by injini)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">My Talk Tools Mobile (2nd Half Enterprises LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">My Talking Picture Board (by Little Bear Sees)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">My Talking Tom (by Out Fit 7 Ltd.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Niki Talk (by Alessandro La Rocca)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Old McDonald</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Peekaboo HD </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">P.O.V.- Spatial Reasoning Game and Left Right Discrimination (by BinaryLabs, Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Piano Pals (by BigStack Studios)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">PBS Kids </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Peekaboo:Ladybird Baby Touch (by Penguin Books)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Peekaboo Barn (by Night and Day Studios, Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Peekaboo HD (by Gotclues, Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Piano Pals (by BigStack Studios)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Pictello (by AssistiveWare)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">PlayButton (by Aardustry LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Pocket Pond HD (Triggerwave LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Pocket Pond 2 (Triggerwave LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Pogo Boards-AAC (by Talk to Me Technologies)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Proloque2go (AssitiveWare)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Put Me in the Story-Personalized Books (by Sourcebooks, Inc.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Rockin Fairy (by Twiny Vine)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sago Mini Sound Box (by Sago Sago)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Scan-A-Word (by RJ Cooper & Associates)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Scene&Heard (by Therapy Box Limited) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">See Me Talk (Kevin Hanasyk)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sensory Speak Up (by Sensory Apps Ltd)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Shape Builder- the Preschool Learning Puzzle Game (by Darren Murtha Design)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Shapes in Complex Free by Ebenezer School</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sight Recover 3D (by koikoi.biz)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sights and Sounds: Fireworks (by Marblesoft)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Small Talk Common Phrases (by Lingraphica) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Small Talk Daily Activities (by Lingraphica)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Small Talk Pain Scale (by Lingraphica)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Smart Tot Rattle-Cause and Effect sensory stimulation (by Moxi Mobile) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sound Touch (by Sound Touch)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sound Uncovered (by Exploratorium)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">SoundingBoard (by AbleNet)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Spark Art! (Big Duck Games LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Plasma Globe (by Infinite Dreams Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sparkabilities Babies 1 HD (by Sparkabilities)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Speech Sounds on Cue (by Mulitmedia Speech Pathology)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Statlex Shapes Learning for Kids (by Pavel S)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Talk Tablet US (by Gus Communications, Inc.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Talk To Me 100 Free (by Sydspeak, Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Talk Tommy </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Talking Pierre the Parrot (by Out Fit 7 Ltd.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Talking Tom Cat or Talking Tom Cat 2 (by Out Fit 7 Ltd)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tap-N-See Now (by Little Bear Sees)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tap-N-See Zoo (by Little Bear Sees)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tap to Talk (by Assistyx LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tap ATune (by Mindshapes Limited)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tap Speak (by Ted Conley)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tap Speak Button (by Ted Conley)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tap Speak Sequence (by Ted Conley)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Thicket (by Interval Studios)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Tom Taps Speak (by Seer Technologies, Inc)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Touch Switch (by Goatella)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Touch the Sound (by Innovative Mobile Apps)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Trippin II (by PDJ Apps)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">urTalker Pro (by Nolan Technology LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Verbal Victor (by Apps for the Greater Good, LLC)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">VisionSim (by Braille Institute)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Visual Cue Lite (by Sanghoon Lee)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Visual Training for Babies (by Sergio Diaz Marco)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Voice4u Text-to-speak (tts) (by Spectrum Visions)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">VST (Vertical Sleeve Talk) </span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Wheels on the Bus (by Duck, Duck, Moose, Inc.)</span></li>
<li><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Zoo Sounds (by Tantrum Apps)</span></li>
</ul>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com2tag:blogger.com,1999:blog-1388997078122972684.post-73514512175593283332014-01-06T20:19:00.002-06:002014-01-13T11:30:39.002-06:00I'm with her<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; line-height: 18px;">For those who don't know us yet, this is my daughter, Kayli, and I. </span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiz5oiGhyphenhyphenmJqb4Q7zlzXs6V68PHSVJMFj7C3LdSgGt7-V-kE0GEC9WxMXj_fJlCZqnKa1ctxDAH0XAc6DCL9GbIhyphenhyphenb4CAOJSIL9yE23HN5yXv0CqGdM5k1ZNsn3NEHU8OnIpaPzjxrKQA/s1600/kayli+and+mommy+2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiz5oiGhyphenhyphenmJqb4Q7zlzXs6V68PHSVJMFj7C3LdSgGt7-V-kE0GEC9WxMXj_fJlCZqnKa1ctxDAH0XAc6DCL9GbIhyphenhyphenb4CAOJSIL9yE23HN5yXv0CqGdM5k1ZNsn3NEHU8OnIpaPzjxrKQA/s1600/kayli+and+mommy+2.jpg" width="235" /></a></div>
<br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12.800000190734863px; line-height: 18px;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="line-height: 18px;">Kayli is 4.5 years old, and has Trisomy 18. In God's plan and timing, she has had 8 miracles of life, including; (1) Surviving T18 and the worthless "incompatible with life" medical label attached to it, (2) 32 minutes of anoxia (she passed away and came back to life), (3) 7 weeks of Endocarditis and Sepsis without antibiotics (it took us 7 weeks to convince physicians that our daughter deserve antibiotics to treat the infections</span><span class="text_exposed_show" style="display: inline; line-height: 18px;">), (4) a pinhole sized airway for 3 weeks (caused by a home care nursing accident, physicians refused to evaluate her because she has T18..eventually an ENT scoped her, found the anaphylaxis damage, and trached her), (5) a surgically perforated bowel, (6) a surgically misplaced gtube (surgeon caused a fistula, placed the gtube in her colon instead of her stomach...and left Kayli like that for 3 weeks, refusing to fix her mistake, nor explain herself), (7) a hospital induced medication overdose for the length of the hospital stay (10 times the amount of a heart medication), (8) a physician ordered Potassium overdose (after 1/2 hour of diarrhea to get rid of the Potassium, her level was still at 8.2...levels are critical if outside the 3.5-5 range). </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span class="text_exposed_show" style="display: inline; line-height: 18px;"><br /></span>
<span class="text_exposed_show" style="display: inline; line-height: 18px;">Despite all that has been thrown at her, she has gracefully forgiven all those who have harmed her, and taught her family to do the same. Kayli is an active member of our family, and contributor to our society. In her young life, she has established new policies and rights for special needs community members, given to others in need, and done almost everything on her bucket list (which is more than most adults can say!)! I've been told that when in public, she gets stared at. My love goggles tell me the stares are of admiration. You see, when some have mistakenly implied, she's with me, (which I understand because she is a minor)...my reality is that I'm with her. She is far more worthy of a follower than I am. We are Blessed to have Kayli in our minds, lives, hearts, and arms. When it is God's Will that she goes to heaven, I only hope that I can live up to being her Mom, even when I'm standing on my own, and no longer "with her". Not only is Kayli compatible with our lives, she has made my life compatible too! <i class="_4-k1 img sp_75mcuz sx_a33b6b" style="background-image: url(https://fbstatic-a.akamaihd.net/rsrc.php/v2/yf/r/vlKxhqEGtLc.png); background-position: 0px -3920px; background-repeat: no-repeat no-repeat; background-size: 20px 4276px; display: inline-block; height: 16px; vertical-align: -3px; width: 16px;"></i></span></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com8tag:blogger.com,1999:blog-1388997078122972684.post-85107679843692444142013-12-28T13:43:00.001-06:002013-12-28T13:43:17.853-06:00Kayli's Blessed Christmas<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Kayli had an amazing Christmas! She was back to feeling 100%, and went to her maternal extended family's side for Christmas Eve, and Santa came for a brief visit! Then Kayli spent Christmas morning opening presents with her family. She received many clothes (for her <a href="https://www.facebook.com/media/set/?set=a.435771826508056.1073741828.415836751834897&type=3">Off the Rack album</a> ), a Kindle fire and iPod shuffle, all thanks to <a href="http://operationnorthpole.org/">Operation North Pole</a>!!! Kayli also received many music therapy instruments, and a swimming pool (WOW!!) for aquatic therapy from Mike, of <a href="http://www.mazzallc.com/">Michael P. Mazza, LLC</a>!!! We met our Christmas angel, Mike, through <a href="http://www.normalmoments.org/">Normal Moments</a>, a wonderful non-profit organization that helps us manage our day to day life as a special needs family!</span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">The stimulation of the day must have been too much for her, because she slept through Christmas dinner, provided to us, by Normal Moments. Kayli has since spent the days enjoying her new therapeutic toys! </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">We can't thank you Mike, Operation North Pole, and Normal Moments enough!!! You have all made Kayli and our family's Christmas one of the best EVER!!! Thanks be to God, for uniting us! </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnhXgnIWAC4PEM_pPC9gPZzc1ozvK-HRS7MgylBHFn22jp3aAgimG_D4K7Vp_sWpnBajlmt0CgIRm6z30vP1rQaw0NW2eVRWeqLzY0n7PcZEeYtxH_fZc3kxN6q5tUDeIilq9kElsVpYY/s1600/DSCN8596.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnhXgnIWAC4PEM_pPC9gPZzc1ozvK-HRS7MgylBHFn22jp3aAgimG_D4K7Vp_sWpnBajlmt0CgIRm6z30vP1rQaw0NW2eVRWeqLzY0n7PcZEeYtxH_fZc3kxN6q5tUDeIilq9kElsVpYY/s320/DSCN8596.JPG" width="320" /></a></div>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-34519995043544937202013-11-11T10:49:00.004-06:002013-11-11T11:03:32.632-06:00Words of Wisdom <div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;">Strength in persistance; A river cuts through a rock not because of it's power, but because of it's persistence. ~unknown</span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<form action="https://www.facebook.com/ajax/ufi/modify.php" class="live_10152386475757796_316526391751760 commentable_item autoexpand_mode" data-live="{"seq":0}" id="u_jsonp_3_g" method="post" rel="async" style="margin: 0px; padding: 0px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;">The struggling you do today, will develop the strength you need for tomorrow. ~ unknown</span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;">Sometimes you don't realize the weight of a burden you have been carrying, until you feel the weight of it's release. ~ unknown</span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;">The only fear you have, is fear itself. Feel the fear and do it anyways.</span></span></div>
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;"><br /></span></span></div>
<div class="_wk" style="line-height: 18px;">
<span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"> </span>Forgiving you is my gift to you; moving on is my gift to myself. ~ unknown</span></div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article" style="line-height: 11.199999809265137px;">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;">Some people are better left in your heart, and not in your life. ~ unknown</span></span></div>
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;"><br /></span></span></div>
<div class="_wk" style="line-height: 18px;">
<span style="background-color: #d9ead3;"><span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"></span></span><br /></span>
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Relief comes after the courage to let go of what you can't change.</span></span></span></div>
</div>
</div>
</div>
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;">
</span></span>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article" style="line-height: 11.199999809265137px;">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">How people treat you is their Karma; how you react, is yours. ~ unknown</span></span></span></div>
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;"><br /></span></span></span></div>
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"></span><br /></span></span>
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Mean and hateful people are like sandpaper. They scratch you and rub you the wrong way, but eventually you become smooth and polished while they become worn out, used up, and ugly. ~ The fighting temptations (movie)</span></span></span></span></div>
</div>
</div>
</div>
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">
</span></span></span>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">When you judge me, you do not define me; but you do define yourself. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Don't mistake my silence for ignorance, my calmness for acceptance, or my kindness for weakness. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">The bad things in life open your eyes to the good things you weren't paying attention to. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Be careful with your words, because once they've been said they can only be forgiven; not forgotten. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">I'd rather lose an argument to someone, than lose someone to an argument. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Do not argue with a fool. He will drag you down and beat you with experience. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">When you throw dirt, you loose ground. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Pay no attention to those who talk behind your back, it simply means you are two steps ahead. ~ unknown</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Your character is who you are, your reputation is who others think you are. Stay true to, and focus on your character, not your reputation.</span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article" style="line-height: 11.199999809265137px;">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Raise your words, not your voice. It is rain that grows flowers, not thunder. ~ Rumi</span></span></span></span></div>
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;"><br /></span></span></span></span></div>
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;"><span class="userContent" data-ft="{"tn":"K"}"></span><br /></span></span></span>
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Holding onto anger is like drinking poison and expecting the other person to die ~ unknown</span></span></span></span></span></div>
</div>
</div>
</div>
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">
</span></span></span></span>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">Staying quiet doesn't mean I have nothing to say, it means I don't think you're ready to hear my thoughts ~ unknown</span></span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">There is a difference between giving up and knowing when you've had enough ~ unknown</span></span></span></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<div role="article" style="line-height: 11.199999809265137px;">
<div class="_1x1" style="margin: 15px 0px; padding: 0px;">
<div class="userContentWrapper">
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;">If I cut you off, chances are you handed me the scissors ~ unknown</span></span></span></span></span></div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
<span class="userContent" data-ft="{"tn":"K"}"><span style="color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}" style="background-color: #d9ead3;"><span class="userContent" data-ft="{"tn":"K"}">
</span></span></span></span></div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
</div>
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;"><span class="userContent" data-ft="{"tn":"K"}">
</span></span></span></div>
</div>
</div>
</div>
</div>
</div>
</div>
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;">
</span></span></div>
</div>
</div>
</div>
</div>
</div>
</div>
<div class="_wk" style="line-height: 18px;">
<span class="userContent" data-ft="{"tn":"K"}"><span style="background-color: #d9ead3; color: blue; font-family: Verdana, sans-serif;"><br /></span></span></div>
</div>
</div>
</div>
<div class="fbTimelineUFI uiCommentContainer" style="margin-bottom: -12px; margin-left: -12px; padding-top: 3px; position: relative; width: 510px;">
<div class="fbTimelineFeedbackHeader">
<div class="fbTimelineFeedbackActions clearfix" style="background-color: #fafbfb; background-position: initial initial; background-repeat: initial initial; border-top-color: rgb(233, 234, 237); border-top-style: solid; border-top-width: 1px; padding: 8px 12px 9px; zoom: 1;">
<span class="UFIBlingBoxTimeline" style="float: right; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11.199999809265137px; line-height: 11.199999809265137px;"><span data-reactid=".r[41uj1]"></span></span><span class="UIActionLinks UIActionLinks_bottom" data-ft="{"tn":"=","type":20}" style="color: #999999; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11.199999809265137px; line-height: 11.199999809265137px;"></span></div>
</div>
</div>
<span class="UFIBlingBoxTimeline" style="background-color: #fafbfb; color: #4e5665; float: right; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11.199999809265137px; line-height: 11.199999809265137px;"><span data-reactid=".r[4qz1c]"></span></span><span class="UIActionLinks UIActionLinks_bottom" data-ft="{"tn":"=","type":20}" style="background-color: #fafbfb; color: #999999; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11.199999809265137px; line-height: 11.199999809265137px;"></span></div>
</div>
</div>
<span class="UFIBlingBoxTimeline" style="background-color: #fafbfb; color: #4e5665; float: right; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11.199999809265137px; line-height: 11.199999809265137px;"><span data-reactid=".r[3zd3q]"></span></span><span class="UIActionLinks UIActionLinks_bottom" data-ft="{"tn":"=","type":20}" style="background-color: #fafbfb; color: #999999; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 11.199999809265137px; line-height: 11.199999809265137px;"></span></div>
</div>
</div>
</div>
</div>
</form>
</div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-87872819756401979582013-11-07T20:04:00.000-06:002016-11-18T12:08:54.587-06:00Mom approved, gift ideas for kiddos with special needs <span style="font-family: "verdana" , sans-serif;">This is an ever expanding list of gift ideas for kiddos with special needs. If you have any suggestions, please message me or leave a comment so we can add the suggestion to the list.</span><br />
<br />
<span style="font-family: "verdana" , sans-serif;"><u><b>Vision/Lights</b></u></span><br />
<span style="font-family: "verdana" , sans-serif;"><u><b><br /></b></u>
Butterfly in a jar (looks too real to be fake!)</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiowyTlZMnisfFSw0h8Noa2yNBjpketFRnP0T-Z3rYbLQLTSBEIETWlSZEFTO6x7mVLD6IDzga0acOb7XaU9DKPy8VkJoYRd3PYyRIoIlUYMKByPXGfBBYwjDRan3iZclR2C8gc4KK9zhY/s1600/download.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiowyTlZMnisfFSw0h8Noa2yNBjpketFRnP0T-Z3rYbLQLTSBEIETWlSZEFTO6x7mVLD6IDzga0acOb7XaU9DKPy8VkJoYRd3PYyRIoIlUYMKByPXGfBBYwjDRan3iZclR2C8gc4KK9zhY/s1600/download.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif; font-size: x-small;">This butterfly has an amazing lifelike affect. Minutes after taping the lid, the butterfly continues to sporadically flutters around the jar! </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Dancing water speakers <a href="http://www.youtube.com/watch?v=LEYw1PjUtp4">http://www.youtube.com/watch?v=LEYw1PjUtp4</a></span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEha60TfZj_JbvyuIYSngQ2qymNAJMH_g1GyGR9aEUGzzuJJMK5dJvZEvcUY7VRWAGcqxM4E77_b_PMFeO3MuulQLrrVecBsXU_ZWGgHCZSqDK8Rly4AmVTMeBSDgVLy0nZNhkO56-VZjHo/s1600/dancing+water+speakers.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEha60TfZj_JbvyuIYSngQ2qymNAJMH_g1GyGR9aEUGzzuJJMK5dJvZEvcUY7VRWAGcqxM4E77_b_PMFeO3MuulQLrrVecBsXU_ZWGgHCZSqDK8Rly4AmVTMeBSDgVLy0nZNhkO56-VZjHo/s1600/dancing+water+speakers.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif; font-size: x-small;">These speakers shoot water and light up (LED lighting) to the sound of music. This is a great item for the hearing impaired, as they "see" the beats to the music! </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Fiber optic color changing burst light</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge0UAohyphenhyphenDy4NwtWpOuLwbNBzmXtTgsJ5twcRD7UU70_8t57U_jxrJn4RskPXzOyTQNlhhnxwkf_fQk2n4FY06IYrqyv_r8Zj32FZpNOBKZnBdOuM_-R3EC8eNkxgIjURItUE4zOhc8frg/s1600/light+burst.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="243" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge0UAohyphenhyphenDy4NwtWpOuLwbNBzmXtTgsJ5twcRD7UU70_8t57U_jxrJn4RskPXzOyTQNlhhnxwkf_fQk2n4FY06IYrqyv_r8Zj32FZpNOBKZnBdOuM_-R3EC8eNkxgIjURItUE4zOhc8frg/s320/light+burst.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Great item for slow visual processing! With an on/off switch burst, you can add a battery interceptor and use with a switch! </span></td></tr>
</tbody></table>
<br />
Magic jelly fish<br />
https://www.amazon.com/Fascinations-Magic-Jellyfish-LED-Lights/dp/B002L28SU4/ref=sr_1_5?ie=UTF8&qid=1479488670&sr=8-5&keywords=magical+jelly+fish<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_WufpekZlYxjKhWykM4BjWlEXvsmTfwIOxAZr5Zo1VDRe5LExU7I5RbKtvfWUqkhT0cJHLZuofOfiH0KGv9-GHCLBua32BCNd_BTHMGR1qye8shNJV0YRt9MSYThxkp80JOUPzB2ucVA/s1600/magic+jellyfish.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_WufpekZlYxjKhWykM4BjWlEXvsmTfwIOxAZr5Zo1VDRe5LExU7I5RbKtvfWUqkhT0cJHLZuofOfiH0KGv9-GHCLBua32BCNd_BTHMGR1qye8shNJV0YRt9MSYThxkp80JOUPzB2ucVA/s320/magic+jellyfish.jpg" width="283" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<span style="font-family: "verdana" , sans-serif;">Mylar Balloon</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0zltnpOPH4APZUad5FW2nX82jFkMihSvKq09jVVGcMqvX2JgKKh70BWRVm9p3VD1PB9wiZCBuFrrrin9ru6zOMwILDc355JdtaUoARdzxeDCa6BxUJgW9cIE9O0vCio_pabZknKj8eIo/s1600/balloons2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0zltnpOPH4APZUad5FW2nX82jFkMihSvKq09jVVGcMqvX2JgKKh70BWRVm9p3VD1PB9wiZCBuFrrrin9ru6zOMwILDc355JdtaUoARdzxeDCa6BxUJgW9cIE9O0vCio_pabZknKj8eIo/s1600/balloons2.jpg" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<div style="text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Pinwheel (with a fan blowing it, and a flashlight shining on it!)</span></div>
<div style="text-align: center;">
<br /></div>
<span style="font-family: "verdana" , sans-serif;">Sound Sensor lighting wire ball <a href="http://www.thegadgetexperience.com/sound-sensor-lighting-wire-ball/">http://www.thegadgetexperience.com/sound-sensor-lighting-wire-ball/</a></span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNXZVAAqoSmKVhNkZgH7QF5ryqqWxhRXZi7NMgtZR7CSZUt9nSGxoEefOb9ra66YePbqWtLv8Ogr1BzZBVM8s8x6jSCSIunAAbKFP5DMQDa09WoIZqE452OhtfUc30H85rL2UygXxR8tA/s1600/sound+sensor+lights.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNXZVAAqoSmKVhNkZgH7QF5ryqqWxhRXZi7NMgtZR7CSZUt9nSGxoEefOb9ra66YePbqWtLv8Ogr1BzZBVM8s8x6jSCSIunAAbKFP5DMQDa09WoIZqE452OhtfUc30H85rL2UygXxR8tA/s1600/sound+sensor+lights.png" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">The balls light up with different tones of voice or music. Great for the hearing impaired, to actually "see" the sounds! You can change to auto also, where the balls light up without sound activation. </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">VTech Happy Lights Bear</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcwl5nt-9Mw960PFGAf0GOTN_1hbPZbYdFmWgGSVPm0ptMtfOvjng_M93cl4COTiisxYr0pzads6H8U-u1aTj_s5ch7nKSH6ZUk_eJwbbdVEpbP1Mk1Hew4uGf4IMpiyY3X88MauaT3TE/s1600/vtech+happy+lights+bear.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcwl5nt-9Mw960PFGAf0GOTN_1hbPZbYdFmWgGSVPm0ptMtfOvjng_M93cl4COTiisxYr0pzads6H8U-u1aTj_s5ch7nKSH6ZUk_eJwbbdVEpbP1Mk1Hew4uGf4IMpiyY3X88MauaT3TE/s1600/vtech+happy+lights+bear.jpg" /></a></div>
<br />
<br />
<span style="font-family: "verdana" , sans-serif;">V-tech record and learn photo album</span><br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<span style="font-family: "verdana" , sans-serif;">Rope lights</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj10q3A4j8ANcXrGrIfzCSk3FYRt4w-NbeD9jZUpsAw_ta4Os2dZ57XtdgFfoPryYQ_abEOo7nYEWSi7p4rH3JXF1SFrccF7-D20d2iMg0uRwedjv_3-S_JPCp-AAVrgRXlp4FjfKmofAU/s1600/rope+lights.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="216" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj10q3A4j8ANcXrGrIfzCSk3FYRt4w-NbeD9jZUpsAw_ta4Os2dZ57XtdgFfoPryYQ_abEOo7nYEWSi7p4rH3JXF1SFrccF7-D20d2iMg0uRwedjv_3-S_JPCp-AAVrgRXlp4FjfKmofAU/s320/rope+lights.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Great visual item, that doesn't get hot, so you can place on/around child or hang around the room! </span></td></tr>
</tbody></table>
<span style="font-family: "verdana" , sans-serif;">Uncle Milton's Fireworks Light Show </span><br />
<div>
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_tYr2DHU7ImLJuMoBgOAy3tKhmv-Epp38Ezf-ChxKNScI5Fhv4WvPj_MR0ZL8FKVyUlF2YCfAGLaCIepXVVcKBxAT8p2vw6hx05fZiYlJNlIMm6aPjlNI7IZOC2GV6iE3GWT-pBai9Ck/s1600/uncle+miltons+fireworks+show.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_tYr2DHU7ImLJuMoBgOAy3tKhmv-Epp38Ezf-ChxKNScI5Fhv4WvPj_MR0ZL8FKVyUlF2YCfAGLaCIepXVVcKBxAT8p2vw6hx05fZiYlJNlIMm6aPjlNI7IZOC2GV6iE3GWT-pBai9Ck/s1600/uncle+miltons+fireworks+show.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Smartnoggin Noggin Stik</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvSoSVF_-Jedu6tlBez1-DB1pYJ0U0yQ1wMGxqgeGoYeN8Do-IBqdtV51mJxRxMSeL8XOiETCLzPOmmB1r-LNe6PIEeWlkmUmNApB3At1TYsOouHDYrFwqJLQfajNVksyTJT9Tmr_7Icw/s1600/smartnoggin.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvSoSVF_-Jedu6tlBez1-DB1pYJ0U0yQ1wMGxqgeGoYeN8Do-IBqdtV51mJxRxMSeL8XOiETCLzPOmmB1r-LNe6PIEeWlkmUmNApB3At1TYsOouHDYrFwqJLQfajNVksyTJT9Tmr_7Icw/s320/smartnoggin.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
The Smartnoggin has cause/effect changing colors, has texture, and is a rattle! It's worth the $20! </div>
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">A cause and effect, light up rattle! </span></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: "verdana" , sans-serif;">Doodle Dome </span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7AP_GMuDpP9eUGZS2sm5zU-IFvX7mrA3zPHEAOffVIP3NMV0io8yGBCijjMK1TIJGtIt0t5V3888Wvsj4ZGzq4zGlNK2S9HiwHPJMX3t107C2IYNEDwKgo98lcL2jRgC8JmroRUrD3xc/s1600/a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7AP_GMuDpP9eUGZS2sm5zU-IFvX7mrA3zPHEAOffVIP3NMV0io8yGBCijjMK1TIJGtIt0t5V3888Wvsj4ZGzq4zGlNK2S9HiwHPJMX3t107C2IYNEDwKgo98lcL2jRgC8JmroRUrD3xc/s1600/a.jpg" width="307" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Wheelchair lights, Underglow <a href="http://www.wunderglow.com/">http://www.wunderglow.com/</a></span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAWQIzr6F8UnlJNUxU3v1Ean8e56uGSpnoFwhZWi2A3tpoRsIYfj1jpfp1Gu9sfzciZNSw3i7dVe5j8nwOy3KJ0Na1cVVpemTUBFtijrUfkUBQKDSPfj05syUHJvt8jXUAKGiyl-4Mr0s/s1600/underglow+wheelchair+lights.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAWQIzr6F8UnlJNUxU3v1Ean8e56uGSpnoFwhZWi2A3tpoRsIYfj1jpfp1Gu9sfzciZNSw3i7dVe5j8nwOy3KJ0Na1cVVpemTUBFtijrUfkUBQKDSPfj05syUHJvt8jXUAKGiyl-4Mr0s/s1600/underglow+wheelchair+lights.jpg" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: "verdana" , sans-serif;">Oggz</span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD5EP620WoUl9Q3DkOMaSbmpOy6ksFWCmSTQNe_KBO-eFPyINo4Ta8QncoeTg1ZoFhXVCwDmfXVg0xoOgbv9WWFMtyEbQjWUYwXCZjrvS0yABrwDZi5kKMRswqGMVKw4W1TG5lgALJ5XU/s1600/oggz.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD5EP620WoUl9Q3DkOMaSbmpOy6ksFWCmSTQNe_KBO-eFPyINo4Ta8QncoeTg1ZoFhXVCwDmfXVg0xoOgbv9WWFMtyEbQjWUYwXCZjrvS0yABrwDZi5kKMRswqGMVKw4W1TG5lgALJ5XU/s320/oggz.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Oggz is a rechargeable color-morphing egg! </span></div>
<div class="separator" style="clear: both; text-align: left;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2eNbgyRJE7zT7eZFq_jpX0HY3MnTB3fA8F89kzVIjsEtsDRyeB1LG5QgrS1Vz47C_mR_Jbg649h2Cz2JF8naAxgUopfL-9zqg3knKffO_0U-aDAEXji5pFCdIsn58cRClGKGCLPR4Q4Q/s1600/Rotoprism.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2eNbgyRJE7zT7eZFq_jpX0HY3MnTB3fA8F89kzVIjsEtsDRyeB1LG5QgrS1Vz47C_mR_Jbg649h2Cz2JF8naAxgUopfL-9zqg3knKffO_0U-aDAEXji5pFCdIsn58cRClGKGCLPR4Q4Q/s320/Rotoprism.jpeg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
The Rotoprism. You can change the light speed, and colors. </div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;">Infinity Mirror </span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMkMO95w1gzYO7M2XxuVRgjjDOdy8330gr7G15lC7vY6d6ZpIZy5QIP5FEYIA2q2UcOl4h-llDPvDRRgIKk67SoICVgVDaAr86OmmdchTZsbjNNE2y7SQ486AofLEogRzbX-5y3SCm1N8/s1600/infinity+mirror.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="309" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMkMO95w1gzYO7M2XxuVRgjjDOdy8330gr7G15lC7vY6d6ZpIZy5QIP5FEYIA2q2UcOl4h-llDPvDRRgIKk67SoICVgVDaAr86OmmdchTZsbjNNE2y7SQ486AofLEogRzbX-5y3SCm1N8/s320/infinity+mirror.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;">Bright Start Baby Light and Giggle Drum </span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsY2eEV9lSdF-48bUkOgjW-9slTkadW6TG_3J2Hb8qQ__7VTNIRheBtluPLU9cFRmC17t5XZJRmQZkXX2Srt1ciEFrmrn1rqnuqKP_cQeGARR4TULjCOS8oWvrCjeHyMi1H6Mk1sgqr7w/s1600/drum.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsY2eEV9lSdF-48bUkOgjW-9slTkadW6TG_3J2Hb8qQ__7VTNIRheBtluPLU9cFRmC17t5XZJRmQZkXX2Srt1ciEFrmrn1rqnuqKP_cQeGARR4TULjCOS8oWvrCjeHyMi1H6Mk1sgqr7w/s320/drum.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"> </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"> Aurora Master Ocean Light </span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUStwMOJf30oT4YqV-SxiSMZyPnmAbINmrk52NwlhRUvClENp_mPj7wLlpRUjacoAZ2d_6z8aX0BLvqdC2GLuIcsdG_Gv5Glk7SDGQYeAHYKCPMKimXB9EQQ1YYkxkN9xI258J1IxINWg/s1600/aurora.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUStwMOJf30oT4YqV-SxiSMZyPnmAbINmrk52NwlhRUvClENp_mPj7wLlpRUjacoAZ2d_6z8aX0BLvqdC2GLuIcsdG_Gv5Glk7SDGQYeAHYKCPMKimXB9EQQ1YYkxkN9xI258J1IxINWg/s320/aurora.jpg" width="304" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: Verdana, sans-serif;">This lights up the entire room/ceiling, and makes it look like you are in the ocean (if blue). The projector also changes colors, as you wish. </span></div>
<div>
<br /></div>
<br />
<span style="font-family: "verdana" , sans-serif;"><b><u>Sensory/touch </u></b></span><br />
<span style="font-family: "verdana" , sans-serif;"><b><u><br /></u></b>Body sock</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-oOl3Qrpf8PHku16NO4mPBXGbuMPVhd20qCUp_aYdfm_svgZMKkeo0ZQUp31VOdmfN6OiUV9XJoHVWkOUsDf5kRkhX0qv8yF-fPniLwoc3qzFTewSxVcDZ5MyW6ikii_LucIyUnQi0Yw/s1600/body+sock.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-oOl3Qrpf8PHku16NO4mPBXGbuMPVhd20qCUp_aYdfm_svgZMKkeo0ZQUp31VOdmfN6OiUV9XJoHVWkOUsDf5kRkhX0qv8yF-fPniLwoc3qzFTewSxVcDZ5MyW6ikii_LucIyUnQi0Yw/s1600/body+sock.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Finger paints</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTMIt1WtSPMA-Wwgj2S0CodZ8xfBaP-ws5L1STugpkFBfRQJdDUPsxLmUV6_edWd5Fc8lhWZqG3E_hF0PpdtQB2PP0REH7djxU-eSrQLHqj-F1laWdrjuS5k2Ar-dm9C5fpNknenW1jMU/s1600/finger+paints1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTMIt1WtSPMA-Wwgj2S0CodZ8xfBaP-ws5L1STugpkFBfRQJdDUPsxLmUV6_edWd5Fc8lhWZqG3E_hF0PpdtQB2PP0REH7djxU-eSrQLHqj-F1laWdrjuS5k2Ar-dm9C5fpNknenW1jMU/s1600/finger+paints1.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">A great tool for creative exploration, as well as, sensory touch input! </span></td></tr>
</tbody></table>
<br />
<br />
<span style="font-family: "verdana" , sans-serif;">Fisher Price Giggle Gang</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNDB_9GfWC7PLiTVfr2tggqSlFPwDPmbCt8NqOArAlze0OM0S0mL8YUXdzc_v_szGsgr_ZlJQ0CUHCmgMTKRs-rQfDpM-RvIbdp_Ilp1YYMmKDKS-AMXEPoxgZx9j6w4oLdeRNEAUyyzU/s1600/giggle+gang.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNDB_9GfWC7PLiTVfr2tggqSlFPwDPmbCt8NqOArAlze0OM0S0mL8YUXdzc_v_szGsgr_ZlJQ0CUHCmgMTKRs-rQfDpM-RvIbdp_Ilp1YYMmKDKS-AMXEPoxgZx9j6w4oLdeRNEAUyyzU/s1600/giggle+gang.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Great cause and effect toy, that giggles like a baby when ever so slightly touched! </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Moon Sand</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTKHnElt32nc9-W7MehKGFWg6MGSDLVMD7LhvwycIXEVjnuyW15JD9Gmg5SOnZznVT2D6n4Mj0XnI3hrIe7GLKvj0r1R5KxkFcA-NLer1euqSbbza8exm8J8rNztuE7aO8YLf0cFaxedY/s1600/moon+sand.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTKHnElt32nc9-W7MehKGFWg6MGSDLVMD7LhvwycIXEVjnuyW15JD9Gmg5SOnZznVT2D6n4Mj0XnI3hrIe7GLKvj0r1R5KxkFcA-NLer1euqSbbza8exm8J8rNztuE7aO8YLf0cFaxedY/s1600/moon+sand.jpg" /></a></div>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgN82_hzDpG3CC6Bgvhyci2TzZ0dUQ3n5OTQga0vXwCvbS4u7bO03WydTtgr1VZV1kzG0gIbujSK6clOkzA7kROREgHG9mMFl9L7IlnyBAU0BKvuuKSWvnC2_1kONewyeSN3QFprTRh6vY/s1600/moon+sand1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgN82_hzDpG3CC6Bgvhyci2TzZ0dUQ3n5OTQga0vXwCvbS4u7bO03WydTtgr1VZV1kzG0gIbujSK6clOkzA7kROREgHG9mMFl9L7IlnyBAU0BKvuuKSWvnC2_1kONewyeSN3QFprTRh6vY/s1600/moon+sand1.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Great sensory item, that never dries out! Look for Moon dough too! </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Kinetic Sand</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijVuPz5maaBbbhZlovCffFJQVm-Gr-9kn72cn1C1JHQQ-ozwEgYWWLxjaYs1Z1uD2-Y9XCzVFW0DiCA3HReiWbKBVWFOmNK9LcHNWJGSi10NMdxKTZjcElQ5fBFPG1BwvIDDGcEo-04uI/s1600/kinetic+sand.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijVuPz5maaBbbhZlovCffFJQVm-Gr-9kn72cn1C1JHQQ-ozwEgYWWLxjaYs1Z1uD2-Y9XCzVFW0DiCA3HReiWbKBVWFOmNK9LcHNWJGSi10NMdxKTZjcElQ5fBFPG1BwvIDDGcEo-04uI/s320/kinetic+sand.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Kinetic sand never dries out, doesn't leave residue on hands, and only sticks to itself! </span></div>
<div>
<br />
<br />
<br />
<span style="font-family: "verdana" , sans-serif;">oball rattle</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0XgJq1pfuASnASlL7eyNXAC3snwMZus5YeNnNsOKb_NGNm6oC3J1sjqNBf6RfSgpPu224z98XrCPkvF5nu98iPX2oLf2t1mb_vOyhAEAUH-B3yRJ08gdqtBS8q3qLV7Bp1efTfWngRSo/s1600/oball+trucks.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0XgJq1pfuASnASlL7eyNXAC3snwMZus5YeNnNsOKb_NGNm6oC3J1sjqNBf6RfSgpPu224z98XrCPkvF5nu98iPX2oLf2t1mb_vOyhAEAUH-B3yRJ08gdqtBS8q3qLV7Bp1efTfWngRSo/s1600/oball+trucks.jpg" /></a></div>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDJy-BrI_vNpuNuomNSNyDQCqi9zTebSCoXHATdBSqx7qURr4qYrCzvGBKQTIhbxdJFcQZ2TAuULz4W1EmkWnhuP93fd7j4BYRGqsTFLHdJzPj4dxjcy4sXrKHSkF3DTKhFsgsR0LROd0/s1600/oball.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDJy-BrI_vNpuNuomNSNyDQCqi9zTebSCoXHATdBSqx7qURr4qYrCzvGBKQTIhbxdJFcQZ2TAuULz4W1EmkWnhuP93fd7j4BYRGqsTFLHdJzPj4dxjcy4sXrKHSkF3DTKhFsgsR0LROd0/s1600/oball.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Easy to grasp rattles! </span></td></tr>
</tbody></table>
<br />
<br />
<span style="font-family: "verdana" , sans-serif;">Sensory Balls</span><br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCe-8OlFD4zlrTRkYzCylRbaVX2cF21lNcMaB-PSeuTbuU5wsVDqD9W0XJvpG5t2b6Of5ctT38o7bfdR2ly6UsRxxaUzavfiCrXJy02NmxA8CZ7xQ7EMCdZdMoCEeD7DVNFScF3ugd0tY/s1600/sensory+balls.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCe-8OlFD4zlrTRkYzCylRbaVX2cF21lNcMaB-PSeuTbuU5wsVDqD9W0XJvpG5t2b6Of5ctT38o7bfdR2ly6UsRxxaUzavfiCrXJy02NmxA8CZ7xQ7EMCdZdMoCEeD7DVNFScF3ugd0tY/s1600/sensory+balls.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Seonsory Balls mega shapes</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZkKvgqERJ_ZcPyF4LhOnMiubr_03U5VUFnWYdZDnv341P951iPifyKIqvu_wcD3YIoxMM76w-0kD4b7FkXP12lHjWHpqKyxNrGIjJZZpt_jXq0WVqeIqAAzS8vYWGR4e3YJxDxFy3pE8/s1600/sensory+shape+balls.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZkKvgqERJ_ZcPyF4LhOnMiubr_03U5VUFnWYdZDnv341P951iPifyKIqvu_wcD3YIoxMM76w-0kD4b7FkXP12lHjWHpqKyxNrGIjJZZpt_jXq0WVqeIqAAzS8vYWGR4e3YJxDxFy3pE8/s1600/sensory+shape+balls.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Site of Senses box~ <a href="http://siteofsenses.org/index.html">http://siteofsenses.org/index.html</a></span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_lPArGErJNxDLvVX3NFe5Z25NUd6gkdGnFq6F6XhTXhDwwCa-4QfEjtYDPW_IKIdIHAwMfK4OXmpK8XfF9EI0OrP_-RqEmj9GXVL-xq_wroo4sFT4TPlGzYEdZo9bVFn8IJ2DYhuKhAo/s1600/site+of+senses.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_lPArGErJNxDLvVX3NFe5Z25NUd6gkdGnFq6F6XhTXhDwwCa-4QfEjtYDPW_IKIdIHAwMfK4OXmpK8XfF9EI0OrP_-RqEmj9GXVL-xq_wroo4sFT4TPlGzYEdZo9bVFn8IJ2DYhuKhAo/s1600/site+of+senses.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif; font-size: x-small;">With resonating boards, the feels and hears every little movement they make! Great cause and effect learning box for visually and hearing impaired! </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Tactile touchable squares</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEil3Ouh1PQslWjKWes2NkjGtySXiI-0kPe-bFE6D3dgBv2w4z6YCHhJDxLbzce17Ak1sNzbpsG4iARxvi1faYinM_qkr0jsMMRSVpq8Ay4u8zn3309hFlzjilhI4T-skhJE-hSCIA7EAmY/s1600/tactile+touchable+squares.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEil3Ouh1PQslWjKWes2NkjGtySXiI-0kPe-bFE6D3dgBv2w4z6YCHhJDxLbzce17Ak1sNzbpsG4iARxvi1faYinM_qkr0jsMMRSVpq8Ay4u8zn3309hFlzjilhI4T-skhJE-hSCIA7EAmY/s1600/tactile+touchable+squares.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Wall of Senses~ <a href="http://siteofsenses.org/WoS.htm">http://siteofsenses.org/WoS.htm</a></span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsN8cAUeyC6EsobJgwFhuIafmF6Wl8vhdIKOWMibxLL1pV5R8zXF113dDX1Hx3022tiThej2LwLufVYxv-qNLAqKF5ONxHSBxd-mA6KZe-zbqfxW2kNoYIMt9x17zDNxy1NG37a5CCu0g/s1600/site+of+senses+wall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsN8cAUeyC6EsobJgwFhuIafmF6Wl8vhdIKOWMibxLL1pV5R8zXF113dDX1Hx3022tiThej2LwLufVYxv-qNLAqKF5ONxHSBxd-mA6KZe-zbqfxW2kNoYIMt9x17zDNxy1NG37a5CCu0g/s1600/site+of+senses+wall.jpg" /></a></div>
<div>
<br /></div>
<br />
<span style="font-family: "verdana" , sans-serif;"><b><u>Hearing/Music Therapy</u></b></span><br />
<span style="font-family: "verdana" , sans-serif;"><b><u><br /></u></b>
Mozart Magic Cube</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoh0ErGfMCGgtowmCgswQObZx3of0anXTaXH5PH4sXh_p-9ppQWXFpma9AGAtFK3pxuoDFAYb34LhhAYpwOPfTsrsIEFsaVwNwNW_F2oneBUdtgKDANuvNw2Ft8fusfy7SNytH2v6J5GY/s1600/mozart+magic+cube.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoh0ErGfMCGgtowmCgswQObZx3of0anXTaXH5PH4sXh_p-9ppQWXFpma9AGAtFK3pxuoDFAYb34LhhAYpwOPfTsrsIEFsaVwNwNW_F2oneBUdtgKDANuvNw2Ft8fusfy7SNytH2v6J5GY/s1600/mozart+magic+cube.jpg" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<span style="font-family: "verdana" , sans-serif;">Chimalong Deluxe</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi975EfehUR1ELbB2wbKpn02i_CoS5KuPEe73t045QiVFAlath0C3CQmXLBop24aRqGESikGsa2Z38Z5oLxBCC_A1Hymk_lnSs5uM9EKHNK5glJiA-lSqaVYIk6nXOYVCn_zVibjIjr-BE/s1600/chimalong+deluxe.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi975EfehUR1ELbB2wbKpn02i_CoS5KuPEe73t045QiVFAlath0C3CQmXLBop24aRqGESikGsa2Z38Z5oLxBCC_A1Hymk_lnSs5uM9EKHNK5glJiA-lSqaVYIk6nXOYVCn_zVibjIjr-BE/s1600/chimalong+deluxe.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Touch Magic Ocean Music School</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS_R7dMDH_nOC5bezmIBGYjgLb58phZa4lMGEU4FyRwXjg_VgwvSkPOsmG7gPa4BehGpm-tNgsYjMy9U7iqkU9BleSed4YHnaMinpZch1NVxQCQB6oxz8M72KaUqIObqV3QjNKScROH0w/s1600/touch+magic+ocean.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS_R7dMDH_nOC5bezmIBGYjgLb58phZa4lMGEU4FyRwXjg_VgwvSkPOsmG7gPa4BehGpm-tNgsYjMy9U7iqkU9BleSed4YHnaMinpZch1NVxQCQB6oxz8M72KaUqIObqV3QjNKScROH0w/s320/touch+magic+ocean.jpg" width="320" /></a></div>
<br />
<br />
<span style="font-family: "verdana" , sans-serif;">Ocean Wave Drum (Remo version)</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6rk1BSmA-uZ3trXKLJaqRmngYlx6iUOxId1KzmiJOd3NZMcaOwO_Y9bhb32HNLNYxSVSrB-r-kKAdpTC6PfNrRL0Bgpk0S_lWeSwBOc6BNNnL35_AMfyunlbrUFH7crFLPUsvFjvU3f0/s1600/remo+ocean+wave+drum.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6rk1BSmA-uZ3trXKLJaqRmngYlx6iUOxId1KzmiJOd3NZMcaOwO_Y9bhb32HNLNYxSVSrB-r-kKAdpTC6PfNrRL0Bgpk0S_lWeSwBOc6BNNnL35_AMfyunlbrUFH7crFLPUsvFjvU3f0/s1600/remo+ocean+wave+drum.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">B Picoolo Carousel Bells</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifp-NzAMMy8N79lYvTdKzUhdE1VqfpqD1GR5fvH0cpow6ICYnXee5T9Ig2RKKQ44EpmVJwfcmQI2DgV91cO3NREGfFJyP3Hes7jm8EswWclqcoN1bF9_XJB-RSMsevNZF2rSviod1L7j8/s1600/carosal+bells.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifp-NzAMMy8N79lYvTdKzUhdE1VqfpqD1GR5fvH0cpow6ICYnXee5T9Ig2RKKQ44EpmVJwfcmQI2DgV91cO3NREGfFJyP3Hes7jm8EswWclqcoN1bF9_XJB-RSMsevNZF2rSviod1L7j8/s1600/carosal+bells.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Musical hand pat bells</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5Gq0KT6ck6CBD0phhFJiQ6fWj-Djiy0SQP7k3AOUhfarFk5MEbW2Nr7Z7aaIm9I0noQ2b0o3jEX73oX6gULPwbeH3sraU8_h4RgtJ680YDRzBoZf9HfUQA1Hf9r75uSCaO41kk6qfhSU/s1600/pat+bells.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5Gq0KT6ck6CBD0phhFJiQ6fWj-Djiy0SQP7k3AOUhfarFk5MEbW2Nr7Z7aaIm9I0noQ2b0o3jEX73oX6gULPwbeH3sraU8_h4RgtJ680YDRzBoZf9HfUQA1Hf9r75uSCaO41kk6qfhSU/s1600/pat+bells.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Mini Rainmaker</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVYulv8Oq02KP4w-uluY8hlg5Aey2MKfVMlPhXWra-vBpCFwZt7iCaCCrKfSXKRqYdUHCIby_G2VWskhlOgs9xfLy5dHVSyO0PqJmhnt35dPengubJzfOsfPQfDBwxay8UpKL5yWFWRgA/s1600/mini+rain+maker.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVYulv8Oq02KP4w-uluY8hlg5Aey2MKfVMlPhXWra-vBpCFwZt7iCaCCrKfSXKRqYdUHCIby_G2VWskhlOgs9xfLy5dHVSyO0PqJmhnt35dPengubJzfOsfPQfDBwxay8UpKL5yWFWRgA/s1600/mini+rain+maker.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Fisher Price Crawl along drum</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLNB0eDL6ir1yRugS0XNRZciT-BfysdzX4Gm0KFMqIUO2kN6ncw3qv9Rg_BMZqvd75IOUXSVIoJTYPS3vQ2L5UYeOsdeN7KytgyZHgZ9lvlj6i5jJAZvhLnelISCZ4941dsQ1QFlf_H1M/s1600/drum1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLNB0eDL6ir1yRugS0XNRZciT-BfysdzX4Gm0KFMqIUO2kN6ncw3qv9Rg_BMZqvd75IOUXSVIoJTYPS3vQ2L5UYeOsdeN7KytgyZHgZ9lvlj6i5jJAZvhLnelISCZ4941dsQ1QFlf_H1M/s1600/drum1.jpg" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4RCFSdu_4FaLbXE1k6kEAN19qHhC9HrbjkqtBar_KpX0vtrBhe-Fa9JjM4uOYB-OsxIiUR6I-5YAxl9YuWoQ-JiKLsvlV6VDL52pmsyCrhbjgd-uxZdvvuLt5Vbrw04mksqgJiJlZQGI/s1600/drum.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4RCFSdu_4FaLbXE1k6kEAN19qHhC9HrbjkqtBar_KpX0vtrBhe-Fa9JjM4uOYB-OsxIiUR6I-5YAxl9YuWoQ-JiKLsvlV6VDL52pmsyCrhbjgd-uxZdvvuLt5Vbrw04mksqgJiJlZQGI/s1600/drum.jpg" /></a></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Playskool Rocktivity drum</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmY_eteUXml-gAslr2dvIo8T5-v0UP2GnIjWQ1juNsFt_20BpkdsuBRYAGFaTmCVdI0JtXuSqrsdHk4V0j8LWZbc6p9g0wi9lVAuRb51EJySMLmgbG6bXJJ_1VmPB5Zbee38Ci48sao7U/s1600/rocktivity+drum.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmY_eteUXml-gAslr2dvIo8T5-v0UP2GnIjWQ1juNsFt_20BpkdsuBRYAGFaTmCVdI0JtXuSqrsdHk4V0j8LWZbc6p9g0wi9lVAuRb51EJySMLmgbG6bXJJ_1VmPB5Zbee38Ci48sao7U/s1600/rocktivity+drum.jpg" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Sensitive touch drum </span></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Recordable books</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgGN1q8aEN76SUb2m8xp-OFIUfY00E_E7JqdP9rs9Bn7e5oEhELDcIQc0PfjRbt_q8dZ8oOqopx8bcVfhdJauHHWa3Dw2_-BcgKV_CU7EYnVi6RP-Gdm1hC1BHHI90DYdN63ObOr04YZg/s1600/a.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgGN1q8aEN76SUb2m8xp-OFIUfY00E_E7JqdP9rs9Bn7e5oEhELDcIQc0PfjRbt_q8dZ8oOqopx8bcVfhdJauHHWa3Dw2_-BcgKV_CU7EYnVi6RP-Gdm1hC1BHHI90DYdN63ObOr04YZg/s1600/a.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Record your voice, reading a story to your loved one! </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Ring around bells</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDFLLhsVqTzmUZEO6Ehlhr4aqNPdTRa_rNYWiLtmVhjgs2_UJSKiRovFFl8fjm43on793LTCID4fSnowqlHL2C2ml7cmEgzPpGenrvJQcB4m4qhhcMz6JKENwr-PFRY180CGaIZAIiz5Q/s1600/aa.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDFLLhsVqTzmUZEO6Ehlhr4aqNPdTRa_rNYWiLtmVhjgs2_UJSKiRovFFl8fjm43on793LTCID4fSnowqlHL2C2ml7cmEgzPpGenrvJQcB4m4qhhcMz6JKENwr-PFRY180CGaIZAIiz5Q/s1600/aa.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Push the yellow button on the base, and the bells go in a circle to make music against the hanging ball. This is one of Kayli's Favorite toys! </span></td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Tone Chimes</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQw179D5xu8zvPf1_5bpU2Eap01zrEqPdyty_F7xPSCqLljmpNddcJiXGukFhQYT3ywUU3da58WcaQMqm11rtwqYjrRJusd2g_PjTS2bgEsAHDYFm7aI4y6BebJ5XVTq6tXspDWuhyphenhyphenOEc/s1600/aaa.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQw179D5xu8zvPf1_5bpU2Eap01zrEqPdyty_F7xPSCqLljmpNddcJiXGukFhQYT3ywUU3da58WcaQMqm11rtwqYjrRJusd2g_PjTS2bgEsAHDYFm7aI4y6BebJ5XVTq6tXspDWuhyphenhyphenOEc/s1600/aaa.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif; font-size: x-small;">Another of Kayli's favorites! Tone chimes make the surrounding area vibrate! Such a calming affect for all to enjoy! </span></td></tr>
</tbody></table>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUtK8rdlI11kenUTYYTTVQgYbtL5ASUAU-uIkAc8bBcF-hbUe8mP2oA8v91nJC1fiXC3t8oyu3P3Pam0v4V2XQCtt7X672e0GsC7XwmzwC_CBUNaQkh6TDehCbli8TgLI1N_f7ZUiGnLc/s1600/aaaaa.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUtK8rdlI11kenUTYYTTVQgYbtL5ASUAU-uIkAc8bBcF-hbUe8mP2oA8v91nJC1fiXC3t8oyu3P3Pam0v4V2XQCtt7X672e0GsC7XwmzwC_CBUNaQkh6TDehCbli8TgLI1N_f7ZUiGnLc/s1600/aaaaa.jpg" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<span style="font-family: "verdana" , sans-serif;">Wrist bells</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRCUVuxMw-_5CJvCxKdmCjCDVQfL2h160kf9qslZUK-KrOIjdX5hV29EXZiIMV6RsZSPx9jVmcRmJDDtdatKwaBMAGvasMQtXB_AbU0oPpmiOUJtY6UyEPVCUQXRkSTVAwrTwt6xVjHzk/s1600/aaaaaa.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRCUVuxMw-_5CJvCxKdmCjCDVQfL2h160kf9qslZUK-KrOIjdX5hV29EXZiIMV6RsZSPx9jVmcRmJDDtdatKwaBMAGvasMQtXB_AbU0oPpmiOUJtY6UyEPVCUQXRkSTVAwrTwt6xVjHzk/s1600/aaaaaa.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Great cause and effect when a child moves their arm! </span></td></tr>
</tbody></table>
<span style="font-family: "verdana" , sans-serif;">Guiro</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnRQODyw3hdsFdfNDwcY-7it5rQF2pRC07j6S6cMqjG8hMzPzVh7g0shComphMd6JGzub267eUGj7Eoc9Ps2znWhIJWkNU0hx-4u54bgt549cNP1eH_IW20HSrsHIL-ivEJ7jstuFaLzw/s1600/fish.jpe" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnRQODyw3hdsFdfNDwcY-7it5rQF2pRC07j6S6cMqjG8hMzPzVh7g0shComphMd6JGzub267eUGj7Eoc9Ps2znWhIJWkNU0hx-4u54bgt549cNP1eH_IW20HSrsHIL-ivEJ7jstuFaLzw/s320/fish.jpe" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Hohner kids 8" plastic Guiro makes different tones, depending on where you rub the stick against it! </span></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: "verdana" , sans-serif;">Thunder Tube </span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjA8DBx28KGtGYS7ti2mGngzx7rPn5XfdRxMYq0CxDtCovJCPzi-EGskY2mZWOkGDkJ91eJLMNy8ecRv9LHq0bOwdLpY0m18Zmb523a507RDz1tUlFJR9NqNhimC_RZa3bxQo12WVZuTqE/s1600/Thunder+tube.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjA8DBx28KGtGYS7ti2mGngzx7rPn5XfdRxMYq0CxDtCovJCPzi-EGskY2mZWOkGDkJ91eJLMNy8ecRv9LHq0bOwdLpY0m18Zmb523a507RDz1tUlFJR9NqNhimC_RZa3bxQo12WVZuTqE/s1600/Thunder+tube.jpg" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
You can control the thunder! Produces deep, vibration sounds. </div>
<div class="separator" style="clear: both; text-align: left;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<b style="font-family: Verdana, sans-serif;"><u>Low tone play </u></b></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: "verdana" , sans-serif; text-align: center;">The Original Big Joe Bean Bag (sold at Walmart)</span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJgd3sPft0qiNMKG1TCJLeRp59hKOEtlENbvIkwEy24DZURdy3m2WMFVLQWsg28oJXQxdhWvfqd63fM0gFrRfztf3i95M2GOrLhow8kCyxghRLpA_HHS4tkNMLEvdorX7UfV9H1810M5o/s1600/Big+joe.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="207" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJgd3sPft0qiNMKG1TCJLeRp59hKOEtlENbvIkwEy24DZURdy3m2WMFVLQWsg28oJXQxdhWvfqd63fM0gFrRfztf3i95M2GOrLhow8kCyxghRLpA_HHS4tkNMLEvdorX7UfV9H1810M5o/s320/Big+joe.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: x-small;">This bag is a less expensive option for a crash pad. Price is around $40.</span></span></div>
<div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<br />
<br />
<span style="font-family: "verdana" , sans-serif;"><b><u><br /></u></b>Caterpillar musical rocker (with or without back support)</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZV10OSihm9Nysb6ZwowLVP9bnwuTzh0vxPCHjQPLbDsMycV_ZhHwOLTK7Tkn0T0uCjBNTZBA6tgwM6NDZ-68C3vR4wR7e_C-RrTKN9fdLKJDBTstOjdJHFlJ9GYUU7WAyjrhG-mjEYLg/s1600/a2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZV10OSihm9Nysb6ZwowLVP9bnwuTzh0vxPCHjQPLbDsMycV_ZhHwOLTK7Tkn0T0uCjBNTZBA6tgwM6NDZ-68C3vR4wR7e_C-RrTKN9fdLKJDBTstOjdJHFlJ9GYUU7WAyjrhG-mjEYLg/s320/a2.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Exercise ball (to sit or bounce on, or stand against)</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgydIK5yULBNo_6GDHtI_zpzmzynGZt4kW1ZDkgBOou2oMb-dPTEQmQY81M0-5VKJeRH-4h-mFdExrk_iPCGoEpcPa1hUdba3MHa5xzHtzaZa6mrmlYfDS46NkckM6Sz-_Yv8R-HhNL278/s1600/a3.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="315" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgydIK5yULBNo_6GDHtI_zpzmzynGZt4kW1ZDkgBOou2oMb-dPTEQmQY81M0-5VKJeRH-4h-mFdExrk_iPCGoEpcPa1hUdba3MHa5xzHtzaZa6mrmlYfDS46NkckM6Sz-_Yv8R-HhNL278/s320/a3.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Great for leaning against, standing upright, or for laying on top of and rolling! </span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<span style="font-family: "verdana" , sans-serif;"><br /></span></td></tr>
</tbody></table>
<span style="font-family: "verdana" , sans-serif;">Peanut Ball</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjk7fZqv__w8CrTMG9sUGoQrUlHxSDyv4fSpebFR-Mdf14ZIph-4JETPC2cqZpMbiucMv-of8IeCYSbZSQ8jxJSO-x7-KL4FPNKJjqEBKYTNWoeJqF0ReMFTkpweGGqAu5b8TybAf6kvEI/s1600/a4.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjk7fZqv__w8CrTMG9sUGoQrUlHxSDyv4fSpebFR-Mdf14ZIph-4JETPC2cqZpMbiucMv-of8IeCYSbZSQ8jxJSO-x7-KL4FPNKJjqEBKYTNWoeJqF0ReMFTkpweGGqAu5b8TybAf6kvEI/s320/a4.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif;">Great for straddling, or leaning over in a crawl position </span></td></tr>
</tbody></table>
<span style="font-family: "verdana" , sans-serif;">Zero Gravity Chair </span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZwTN69ttC-BFvU9iGZQhYxuWrWAoAlycZXuZDrGucTZAehtIkLgPDbKTOTFtus9QyhK1wr3EXiPSUWeFRzgUH9DCnWCuuFZxtnqzDtWHDM4ETtZhL4SW9Wy586E_m_gS3K_bSrGf6bPE/s1600/Zero.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZwTN69ttC-BFvU9iGZQhYxuWrWAoAlycZXuZDrGucTZAehtIkLgPDbKTOTFtus9QyhK1wr3EXiPSUWeFRzgUH9DCnWCuuFZxtnqzDtWHDM4ETtZhL4SW9Wy586E_m_gS3K_bSrGf6bPE/s320/Zero.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;">Hanging Chaise Lounge Chair </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6yNG5gNnAJzSn3AlpvxItZP6oPnkJHxglToKokQb1UMt3VAlfvpHvCx0V-jFQGrhuQptyKpkDTyj1Iv1irE53m0TeD-cQA0Vnb92W7Vy2lKm70T4zhd5RdxHmVWdMEqb1SuOfH2j98Nk/s1600/81areTYOAqL._AC_UL160_SR160%252C160_.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6yNG5gNnAJzSn3AlpvxItZP6oPnkJHxglToKokQb1UMt3VAlfvpHvCx0V-jFQGrhuQptyKpkDTyj1Iv1irE53m0TeD-cQA0Vnb92W7Vy2lKm70T4zhd5RdxHmVWdMEqb1SuOfH2j98Nk/s1600/81areTYOAqL._AC_UL160_SR160%252C160_.jpg" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;">Swing </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSS2kR0XjTPEvGUHZipD2Jlc2NMSQ1wpiquXC3OUH4uWiNZzy7HG01eNaPwYHc5pAK59eIdsuE9eIYCnoy9ux8oKO-0rik-kjC2sl5Mry9yLDz0GnNUcvrUqjB_fkSgQEPPyhDlx7AKSA/s1600/Swing.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSS2kR0XjTPEvGUHZipD2Jlc2NMSQ1wpiquXC3OUH4uWiNZzy7HG01eNaPwYHc5pAK59eIdsuE9eIYCnoy9ux8oKO-0rik-kjC2sl5Mry9yLDz0GnNUcvrUqjB_fkSgQEPPyhDlx7AKSA/s320/Swing.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
https://www.amazon.com/dp/B0018QEFRO/ref=wl_mb_recs_3_title $109 </div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;">Indoor Hammock C Stand </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijADK-F1S3WiM9bMnqfB58r4D877bj237shL-JjOLQBDl9QYfcUb-80U9YsofsTgUkF1U9ip7au9gh4LwxOM39tjV0OcAnIIqjif02RTxPlI_GURn9vBbBbrfMhGgt5OOvvsZqnExmua4/s1600/stand.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijADK-F1S3WiM9bMnqfB58r4D877bj237shL-JjOLQBDl9QYfcUb-80U9YsofsTgUkF1U9ip7au9gh4LwxOM39tjV0OcAnIIqjif02RTxPlI_GURn9vBbBbrfMhGgt5OOvvsZqnExmua4/s320/stand.jpeg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div>
<br />
<b><u>FINE MOTOR PLAY</u></b><br />
<br />
<br />
<span style="font-family: "verdana" , sans-serif;">Fur Friends</span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPY5A1KKrPrnCa3Jh1XyGY0zauQSaXCbH7Zd__kOPYsjggWWESzfE6VwyVMWZ4Aj4yXV6dv17sHSbIskLJ2iRr89kjqRUz3WTSWNEdf3Rzj5OWrHEKK73BhpPHgzuGdVGdHD3_yqwpmFA/s1600/a5.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPY5A1KKrPrnCa3Jh1XyGY0zauQSaXCbH7Zd__kOPYsjggWWESzfE6VwyVMWZ4Aj4yXV6dv17sHSbIskLJ2iRr89kjqRUz3WTSWNEdf3Rzj5OWrHEKK73BhpPHgzuGdVGdHD3_yqwpmFA/s320/a5.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Fur Real friends come in an assortment of animals. The cat is easy to pet (on back) which activates the cat to meow and walk. It's like a switch toy without a switch! It has an on/off button, so you could also attached a battery interceptor and use with a switch! </td></tr>
</tbody></table>
<br />
<span style="font-family: "verdana" , sans-serif;">Lamaze Garden Chime flowers</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhshFcD9MVqeydQeuoF8fRtlcLaF_5dSMwkyuuIcdfg_kh1Lwj8GI9k7aKE_r5rzGWlAA-WVBw7sdsaBHp9NOBGbPcQySuQ9Ha066ZM_5yX5daL40emTeLeUuKIlETgpZYcmCteqxwmbtc/s1600/a6.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhshFcD9MVqeydQeuoF8fRtlcLaF_5dSMwkyuuIcdfg_kh1Lwj8GI9k7aKE_r5rzGWlAA-WVBw7sdsaBHp9NOBGbPcQySuQ9Ha066ZM_5yX5daL40emTeLeUuKIlETgpZYcmCteqxwmbtc/s320/a6.jpg" width="320" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<span style="font-family: "verdana" , sans-serif;">V-tech Learn and Dance interactive zoo</span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZdL7UdmM0fN4QEdHJqg39n9xmEvJzaESbrc7-nJT1aBxne6MXq6Gnt0yOeyrRUgtUvusuy3xWrjupj2hLCtG_OoDaC0QOVDc6YAD86SIa1UdT8uOx4OGFLG5Ju-AF-hwFnqPSi6CZ17k/s1600/a8.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZdL7UdmM0fN4QEdHJqg39n9xmEvJzaESbrc7-nJT1aBxne6MXq6Gnt0yOeyrRUgtUvusuy3xWrjupj2hLCtG_OoDaC0QOVDc6YAD86SIa1UdT8uOx4OGFLG5Ju-AF-hwFnqPSi6CZ17k/s1600/a8.jpg" /></a><br />
<br />
<span style="font-family: "verdana" , sans-serif;">Penguin Race</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOAyy1H-nTuuDojguyAFqxJ-nInexL152g8gpWnFLvTV4qyi_Kee7F57NJAIRBwl2GUVI-tmBwZuo5_6tHoSlEPZFhMt37KFjIGLN5fB6sU2_Kiz3JhoouhsOc8YX7STsjBDYw5ti2G-w/s1600/penguin.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOAyy1H-nTuuDojguyAFqxJ-nInexL152g8gpWnFLvTV4qyi_Kee7F57NJAIRBwl2GUVI-tmBwZuo5_6tHoSlEPZFhMt37KFjIGLN5fB6sU2_Kiz3JhoouhsOc8YX7STsjBDYw5ti2G-w/s320/penguin.jpg" width="295" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Fun to watch, and great cause and effect, repetitive play! AND, you can connect it to a switch to activate! </span></div>
<br />
<br />
<br />
<span style="font-family: "verdana" , sans-serif;">Lamaze Totem Pole</span><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQvgxgZY4G7vSdfHkuCrzbmzZ7TivJfDEjgM_uACfwagpv-5Rd1zm9B9-FHHVIXsP3IC5kEK8jlipQhwB5lJema-yB9FaUEwv62iX4wc3EdMz6DXYWnYS2umByzHtSNL5MZphWHnhwkOo/s1600/stackers.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQvgxgZY4G7vSdfHkuCrzbmzZ7TivJfDEjgM_uACfwagpv-5Rd1zm9B9-FHHVIXsP3IC5kEK8jlipQhwB5lJema-yB9FaUEwv62iX4wc3EdMz6DXYWnYS2umByzHtSNL5MZphWHnhwkOo/s320/stackers.jpg" width="232" /></a></div>
<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Magnetic, easy to stack totem pole for practicing hand/eye coordination! The individual pieces also have different textures and crackle cause/effect. </span></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<b><u>ORAL MOTOR PLAY</u></b></div>
<div class="separator" style="clear: both; text-align: left;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: "verdana" , sans-serif;">Z-vibe</span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjImPNKMdWYBRWMHnU8iecb_eqWfjM6pCu9uEe-8UDR1attXZIr_AykDAdzGvbSids_PmUf5v6md-y1pJW_m1aGh3NQoMrRFwMuXT7WuqD6vYhyktxyG5YI6qbQkxrs-w1Ps-0eTBQT54o/s1600/Zvibe.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjImPNKMdWYBRWMHnU8iecb_eqWfjM6pCu9uEe-8UDR1attXZIr_AykDAdzGvbSids_PmUf5v6md-y1pJW_m1aGh3NQoMrRFwMuXT7WuqD6vYhyktxyG5YI6qbQkxrs-w1Ps-0eTBQT54o/s320/Zvibe.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "verdana" , sans-serif; font-size: x-small;">Ark's Z-vibe helps is an oral vibrator that gives awareness and sensations for oral stimulation. </span></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<br /></div>
<div class="separator" style="clear: both; text-align: left;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<br />
<br />
<br />
<br /></div>
</div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com1tag:blogger.com,1999:blog-1388997078122972684.post-46249706501473543192013-10-31T09:12:00.003-05:002013-11-01T10:18:28.105-05:00Happy Halloween!!!! <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuxKiFJtR7UA0g8k7PfhWeFdh4iPphmQ7D6dPkINz4Px4Le6RDxdrOjcADT2gyl6ZbJqC2gM-zYHymKwsRUJzIH6SAnVjRZrt4EqjrqW7rJWqGvfAYh8rn6vLtp79d4qozs9De4vXU9-A/s1600/DSCN7511.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuxKiFJtR7UA0g8k7PfhWeFdh4iPphmQ7D6dPkINz4Px4Le6RDxdrOjcADT2gyl6ZbJqC2gM-zYHymKwsRUJzIH6SAnVjRZrt4EqjrqW7rJWqGvfAYh8rn6vLtp79d4qozs9De4vXU9-A/s320/DSCN7511.JPG" width="240" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj80gmO7tB0fHTfR0knBUqtgxfEHCY6lItGiYol1KBGZ7oeKVfVGEyf46rCzRYXCMcc1eWc45ZQtf1rOYBzuPftZr-TqthCWeS0eGxGxkOIRRAQjpO2vpf3OpjUjdmIqe23WV6hWHv0UNw/s1600/DSCN7523.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj80gmO7tB0fHTfR0knBUqtgxfEHCY6lItGiYol1KBGZ7oeKVfVGEyf46rCzRYXCMcc1eWc45ZQtf1rOYBzuPftZr-TqthCWeS0eGxGxkOIRRAQjpO2vpf3OpjUjdmIqe23WV6hWHv0UNw/s320/DSCN7523.JPG" width="320" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9sEGoqXHzrzPLcdQdAS-RJXB5JYkZUTJ9QkVejHOr4epehBrL9-iFuu0xMP8ZnbwliIiPcmQI8njEZcDxY7zlfSCqTmpnxr4RCMT3Xl3etX4ll7n526BHTesgILzQXGPmf7-MDmfk3Lw/s1600/DSCN7529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9sEGoqXHzrzPLcdQdAS-RJXB5JYkZUTJ9QkVejHOr4epehBrL9-iFuu0xMP8ZnbwliIiPcmQI8njEZcDxY7zlfSCqTmpnxr4RCMT3Xl3etX4ll7n526BHTesgILzQXGPmf7-MDmfk3Lw/s320/DSCN7529.JPG" width="240" /></a></div>
<span style="background-color: orange; line-height: 17.99715805053711px;"><span style="font-family: Verdana, sans-serif;"><br /></span></span>
<span style="background-color: orange; line-height: 17.99715805053711px;"><span style="font-family: Verdana, sans-serif;"><br /></span></span>
<span style="background-color: orange; line-height: 17.99715805053711px;"><span style="font-family: Verdana, sans-serif;"><br /></span></span>
<span style="background-color: orange; line-height: 17.99715805053711px;"><span style="font-family: Verdana, sans-serif;">Happy Halloween!!!! Please be safe and drive slower throughout the day, as many kiddos have half a day of school. Please remember to think kindly of the kiddos with special needs/diets when you see them out for the exciting day of fun! If you don't have a special treat for them, a smile and a note with uplifting words of admiration and encouragement could be a treat too! More ideas for special t</span></span><span class="text_exposed_show" style="display: inline; line-height: 17.99715805053711px;"><span style="background-color: orange; font-family: Verdana, sans-serif;">reats include; Gluten free candies, sugar free candies, cheap sunglasses, trinkets from Oriental Trading, pencils, light up or textured bounce balls, small playdoh, etc It depends on the kiddo and their special needs, but those are some ideas. For Kayli, even a special note would be great! You can't please everyone, but I would definitely stay away from anything with nuts in them (many are allergic, and it can be a fatal contact if exposed to tree nuts).</span></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-52579841128872395152013-10-30T22:18:00.000-05:002013-10-30T22:51:01.789-05:00Seizures and a new direction for an uncommon diagnosis<div>
<br /></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">Even though Trisomy Syndromes are reportedly known for developmental delays (mental retardation), Kayli was born with a completely intact and typically functioning brain. Yep, you read it right...Kayli's brain was typically developed at birth, and her brain waves proved in normal range, with testing. At 4 months old, in a PICU (pediatric intensive care unit/room) after open heart surgery, Kayli had a cardiac arrest, with 32 minutes of anoxia (no oxygen, she died and came back to life). Although she survived, it was a rebirth for her in a sense, as we began a new journey of getting to know what adaptions Kayli thrives with, in her years of recovery. With the lack of oxygen, Kayli lost approximately 75% of her brain matter, and brain pathways, which resulted in seizures, or in explanation; a sudden disruption of the brain's normal electrical activity. </span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">Seizures come in many different presentations (from staring to stopping breathing). Make no mistake though, all seizures are harmful, because the abnormal electrical activity forms a new pathway leading easier access for more seizures/damage to the brain. A neurologist once told me to picture a brain as an un-mowed yard. If you mow the yard from point a to b diagonally across the lawn in an irregular pattern, and leave the rest of the yard un-mowed, the next time you mow, it would be easier to cut the grass in the pathway already made, than to cut in a systematic way to reach a well groomed lawn. During seizures, our electrical brain waves will take the path of least resistance. This enhances the re-occurance of abnormal brain pathways and an unfortunate opportunity of normal brain electrical activity to travel in an overused, unorganized pathway, rather than a more organized and functional pathway. The damage becomes irreversible, and what once started as staring seizures, can lead to abnormal brain electrical activity which may alter breathing reflexes. Seizures can be deadly. </span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">With seizures becoming commonplace, Kayli was diagnosed with Epilepsy. By definition, Epilepsy is a condition in which seizures are reoccurring. In being more specific of the type of seizure disorder Kayli has, under the umbrella of Epilepsy (seizure disorders in general), Kayli has Lennox Gestaut Syndrome, or LGS for short, which basically means a bunch of different types of seizures with no rhyme or reason. LGS is the most difficult seizure disorder to control. To get a more distinct picture of her brain pathways and this seizure disorder; picture a tangled ball of phone chargers, wires, headphones, gaming adapters, etc (we all have those in our homes, right?! lol). You could untangle one phone charger (with great stress, time, and exhaustion), only to find it doesn't have the functional end to it, and yet you'd still be staring down a large mound of wires jumbled together that go to all sorts of broken wires. Oh, and add in the fact that those wires are live and trying to turn something on, but instead are activating and conjointly turning on other wires that have no ends to them, thereby making irreversible dysfunctional brain pathways (see mowing the grass explanation above). </span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">In an attempt to stop the seizure activity, Kayli was first put on a medication, Phenabarbital (Phenobarb for short). The medication tired her immensely, and caused a gross overgrowth of her gums. She teethed in a typical milestone time frame, but although her upper teeth broke through the bone, they did not break through the overgrowth of gums. Since teeth grow until they touch other teeth, and her gum covered teeth are not able to touch each other, Kayli's upper jaw is growing upwards, and her jaw alignment is greatly affected. She is now an open mouth breather as her upper jaw is growing upwards searching for her bottom teeth. This change in jaw angle, is bringing the back of her jaw down to the back of her throat, thereby crowding her epiglottis function (tissues at the back of the throat that separate airway from esophagus). </span><br />
<span style="background-color: white;"><span style="font-family: Verdana, sans-serif;"><br /></span>
<span style="font-family: Verdana, sans-serif;">Another major side affect for all seizure medications, is "new or worsening of seizures". How ironic that is, since we utilize the medications to STOP seizures when in actuality, they may cause seizures?! No wonder it is so hard to find the right seizure control medication cocktail! It is true though, pick any seizure medication, and look for the clause in the long list of side effects. With the list of trialed and failed seizure medications in hand, we opted to find a less harmful way of helping control Kayli's seizures. </span></span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">The next (more natural) step in Kayli's journey to seizure control, was to place Kayli on the Ketogenic Diet. It is basically a diet that starves the brain of carbs (sugars) and alters the body function to use fats (Ketones) instead. While on the diet, Kayli continued with the seizure medications, and her seizures seemed to disappear. Although she was seizure free, she was never in Ketosis (her body had not switched to functioning off Ketones instead of Carbs) because her caloric intake was minimal (336 calories a day). She needed more volume/intake to reach the amount of Ketones to switch her body systems. Even out of Ketosis, the diet seemed to be working for her seizures, but it also almost killed her. We went through 3 Ketogenic teams to help monitor Kayli while on the diet, but all 3 teams failed Kayli. While on the diet, Kayli suffered with; starvation (she lost an extreme amount of weight and nutrients...her bones even became paper thin), de-compensated heart failure (not enough Potassium in the diet and she her heart was not able to compensate for the loss of electrolytes), and a lethal Potassium overdose that resulted in heart rates at 300 bpm (beats per minute), dropping to 30 bpm. The ER physicians stated Kayli's condition upon arrival was "incompatible with life"...nobody survives the lethal dose that was prescribed and administered to Kayli. After Kayli survived the 3rd life threatening affect of the Ketogenic diet, we dropped the Ketogenic diet, and found Kayli an new team of specialists! </span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">Fast forward 4 months, Kayli is now on Keppra and Vimpat (maker of Keppra but a stronger seizure medication). Kayli is having suspicious seizure activity now, but her seizures appear a little different clinically, now. She used to roll her eyes an her heart rate and/or oxygen saturations would drop low. Now, her arms go out straight, her eyes roll, and she seems to go in and out of the seizures quickly, as if in clusters up to 5 minutes. There are times when I talk to her, and tell her not to go into the seizure, and somehow she appears to be able to control it, and doesn't go into the seizure. This is very strange, because nobody can control the electrical charges of a seizure. </span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">Now that I've explained in depth, Kayli's seizure history, we have GREAT news of Kayli's near future!!! </span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">Kayli will see a Periodontist (gum specialist) tomorrow, to evaluate her gums, and hopefully to make plans of lasering them back. If her gums are not too overgrown, the Dr. will be able to laser them back in his office, with local numbing agents! If her gums are too much, it would cause great amounts of pain, and then we would go back to Kayli's cranial/facial dr to put her under anesthesia in an OR. Let's hope she is able to make plans for an office procedure! More on the plan, after tomorrow's office visit! </span></div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
</div>
<div>
<span style="background-color: white; font-family: Verdana, sans-serif;">Kayli went to her neurologist last week to discuss the new suspicious seizure activity. She has been straightening her arms, and rolling her eyes repeatedly for up to 5 minutes in what appears to be cluster seizures. We showed her neurologist this video at the tale end of what we thought may have been seizure activity. </span><br />
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span>
<br />
<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/8s2Kuzr4-Bc?feature=player_embedded' frameborder='0'></iframe></div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjX9vmwlEmCMVvvuzScVm80Qq2lgEt7-s8zyEMbeKcfqzeTS-RMiwyNahTtG3ld2eyEQerjHOcEFzBEZK_PrXhyphenhyphenZPrONkwAz6ghRjxsQR78eqcogbk42pNNdLn94-7AGL3XDxmg6ziox14/s1600/DSCN7404.MOV" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="background-color: white; color: black;"></span></a></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">Kayli's neurologist already suspected it was not seizure activity, but once he saw this video, he was even more sure Kayli was not presenting with new seizure activity, but rather having an episode of Hyperekplexia aka Startle Syndrome. </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">To confirm or deny Kayli has Hyperekplexia, she will undergo a 72 hour VEEG (video that tapes her clinically in conjunction with her brain wave activity) in our home. We will click a button when Kayli has these episodes, and the specialists will see if the documented EEG seizure activity coincides with these clinical symptoms. We expect they will not coincide with seizure activity, because twice with the old neurologist's VEEG results, we were confused as to how these episodes were not documented as seizures even though they clearly appeared to be, clinically. Hyperekplexia would explain that confusion of Kayli's prior results! Hyperekplexia would also explain how Kayli is able to control her seizures...she was calmed by my voice, and the extreme startling episode subsided. </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">The best news of the misdiagnosis in the suspicious seizure activity, is that Hyperekplexia does not cause permanent, irreversible damage to the brain like seizures do! We know Kayli DOES have a seizure disorder, but we do not see them clinically according to the previous VEEG's which means all these times we thought her brain was being damaged with seizures....it was likely, only the Startle Syndrome!! </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">We are just now learning about this disorder, and have asked Kayli's neurologist many questions already! </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">Q: If the suspicious neurological episodes aren't seizures, does that mean her seizures are under control? </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">A: Yes</span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">Q: If they are under control, and were before we increased her meds for these new suspicious neurological episodes, can we decrease her seizure medication again? </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">A: Yes</span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">Q: What can we do to help Kayli with Hyperekplexia? </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">A: Calm her out of the extreme startle state</span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">Q: Are there medications to help keep her Hyperekplexia episodes to a minimal? </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">A: Yes, Valium and other Benzodianzepines</span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">Q: Kayli is allergic to that drug family. Are there any other options?</span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;">A: Yes, there is another case where the boy had more episodes in the winter than the summer, so the family put warm blankets on him at the beginning of the episodes. It reduced his Hyperekplexia activity by 75%! You have to find what calms Kayli, and have it readily available to her in the event of a flare up. </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="background-color: white; font-family: Verdana, sans-serif;">We are researching more about the syndrome online, and have found that the syndrome is suspected to be a cause for babies dying of SIDS. Babies who have the syndrome tend to hold their breath during the extreme startling episode, and without breath, they die of asphyxiation. Fortunately, Kayli does not hold her breath while actively in a extreme startle state. It is in Kayli's best interest that we find a way to prevent Kayli from startling, by figuring out her triggers. It is also best that we find a way to calm her, once in the extreme startle state. </span></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="background-color: white; font-family: Verdana, sans-serif;">For more information of Hyperekplexia aka Startle Syndrome, please click here <a href="http://www.ncbi.nlm.nih.gov/pubmed/21496599">Startle Syndromes</a>. </span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<span style="background-color: white; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<br /></div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-63755538031646740002013-10-01T17:26:00.002-05:002013-10-01T17:26:24.057-05:00The Passy Muir (speaking valve)<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="line-height: 17.99715805053711px;">Kayli and I went to her ENT dr's appt this morning without a nurse. Niko (Kayli's brother) was late to school, and I had to pull over several times while driving, to suction Kayli, but WE MADE IT there and back!!! And the end result is worth all the challenges we had today!!! Kayli is now officially allowed to be on the Passy Muir all day (while awake and as tolerated), without oxygen! She will continue to be on the oxygen as needed, as well as when sleeping,</span><span class="text_exposed_show" style="display: inline; line-height: 17.99715805053711px;">but this is a wonderful step in the right direction!! Kayli's scope revealed larger tonsils and a minimally collapsing upper airway (mild Tracheomalacia), so decannulating (taking her trach out) is not an option that any of us are comfortable with doing at this point. We feel that although Kayli may be able to function without the trach, it would put her at higher risks, and make her life a lot harder when she is sick or having an operation. For now, Kayli has again surpassed all expectations!! One of our new goals for her is to be more consistent with swallowing (a reflex she lost completely during her anoxia/32 minutes of death). She has already relearned the swallowing reflex, but we are now going to push forward and try to help her be more consistent, with therapies. Swallowing could lead to 1. secretion control 2. eating 3. more control with her upper airway 4. talking 5. possibly hearing The ENT dr would like to do a scope while under sedation, but this would be an informative test, so we will wait until Kayli has another procedure, then will piggy back it. The ENT said that in time we may want to cap Kayli (put a cap on the trach, blocking the trach air exchange), but the Passy Muir will work with helping regain control, and teach Kayli how to strengthen her tone and vocal chords, so we put off the capping process for now. Overall, it was an informative, progressive, and encouraging appointment, while setting new goals for Kayli!</span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span class="text_exposed_show" style="display: inline; line-height: 17.99715805053711px;"><br /></span></span>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1w3iR6W7vI1DfuKz0PqGCl9pJL2MApq-F0bjZYbt-ZTq9RTYugzfrFN18rqsAkKqwLgSG5MmiLBRfQAczDz7HlG_aQqipk1LuZe5hLfdL3QqXqJJ2GjyfLQjYG7TlMo-lhRuhPlbngz0/s1600/DSCN9898.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1w3iR6W7vI1DfuKz0PqGCl9pJL2MApq-F0bjZYbt-ZTq9RTYugzfrFN18rqsAkKqwLgSG5MmiLBRfQAczDz7HlG_aQqipk1LuZe5hLfdL3QqXqJJ2GjyfLQjYG7TlMo-lhRuhPlbngz0/s320/DSCN9898.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The purple circular thing on her trach (inside the neck brace) is her Passy Muir Valve</td></tr>
</tbody></table>
<br /><div class="separator" style="clear: both; text-align: center;">
<br /></div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com1tag:blogger.com,1999:blog-1388997078122972684.post-69504450128383259882013-09-29T19:04:00.001-05:002013-09-29T19:04:34.907-05:00A new Hearing aid and FM system for Kayli<span style="background-color: #d9ead3; line-height: 17.99715805053711px;"><span style="color: #8e7cc3; font-family: Verdana, sans-serif;">Kayli is aided in her right ear, and profoundly deaf in her left ear (she is not aided in her left ear). Since she can only hear out of one ear, she is not able to balance/sort out sounds. This means she cannot tell what is background noise vs. someone talking to her. The hearing aid helps her hear tones she could not otherwise hear. The Roger Inspiro, FM system by Phonak, is used to help differentiate background and forefront sounds. This system allows her to clearly hear those who are talking to her, so not only does she hear articulation, but she is also able to focus on the one noise rather than all noises around her in the same decimal. The FM system has a microphone that is to be placed on the speaker (mom, nurse, teacher, siblings, etc) as close to their mouth as possible. Then Kayli wears the receiver (gray attachment on the hearing aid), to receive the speaker's sounds/words. This opens up a whole new world for Kayli! In most circumstances, the FM system is only allowed for in school services. This does not make sense to us, since Kayli (and all others) have opportunities to learn in all settings, not just school settings. Afterall, isn't that what homework is?! Now that Kayli has the FM system at home, she can continue to learn and hear at all times of the day! Kayli's FM system is the newest model/version, that works off gigabytes, not radio transmissions. :D</span></span><br />
<span style="background-color: #d9ead3; line-height: 17.99715805053711px;"><span style="color: #8e7cc3; font-family: Verdana, sans-serif;"><br /></span></span>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidwQP8nYd_kOc20_W6sa9lkC2QP2D1ck8I6WMyESA6016eazmzMEtCKC8TXjf_1BKPR89RumHr7Z8ezRtP47hmiTdt5g0d9NxkZLHDQ6L68cLp3kWztYukla2urpWeyyCLKN31uxeS2hU/s1600/DSCN9610.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidwQP8nYd_kOc20_W6sa9lkC2QP2D1ck8I6WMyESA6016eazmzMEtCKC8TXjf_1BKPR89RumHr7Z8ezRtP47hmiTdt5g0d9NxkZLHDQ6L68cLp3kWztYukla2urpWeyyCLKN31uxeS2hU/s320/DSCN9610.JPG" width="320" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJc_RTrNrsbSagpBAfgHuOFuzsFKO35vR6c_-a2TaHwuQR1xosj-thMKXKiX6PFFhJJ1C8sTtpFEE-yaTCYXoa0U4Vk4cWBhpm03n0IFnN0PQi8s2hnVhB2qsldCwn7iHlziWDvyiwLfk/s1600/DSCN9616.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJc_RTrNrsbSagpBAfgHuOFuzsFKO35vR6c_-a2TaHwuQR1xosj-thMKXKiX6PFFhJJ1C8sTtpFEE-yaTCYXoa0U4Vk4cWBhpm03n0IFnN0PQi8s2hnVhB2qsldCwn7iHlziWDvyiwLfk/s320/DSCN9616.JPG" width="320" /></a></div>
<span style="background-color: #d9ead3; line-height: 17.99715805053711px;"><span style="color: #8e7cc3; font-family: Verdana, sans-serif;"><br /></span></span>Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-41412408471949728352013-09-29T19:00:00.001-05:002013-09-29T19:00:52.553-05:00Kayli's spine surgeriesKayli did amazingly well with her series of corrective spine surgeries! Here is a recap of her spine odyssey by steps:<br />
Step 1. Implant the Halo, which consists of 8 screws placed into the outer layer of her skull.<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh42fDl2pYTy1ljgSUHf1Y6xEwAaeefoWyZMGlvyUJDyyi2V8jdK3jWhCoAOz48Jl1fiFDO5MUzzQTMwYZDLxmSToWARwUfs-Tr8VC-XrsWGcOjFiTcKr0Xx1b4aUqv4gjA7EBFtvq9A4k/s1600/spinehalo.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh42fDl2pYTy1ljgSUHf1Y6xEwAaeefoWyZMGlvyUJDyyi2V8jdK3jWhCoAOz48Jl1fiFDO5MUzzQTMwYZDLxmSToWARwUfs-Tr8VC-XrsWGcOjFiTcKr0Xx1b4aUqv4gjA7EBFtvq9A4k/s320/spinehalo.jpg" width="320" /></a></div>
<br />
Step 2. Go into traction, with weights up to 50% Kayli's body weight (13 lbs).<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUD4C3yKfVUgI0JXFEzqDmHNs-YuCfh3RFwCPgJa5K0AHtIcvZg_ifFuEWDQJMlwQ4ZZNkpk9WQGBAt_cK3fMeCccjwytu0n8bgeGgWwc0dXb8_iYy5XTEQ4IRxL2qXgbbgz9gC6RpWFU/s1600/spine3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUD4C3yKfVUgI0JXFEzqDmHNs-YuCfh3RFwCPgJa5K0AHtIcvZg_ifFuEWDQJMlwQ4ZZNkpk9WQGBAt_cK3fMeCccjwytu0n8bgeGgWwc0dXb8_iYy5XTEQ4IRxL2qXgbbgz9gC6RpWFU/s320/spine3.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Step 3. Spine surgery to release muscles, tendons, break thoracic spine fusions, fuse screws to pelvis, and place Mersilene tape in preparation for 3rd surgery. Kayli was expected to need 4-6 units of blood for transfusion, but clotted so well on her own, that she only need apprx 1.5 units of blood transfused! </div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Step 4. Go back into traction to correct more since the self fusions were released. </div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Step 5. Luque Trolley technique growth rods placed</div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Step 6. Bracing system and recovery </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFlLSGeMsySJkjW3VDe7MaFYNbmQ7OZebxmirdIBvlCacovJJO9KFxEirID4xjxajg_1inCB6nBnKrtMMwV1fwsw6j_wWEHIHOv1PTba0UOaAaC9VajuqLiOGjNG7yjYZgm7yI_ZcyZMo/s1600/spine+after+3rd+surgery.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFlLSGeMsySJkjW3VDe7MaFYNbmQ7OZebxmirdIBvlCacovJJO9KFxEirID4xjxajg_1inCB6nBnKrtMMwV1fwsw6j_wWEHIHOv1PTba0UOaAaC9VajuqLiOGjNG7yjYZgm7yI_ZcyZMo/s320/spine+after+3rd+surgery.jpg" width="320" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Kayli has recovered extraordinarily well, and was released from the hospital, only 8 days after her final spine surgery! </div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Kayli is now at home and uses her TLSO (back) and Aspen collar (neck) braces while sitting up, and the Aspen (neck) collar when laying down. Her spine currently has a dressing on it, but she has not needed any cleaning for her incision because the surgeon glued her outer incision shut. </div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHMJvbEgxS0tQT-JPgBuAPX2oGPAguoJzryMk9veIzlE_3Xb3FC6x6mvyLMfV7cQnzOneFKD97n3Z-p4wbaa-TQ2SdTPf_LIcqOPtH-1KF6wdJA3U7boYbmqxuQWQXL9kJCF93nfvXqmg/s1600/DSCN9609.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHMJvbEgxS0tQT-JPgBuAPX2oGPAguoJzryMk9veIzlE_3Xb3FC6x6mvyLMfV7cQnzOneFKD97n3Z-p4wbaa-TQ2SdTPf_LIcqOPtH-1KF6wdJA3U7boYbmqxuQWQXL9kJCF93nfvXqmg/s320/DSCN9609.JPG" width="240" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Kayli was even feeling well enough to go to the pumpkin farm just weeks after the spine surgeries! </div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUoz_ZFUScitL0fS7Z22w0QPSAwtrlmN1bsYM1pR723lXLMh_PS-uA6md5owP9E0lkKe7dZ2XUhwvH4lpg_4ItAdCjV9IzQtTWF61QAvuyLCHHQNKMM9cgIPnGzxLgq80o-DgSphngOrg/s1600/DSCN9739.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUoz_ZFUScitL0fS7Z22w0QPSAwtrlmN1bsYM1pR723lXLMh_PS-uA6md5owP9E0lkKe7dZ2XUhwvH4lpg_4ItAdCjV9IzQtTWF61QAvuyLCHHQNKMM9cgIPnGzxLgq80o-DgSphngOrg/s320/DSCN9739.JPG" width="240" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKZWysOuIc5sVvKx5NPxxEPtG5GU8Wkhhf2PKxuzzXENY1WagjNgfg1GgKXDz_YmDbLexsqpcEnSD5NGim1vv-5Ps3VtaizDLFW0FcfcluQKrYSaaKyJpYgEwflvp3pstAdL24BxmJawU/s1600/DSCN9723.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKZWysOuIc5sVvKx5NPxxEPtG5GU8Wkhhf2PKxuzzXENY1WagjNgfg1GgKXDz_YmDbLexsqpcEnSD5NGim1vv-5Ps3VtaizDLFW0FcfcluQKrYSaaKyJpYgEwflvp3pstAdL24BxmJawU/s320/DSCN9723.JPG" width="240" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<br />Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com0tag:blogger.com,1999:blog-1388997078122972684.post-39015095861573215112013-09-02T09:52:00.004-05:002015-02-11T06:30:12.476-06:00Trisomy Bloggin'<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;">
Trisomy Bloggin' compiles a list of trisomy family blog spots. We are not responsible for any information shared on any of these sites. Please feel free to contact us is you would like to be added to or taken off the list of blogs provided on this page. Thank you, and enjoy reading about other families who have a loved one, with trisomy! <span style="font-weight: normal;"> </span></span><br />
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;"><br /></span></u>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;">Trisomy 4</span></u><br />
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;"><br /></span></u>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;">Jackson~ </span></u><a href="http://www.microwavesrectanglesandellen.blogspot.com/"><span style="background-color: #d9ead3; font-family: Verdana, sans-serif;">http://www.microwavesrectanglesandellen.blogspot.com/</span></a><br />
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;"><br /></span></u>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;">Trisomy13</span></u><br />
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;"><br /></span></u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;">Arianna~ </span><span style="line-height: 12.727272033691406px;">Ariannajoliesnell.blogspot.com</span></span><br />
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif; font-size: small;"><br /></span></span>
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif; font-size: small;">Asher~</span><span style="font-family: Verdana, sans-serif;"><a href="http://babyasher.blog.com/ashers-diagnosis/">http://babyasher.blog.com/ashers-diagnosis/</a><span style="font-size: small;"> </span></span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;"><br /></span><span style="font-size: small;">Cati~</span></span><a href="http://farasastieingeri.wordpress.com/"><span style="background-color: #d9ead3; font-family: Verdana, sans-serif;">http://farasastieingeri.wordpress.com/</span></a><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"> </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;"><br /></span></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;">Dalton~</span><span style="font-size: small;"> </span><a href="http://devotionstodalton.blogspot.com/">http://devotionstodalton.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif; font-size: small;"><br /></span><span style="font-family: Verdana, sans-serif;"><span style="font-size: small;">Elijah~</span></span><span style="font-family: Verdana, sans-serif;"><a href="http://www.embracingelijah.com/2010/01/feeling-guilty.html">http://www.embracingelijah.com/2010/01/feeling-guilty.html</a><span style="font-size: small;"> </span></span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;"><br /></span>
<span style="font-size: small;">Hallie~</span><a href="http://thelittlegreenfamily.blogspot.com/2011/06/our-baby-is-1-in-10000.html">http://thelittlegreenfamily.blogspot.com/2011/06/our-baby-is-1-in-10000.html</a><span style="font-size: small;"> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;"><br /></span><span style="font-size: small;">Jaxton~</span><a href="http://lisahusmann.wordpress.com/tag/trisomy-13/">http://lisahusmann.wordpress.com/tag/trisomy-13/</a><span style="font-size: small;"> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;"><br /></span>
<span style="font-size: small;">Jedidiah~ </span><a href="http://trisomyjourney.blogspot.com/">http://trisomyjourney.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;"><br /></span><span style="font-family: Verdana, sans-serif;">Joe~</span><span style="font-family: Verdana, sans-serif;"><a href="http://www.vickielinegar.com/p/blog-page.html">http://www.vickielinegar.com/p/blog-page.html</a> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
McKinley~ <a href="http://mckinleygrace.blogspot.com/">http://mckinleygrace.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;">Natali</span><span style="font-family: Verdana, sans-serif;">a~<a href="http://embracelifeonemomentatatime.blogspot.com/">http://embracelifeonemomentatatime.blogspot.com/</a> </span><span style="font-family: Verdana, sans-serif;"> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Noah~ <a href="http://treasuringlifesblessings.blogspot.com/">http://treasuringlifesblessings.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Porter~ <a href="http://lessonsfromportergray.blogspot.com/">http://lessonsfromportergray.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Quinn~ <a href="http://quinnsstory.blogspot.com/">http://quinnsstory.blogspot.com/</a></span><br />
<br />
<span style="background-color: #d9ead3; color: #0b5394; font-family: Verdana, sans-serif;">Santiago~ <a href="http://www.santiagosstory.blogspot.com/?fb_action_ids=161142387428373&fb_action_types=instapp%3Atake&fb_ref=ogexp&fb_source=other_multiline&action_object_map=%7B%22161142387428373%22%3A316129471860942%7D&action_type_map=%7B%22161142387428373%22%3A%22instapp%3Atake%22%7D&action_ref_map=%7B%22161142387428373%22%3A%22ogexp%22%7D">http://www.santiagosstory.blogspot.com/</a> </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Sephora~ <a href="http://sephoraanangelsjourney.wordpress.com/">http://sephoraanangelsjourney.wordpress.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<br />
<h3>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;">Trisomy 14</span></h3>
<div>
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;">Hannah~</span><span style="color: #351c75; font-family: Verdana, sans-serif;"> </span><span style="color: #351c75; font-family: Verdana, sans-serif;">http://theroyalrealmofprincessjunior.blogspot.com/</span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;"><br /></span></span>
<span style="color: #351c75; font-family: Verdana, sans-serif;"><span style="background-color: #d9ead3;"><b>Trisomy 16</b></span></span><br />
<span style="color: #351c75; font-family: Verdana, sans-serif;"><span style="background-color: #d9ead3;"><b><br /></b></span></span>
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;">Logan~http://loganstrisomy16.weebly.com/</span><span style="font-family: Verdana, sans-serif;"> </span></span></div>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;"><br /></span>
<span style="font-size: small;"><b>Trisomy 18</b></span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><span style="font-size: small;"><br /></span>
</span><br />
<div>
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;">Aaron~ </span><a href="http://compatiblewithjoy-trisomy18.blogspot.com/"><span style="font-family: Verdana, sans-serif;">http://compatiblewithjoy-trisomy18.blogspot.com/</span></a></span><br />
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;"><br /></span><span style="color: #351c75; font-family: Verdana, sans-serif;">Abigail~ </span><a href="http://ourjourneywitht18.blogspot.com/"><span style="color: #351c75; font-family: Verdana, sans-serif;">http://ourjourneywitht18.blogspot.com/</span></a></span><br />
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;"><br /></span><span style="color: #351c75; font-family: Verdana, sans-serif;">Allie~</span><a href="http://proverbs31girl.com/?p=1718"><span style="color: #351c75; font-family: Verdana, sans-serif;">http://proverbs31girl.com/?p=1718</span></a><span style="color: #351c75; font-family: Verdana, sans-serif;"> </span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;"><br /></span></span>
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;">Amanda~ </span><span style="color: #351c75; font-family: Verdana, sans-serif;">http://capebretondoula.blogspot.com/2009/02/amanda-story-trisomy-18_27.html</span></span><br />
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;"><br /></span></span>
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;">Amanda~ </span><span style="color: #351c75; font-family: Verdana, sans-serif;">http://mamamanuscriptsplace.blogspot.com/2009/02/amanda-story-trisomy-18.html</span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Annabel~<a href="http://annabelgrace.blogspot.com/">http://annabelgrace.blogspot.com/</a> </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Battley~<a href="http://candturkey.blogspot.com/p/our-story.html">http://candturkey.blogspot.com/p/our-story.html</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;">Brandon~</span><span style="font-family: Verdana, sans-serif;"><a href="http://www.brandonsmt18journey.com/blog.html">http://www.brandonsmt18journey.com/blog.html</a> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Caleb~<a href="http://calebalex.blogspot.com/">http://calebalex.blogspot.com/</a> </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Copeland~ <a href="http://conorbootheandgirls.blogspot.com/search?updated-min=2011-01-01T00:00:00-06:00&updated-max=2012-01-01T00:00:00-06:00&max-results=1">http://conorbootheandgirls.blogspot.com/search?updated-min=2011-01-01T00:00:00-06:00&updated-max=2012-01-01T00:00:00-06:00&max-results=1</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">David~ <a href="http://davidandtrisomy18.blogspot.com/">http://davidandtrisomy18.blogspot.com/</a></span><br />
<br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Hannah~http://kwantfamilycorner.blogspot.com/</span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;">Jack~</span><a href="http://adventuresofjackandme.wordpress.com/2013/03/18/trisomy-18-awareness-day/"><span style="font-family: Verdana, sans-serif;">http://adventuresofjackandme.wordpress.com/2013/03/18/trisomy-18-awareness-day/</span></a><span style="font-family: Verdana, sans-serif;"> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Jacob~ <a href="http://fahmer.blogspot.com/">http://fahmer.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Johnathon~ http://jonathanjarededwards.blogspot.com</span><br />
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;"><br />Julia~</span><span style="font-family: Verdana, sans-serif;"><a href="http://jennychildress.blogspot.com/2013/03/trisomy-18-awareness-day.html">http://jennychildress.blogspot.com/2013/03/trisomy-18-awareness-day.html</a> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Kayden~<a href="http://hopeintrisomy18.blogspot.com/">http://hopeintrisomy18.blogspot.com/</a> </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Kayli~ <a href="http://trisomy18.blogspot.com/">http://trisomy18.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;">Keren~</span><a href="http://kerenowens.com/blog/"><span style="font-family: Verdana, sans-serif;">http://kerenowens.com/blog/</span></a><span style="font-family: Verdana, sans-serif;"> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Lachlan~<a href="http://lachlanandt18.blogspot.com/p/trisomy-blogs.html">http://lachlanandt18.blogspot.com/p/trisomy-blogs.html</a> </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Lane~ <a href="http://lanesedwardssyndromejourney.blogspot.com/">http://lanesedwardssyndromejourney.blogspot.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;"><br />Lily~</span><span style="font-family: Verdana, sans-serif;"><a href="http://iseeloveblog.blogspot.com/">http://iseeloveblog.blogspot.com/</a></span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Lilly~ <a href="http://pray4lilly.blogspot.com/2012/01/trisomy-18-awareness-is-suddenly-up.html">http://pray4lilly.blogspot.com/2012/01/trisomy-18-awareness-is-suddenly-up.html</a> </span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Magdalena~ <a href="http://noahandjulieroberts.blogspot.com/">http://noahandjulieroberts.blogspot.com/</a></span><br />
<br />
<span style="background-color: #d9ead3; color: #674ea7; font-family: Verdana, sans-serif;">Mikayla~ <a href="http://meetingmikayla.blogspot.com/">http://meetingmikayla.blogspot.com/</a></span></div>
<div>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;">Nalah~ </span><a href="http://www.nalahsmith.blogspot.com/"><span style="color: #351c75; font-family: Verdana, sans-serif;">http://www.nalahsmith.blogspot.com/</span></a></span><br />
<span style="color: #351c75; font-family: Verdana, sans-serif;"><br /><span style="background-color: #d9ead3;">Nolan~</span></span><span style="background-color: #d9ead3; font-family: Verdana, sans-serif;"><a href="http://www.nolansmiracleoflife.blogspot.com/">http://www.nolansmiracleoflife.blogspot.com/</a><span style="color: #351c75;"> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Nora~ <a href="http://noraroseyusko.com/">http://noraroseyusko.com/</a></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Poppy~ http://poppyjoy.blogspot.com</span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Rebekah~<a href="http://buddzoo.blogspot.com/">http://buddzoo.blogspot.com/</a></span><br />
<br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Rowan Margaret~ http://nblo.gs/JqFeY</span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #0b5394; font-family: Verdana, sans-serif;">Samuel~ <a href="https://sites.google.com/site/adcetcetera/">https://sites.google.com/site/adcetcetera/</a> </span><br />
<span style="background-color: #d9ead3; color: #351c75;"><span style="font-family: Verdana, sans-serif;"><br /></span><span style="font-family: Verdana, sans-serif;">Sloane~</span><span style="font-family: Verdana, sans-serif;"><a href="http://mynameissloaneelisabeth.blogspot.com/2012/11/trisomy-18.html">http://mynameissloaneelisabeth.blogspot.com/2012/11/trisomy-18.html</a> </span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br />
Sydney~ <a href="http://amazingsydneygrace.blogspot.com/">http://amazingsydneygrace.blogspot.com/</a></span><br />
<br />
<span style="background-color: #d9ead3;"><span style="color: #351c75; font-family: Verdana, sans-serif;">Talia~ </span><span style="color: #351c75; font-family: Verdana, sans-serif;">http://miracle-talia.blogspot.com/</span></span><br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Vivien~ http://merry-musings.blogspot.com/</span><br />
<br />
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;">Zane~ <a href="http://www.mylifewithzane.blogspot.com/">http://www.mylifewithzane.blogspot.com/</a></span></div>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;"><br /></span></u>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;">Trisomy 21</span></u><br />
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;"><br /></span></u>
<span style="background-color: #d9ead3;"><u><span style="color: #351c75; font-family: Verdana, sans-serif; font-size: small;">Pip~ </span></u><span style="color: #351c75; font-family: Verdana, sans-serif;"><u>http://www.happysoulproject.com/</u></span></span><br />
<div>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></div>
<div>
<span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></div>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif; font-size: small;"><br /></span></u>
<br />
<div>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></u></div>
<div>
<br /></div>
<div>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></u></div>
<div>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></u></div>
<div>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></u></div>
<div>
<u><span style="background-color: #d9ead3; color: #351c75; font-family: Verdana, sans-serif;"><br /></span></u></div>
<div>
<br /></div>
Kayli is Loving Life Trisomy Style!!!http://www.blogger.com/profile/06064497403668311159noreply@blogger.com1