Kayli is Loving Life Trisomy Style!!!
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Kayli, beyond her trisomy diagnosis
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Tuesday, August 25, 2015
When she is in heaven
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When she is in heaven Our daughter was deemed to die, before she was even born, with Trisomy 18. We fought an uphill battle, fighting ...
Thursday, January 22, 2015
Resources to share with,for, and help a grieving family
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Public Friends Only Me Custom Status updates T18 family See all lists... Cary, Illinois Area Illinois special needs friends Anoxia Trach...
2 comments:
Tuesday, December 16, 2014
Kayli is not guaranteed medical treatments, as you are.
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We were recently on a family retreat in KY (about 8 hours from home), when Kayli got seriously ill. On our long way home, we bagged he...
2 comments:
Tuesday, November 11, 2014
Illinois Resources
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Some of the following resources are restricted to certain areas of Illinois. Some of the following resources are outside of state funding ...
Sunday, November 9, 2014
Transitioning to Home Care, Equipment and Supplies
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Transitioning to Home Care series While it is exciting to be leaving the hospital for the first time with your complex child, it can be ov...
Monday, September 8, 2014
Conformable casts
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Kayli has had 3 surgeries to correct her club feet with tenatomies and joint contracture releases, but with each surgery once she was out of...
1 comment:
Sunday, July 6, 2014
Therapies for brain injuries/developmental delays
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Kayli sustained trauma to her brain, at 4 months old, when she passed away for 32 minutes, in a PICU room, 8 hours after open heart surgery....
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