Kayli is Loving Life Trisomy Style!!!

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Showing posts with label hope. Show all posts

Showing posts with label hope. Show all posts

Saturday, March 8, 2014

Trisomy Awareness, looking beyond a diagnosis

Trisomy can be a devastating diagnosis, especially when your loved one is first diagnosed. We, as Kayli's parents, worried that we did s...

Sunday, September 1, 2013

All about Kayli, looking beyond her trisomy diagnosis

All about Kayli, looking beyond her trisomy diagnosis Life Nickname~ Sweet Pea, Princess, Ms Thang Song~ This Little Light of Mine B...

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Kayli's Story

Kayli is Loving Life Trisomy Style!!!: Kayli was born with Trisomy 18, otherwise known as Edwards Syndrome. Kayli has been granted 8 miracles of life! The miracles include surviving: Full Trisomy 18, 32 minutes of anoxia, 7 weeks of Endocarditis and Sepsis without antibiotics, a perforated bowel, a surgically misplaced Gtube for 3 weeks, a pinhole sized airway for 3 weeks (resulted in a tracheostomy), a heart med overdose (10X the amount of Clonidine), a Potassium level of 8.2 (range is 3.5-5). Kayli has 3 older brothers, each with their own, rare disabilities. Claim'er: Although Kayli's pictures, videos, and information are public, it shall never be used against her. It is not permitted to use Kayli's information, videos, nor pictures, for sale or profit in any way. Kayli's Krusade is to openly share hope, knowledge, resources, acceptance, faith, and to spread God's testimony of Love. You are welcome to share her story with others, as long as the intent is for her purposes, and done with respect for Kayli, our child of God. ♥

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