Pages

▼
Saturday, March 31, 2012

Make a Wish Trip and Trisomy Parade

›
Kayli had a Make a Wish in FL this March!  She had many firsts, including first horse ride, first time on an amusement park ride, first RV r...
Wednesday, February 29, 2012

March is Trisomy Awareness Month!!! You can support awareness by posting this on your fb status and tell everyone you love someone who has Trisomy!!! Thank you!

›
‎"Parents are similar to a candle. God sends a child with Trisomy to be the flame that ignites the parent for a purpose! I am proud to ...
Sunday, January 29, 2012

Rick Santorum's Daughter, Bella

›
Kayli and Bella share the same syndrome, along with many other survivors!  There is a wide spectrum of children surviving with Trisomy 13 an...
Monday, January 23, 2012

›
I. am. exhausted.... I had people (dr's therapists, nurses, aids, etc) lining up outside Kayli's room at the hospital to speak with ...
2 comments:

Back in the Hospital

›
Kayli was admitted back into the hospital on Jan. 12th for Bladder Retention (she isn't voiding).  She is having further issues now, inc...
Saturday, January 7, 2012

Kayli is home!

›
Kayli's hospital stay was because she had an ear infection that wasn't treated properly by her ENT.  The bacteria grew to be a sinus...
Saturday, December 31, 2011

Kayli's New Year's Eve 2011 in the hospital

›
Kayli was admitted to the PICU at a local hospital because she was having heart rate drops and horrible seizures.  She has been in the hosp...