Kayli is Loving Life Trisomy Style!!!

Kayli will likely be going home tonight!!! We are waiting until Kayli's 9pm IV antibiotic medication to be given, then she will be relea...

I believe God is in our lives every moment of every day...if we allow Him to be. I talk to God, pray to God, and laugh with God throughout m...

The following, is an article in the Daily Herald today.  Professional pictures of Kayli with the Arch Bishop and Cardinal, Francis George,...

Did you know that the tv show, ER, featured a story of a 6 year old boy with Trisomy 18?!!  Click here to see the you tube video of t...

Kayli's blood and viral cultures came back..... everything was negative! Such wonderful, yet intriguing news! Since she is doing so...

Update on Kayli: Are you ready for some good news?!! We sure are! The kidney ultrasound came back negative of any issues (good news). The bl...

Kayli is on the vent settings now.  She did not tolerate the CPAP settings.  Kayli is very tired, and resting comfortably, on the life suppo...