Kayli is Loving Life Trisomy Style!!!

Kayli's hospital admission date is Wed. June 12th, 3 days after her Celebration of Life!   We have a LOT to do to get clearance for ...

We feel so much better after the surgical appt today!  There is a 90% chance she will make it through the surgery! <3  We will get a call...

Please pray for comfort, as we go forward with our decision of spine surgery for Kayli. I'm leaning on my life motto, "Do your best...

Kayli won a Rifton bike from Friendship Circle of Michigan! 

She's doing it again!  Defying all odds against her, Kayli can pull herself up to a sitting postion! <3  You tube, Kayli pulls hersel...

This is awesome!  For those who are in heart failure, lung failure, airway obstruction, etc...if this in injected, it makes oxygen in the bl...

Kayli has had an amazingly well week! We have been stretching out her back, and added a little extra water to her diet, which has been keepi...