Kayli is Loving Life Trisomy Style!!!

All about Kayli, looking beyond her trisomy diagnosis Life Nickname~ Sweet Pea, Princess, Ms Thang Song~ This Little Light of Mine B...

Kayli's spine surgery was a GREAT success!!! She was expected to lose 4+ units of blood, but actually only lost apprx 1 unit of blood!!!...

 The LORD is my Shepherd, I shall not  want.  He makes me lie down in green pastures,  He leads me beside quiet waters, He restores my sou...

A letter to my daughter, speaking of/to her heart August 17th 3013 Kayli, 4 years ago today, you were at the hospital for pre-surgi...

Siblings, Niko, Jake, and Kayli, at the car show  Kayli's surgery was pushed back yet another week last Tuesday, due to complication...

Kayli is pushing her head back, to get her hair wet! lol Kayli moving her legs on her own, in the Water Way Babies pool! S...

Moments of our lives (Our Kiddos' Bucket List) All four of our kiddos, including Kayli, have been given a fatal prognosis in at lea...