Kayli is Loving Life Trisomy Style!!!

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Sunday, September 29, 2013

A new Hearing aid and FM system for Kayli

Kayli is aided in her right ear, and profoundly deaf in her left ear (she is not aided in her left ear). Since she can only hear out of one ...

Kayli's spine surgeries

Kayli did amazingly well with her series of corrective spine surgeries! Here is a recap of her spine odyssey by steps: Step 1. Implant the ...

Monday, September 2, 2013

Trisomy Bloggin'

Trisomy Bloggin' compiles a list of trisomy family blog spots. We are not responsible for any information shared on any of these sites...

Sunday, September 1, 2013

Connect with other Trisomy Families on facebook

This page compiles a list of trisomy family facebook pages. We are not responsible for any information shared on any of these sites. Pleas...

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Kayli's Story

Kayli is Loving Life Trisomy Style!!!: Kayli was born with Trisomy 18, otherwise known as Edwards Syndrome. Kayli has been granted 8 miracles of life! The miracles include surviving: Full Trisomy 18, 32 minutes of anoxia, 7 weeks of Endocarditis and Sepsis without antibiotics, a perforated bowel, a surgically misplaced Gtube for 3 weeks, a pinhole sized airway for 3 weeks (resulted in a tracheostomy), a heart med overdose (10X the amount of Clonidine), a Potassium level of 8.2 (range is 3.5-5). Kayli has 3 older brothers, each with their own, rare disabilities. Claim'er: Although Kayli's pictures, videos, and information are public, it shall never be used against her. It is not permitted to use Kayli's information, videos, nor pictures, for sale or profit in any way. Kayli's Krusade is to openly share hope, knowledge, resources, acceptance, faith, and to spread God's testimony of Love. You are welcome to share her story with others, as long as the intent is for her purposes, and done with respect for Kayli, our child of God. ♥

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