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Sunday, June 15, 2014

When you feel you are drowning in life, don't worry, your lifeguard walks on water! Kayli's Potassium overdose

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Recalling the Potassium overdose, a year ago:  Kayli had some pre operative blood work done for her spine surgeries. We got a call from the...
Sunday, April 20, 2014

Kayli is 5 years old!!!!

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(April 21st) Happy 5th Birthday, Sweet Pea!!!  You did it!!! Thank you for every breath you give us, every pat on your butt. Thank for every...
1 comment:
Sunday, March 23, 2014

What is Kayli's prognosis?

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What is Kayli's prognosis? It is a question asked of me time and time again, because Kayli has a diagnosis of Trisomy 18 (a diagnosis...
4 comments:
Wednesday, March 12, 2014

A medical room, fit for a princess

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There are many things to consider when organizing your medical supplies in your household.  Space and financial resources ca...
Saturday, March 8, 2014

Trisomy Awareness, looking beyond a diagnosis

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Trisomy can be a devastating diagnosis, especially when your loved one is first diagnosed. We, as Kayli's parents, worried that we did s...
5 comments:
Sunday, February 23, 2014

Jacob made Kayli a platform swing

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Jacob made Kayli a platform swing!  We will be adding hooks to hang lights and toys/links to it for Kayli to look up at.  She also has a pro...
1 comment:
Wednesday, January 8, 2014

Special Needs iPad apps

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Kayli has several impairments, including (DD) developmental delays, (CVI) Cortical Visual Impairment, Hearing impaired, as well as some moto...
2 comments: