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Monday, September 8, 2014

Conformable casts

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Kayli has had 3 surgeries to correct her club feet with tenatomies and joint contracture releases, but with each surgery once she was out of...
1 comment:
Sunday, July 6, 2014

Therapies for brain injuries/developmental delays

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Kayli sustained trauma to her brain, at 4 months old, when she passed away for 32 minutes, in a PICU room, 8 hours after open heart surgery....
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Unconditional faith

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This past winter: As I drove alone to the 2 appts of the day, I struck up a conversation with God.  On my left were expensive houses with p...
2 comments:
Sunday, June 15, 2014

When you feel you are drowning in life, don't worry, your lifeguard walks on water! Kayli's Potassium overdose

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Recalling the Potassium overdose, a year ago:  Kayli had some pre operative blood work done for her spine surgeries. We got a call from the...
Sunday, April 20, 2014

Kayli is 5 years old!!!!

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(April 21st) Happy 5th Birthday, Sweet Pea!!!  You did it!!! Thank you for every breath you give us, every pat on your butt. Thank for every...
1 comment:
Sunday, March 23, 2014

What is Kayli's prognosis?

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What is Kayli's prognosis? It is a question asked of me time and time again, because Kayli has a diagnosis of Trisomy 18 (a diagnosis...
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Wednesday, March 12, 2014

A medical room, fit for a princess

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There are many things to consider when organizing your medical supplies in your household.  Space and financial resources ca...