Kayli is Loving Life Trisomy Style!!!
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Kayli, beyond her trisomy diagnosis
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Tuesday, November 11, 2014
Illinois Resources
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Some of the following resources are restricted to certain areas of Illinois. Some of the following resources are outside of state funding ...
Sunday, November 9, 2014
Transitioning to Home Care, Equipment and Supplies
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Transitioning to Home Care series While it is exciting to be leaving the hospital for the first time with your complex child, it can be ov...
Monday, September 8, 2014
Conformable casts
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Kayli has had 3 surgeries to correct her club feet with tenatomies and joint contracture releases, but with each surgery once she was out of...
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Sunday, July 6, 2014
Therapies for brain injuries/developmental delays
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Kayli sustained trauma to her brain, at 4 months old, when she passed away for 32 minutes, in a PICU room, 8 hours after open heart surgery....
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Unconditional faith
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This past winter: As I drove alone to the 2 appts of the day, I struck up a conversation with God. On my left were expensive houses with p...
2 comments:
Sunday, June 15, 2014
When you feel you are drowning in life, don't worry, your lifeguard walks on water! Kayli's Potassium overdose
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Recalling the Potassium overdose, a year ago: Kayli had some pre operative blood work done for her spine surgeries. We got a call from the...
Sunday, April 20, 2014
Kayli is 5 years old!!!!
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(April 21st) Happy 5th Birthday, Sweet Pea!!! You did it!!! Thank you for every breath you give us, every pat on your butt. Thank for every...
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