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Tuesday, December 16, 2014

Kayli is not guaranteed medical treatments, as you are.

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We were recently on a family retreat in KY (about 8 hours from home), when Kayli got seriously ill.  On our long way home, we bagged he...
2 comments:
Tuesday, November 11, 2014

Illinois Resources

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Some of the following resources are restricted to certain areas of Illinois.  Some of the following resources are outside of state funding ...
Sunday, November 9, 2014

Transitioning to Home Care, Equipment and Supplies

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Transitioning to Home Care series While it is exciting to be leaving the hospital for the first time with your complex child, it can be ov...
Monday, September 8, 2014

Conformable casts

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Kayli has had 3 surgeries to correct her club feet with tenatomies and joint contracture releases, but with each surgery once she was out of...
1 comment:
Sunday, July 6, 2014

Therapies for brain injuries/developmental delays

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Kayli sustained trauma to her brain, at 4 months old, when she passed away for 32 minutes, in a PICU room, 8 hours after open heart surgery....
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Unconditional faith

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This past winter: As I drove alone to the 2 appts of the day, I struck up a conversation with God.  On my left were expensive houses with p...
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Sunday, June 15, 2014

When you feel you are drowning in life, don't worry, your lifeguard walks on water! Kayli's Potassium overdose

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Recalling the Potassium overdose, a year ago:  Kayli had some pre operative blood work done for her spine surgeries. We got a call from the...