Kayli is Loving Life Trisomy Style!!!

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Monday, May 20, 2013

Oklahoma tornado

Our thoughts and prayers go out to all those affected with the OK tornado. May the Lord comfort you and guide you through this devastating natural disaster. <3

Kayli is Loving Life Trisomy Style!!! at 7:36 PM

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Kayli's Story

Kayli is Loving Life Trisomy Style!!!: Kayli was born with Trisomy 18, otherwise known as Edwards Syndrome. Kayli has been granted 8 miracles of life! The miracles include surviving: Full Trisomy 18, 32 minutes of anoxia, 7 weeks of Endocarditis and Sepsis without antibiotics, a perforated bowel, a surgically misplaced Gtube for 3 weeks, a pinhole sized airway for 3 weeks (resulted in a tracheostomy), a heart med overdose (10X the amount of Clonidine), a Potassium level of 8.2 (range is 3.5-5). Kayli has 3 older brothers, each with their own, rare disabilities. Claim'er: Although Kayli's pictures, videos, and information are public, it shall never be used against her. It is not permitted to use Kayli's information, videos, nor pictures, for sale or profit in any way. Kayli's Krusade is to openly share hope, knowledge, resources, acceptance, faith, and to spread God's testimony of Love. You are welcome to share her story with others, as long as the intent is for her purposes, and done with respect for Kayli, our child of God. ♥

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Monday, May 20, 2013

Oklahoma tornado

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