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Saturday, April 21, 2012

Kayli and her Trisomy Friends were mentioned on the Disney Blog!!

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An excerpt from the blog: When we arrived at GKTW, we learned of a special guest for the evening, Kayli – a Wish child with the genetic co...

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3 years ago today...The preparations for a birth and a funeral were made.  The OR was waiting and we didn't know how long you would be ...
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Monday, April 2, 2012

Parade during the Trisomy Celebrations!

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Here is the link to the video of the Parade at Give Kids the World! :D  https://www.youtube.com/watch?v=o-RSyGFvHOw&context=C47a245cADvj...
Saturday, March 31, 2012

Make a Wish Trip and Trisomy Parade

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Kayli had a Make a Wish in FL this March!  She had many firsts, including first horse ride, first time on an amusement park ride, first RV r...
Wednesday, February 29, 2012

March is Trisomy Awareness Month!!! You can support awareness by posting this on your fb status and tell everyone you love someone who has Trisomy!!! Thank you!

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‎"Parents are similar to a candle. God sends a child with Trisomy to be the flame that ignites the parent for a purpose! I am proud to ...
Sunday, January 29, 2012

Rick Santorum's Daughter, Bella

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Kayli and Bella share the same syndrome, along with many other survivors!  There is a wide spectrum of children surviving with Trisomy 13 an...
Monday, January 23, 2012

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I. am. exhausted.... I had people (dr's therapists, nurses, aids, etc) lining up outside Kayli's room at the hospital to speak with ...
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