A new Hearing aid and FM system for Kayli

Kayli is aided in her right ear, and profoundly deaf in her left ear (she is not aided in her left ear). Since she can only hear out of one ear, she is not able to balance/sort out sounds. This means she cannot tell what is background noise vs. someone talking to her. The hearing aid helps her hear tones she could not otherwise hear. The Roger Inspiro, FM system by Phonak, is used to help differentiate background and forefront sounds. This system allows her to clearly hear those who are talking to her, so not only does she hear articulation, but she is also able to focus on the one noise rather than all noises around her in the same decimal. The FM system has a microphone that is to be placed on the speaker (mom, nurse, teacher, siblings, etc) as close to their mouth as possible. Then Kayli wears the receiver (gray attachment on the hearing aid), to receive the speaker's sounds/words. This opens up a whole new world for Kayli! In most circumstances, the FM system is only allowed for in school services. This does not make sense to us, since Kayli (and all others) have opportunities to learn in all settings, not just school settings. Afterall, isn't that what homework is?! Now that Kayli has the FM system at home, she can continue to learn and hear at all times of the day! Kayli's FM system is the newest model/version, that works off gigabytes, not radio transmissions. :D

Kayli's spine surgeries

Kayli did amazingly well with her series of corrective spine surgeries! Here is a recap of her spine odyssey by steps:
Step 1. Implant the Halo, which consists of 8 screws placed into the outer layer of her skull.

Step 2. Go into traction, with weights up to 50% Kayli's body weight (13 lbs).

Step 3. Spine surgery to release muscles, tendons, break thoracic spine fusions, fuse screws to pelvis, and place Mersilene tape in preparation for 3rd surgery. Kayli was expected to need 4-6 units of blood for transfusion, but clotted so well on her own, that she only need apprx 1.5 units of blood transfused! 

Step 4. Go back into traction to correct more since the self fusions were released. 

Step 5. Luque Trolley technique growth rods placed

Step 6. Bracing system and recovery 

Kayli has recovered extraordinarily well, and was released from the hospital, only 8 days after her final spine surgery! 

Kayli is now at home and uses her TLSO (back) and Aspen collar (neck) braces while sitting up, and the Aspen (neck) collar when laying down.  Her spine currently has a dressing on it, but she has not needed any cleaning for her incision because the surgeon glued her outer incision shut.  

Kayli was even feeling well enough to go to the pumpkin farm just weeks after the spine surgeries! 

Trisomy Bloggin'

Trisomy Bloggin' compiles a list of trisomy family blog spots.  We are not responsible for any information shared on any of these sites.  Please feel free to contact us is you would like to be added to or taken off the list of blogs provided on this page.  Thank you, and enjoy reading about other families who have a loved one, with trisomy!  

Trisomy 4

Jackson~ http://www.microwavesrectanglesandellen.blogspot.com/

Trisomy13

Arianna~ Ariannajoliesnell.blogspot.com

Asher~http://babyasher.blog.com/ashers-diagnosis/ 

Cati~http://farasastieingeri.wordpress.com/ 

Dalton~ http://devotionstodalton.blogspot.com/

Elijah~http://www.embracingelijah.com/2010/01/feeling-guilty.html 

Hallie~http://thelittlegreenfamily.blogspot.com/2011/06/our-baby-is-1-in-10000.html 

Jaxton~http://lisahusmann.wordpress.com/tag/trisomy-13/ 

Jedidiah~ http://trisomyjourney.blogspot.com/

Joe~http://www.vickielinegar.com/p/blog-page.html 

McKinley~ http://mckinleygrace.blogspot.com/

Natalia~http://embracelifeonemomentatatime.blogspot.com/  

Noah~ http://treasuringlifesblessings.blogspot.com/

Porter~ http://lessonsfromportergray.blogspot.com/

Quinn~ http://quinnsstory.blogspot.com/

Santiago~ http://www.santiagosstory.blogspot.com/ 

Sephora~ http://sephoraanangelsjourney.wordpress.com/

Trisomy 14

Hannah~ http://theroyalrealmofprincessjunior.blogspot.com/

Trisomy 16

Logan~http://loganstrisomy16.weebly.com/ 

Trisomy 18

Aaron~ http://compatiblewithjoy-trisomy18.blogspot.com/

Abigail~ http://ourjourneywitht18.blogspot.com/

Allie~http://proverbs31girl.com/?p=1718 

Amanda~ http://capebretondoula.blogspot.com/2009/02/amanda-story-trisomy-18_27.html

Amanda~ http://mamamanuscriptsplace.blogspot.com/2009/02/amanda-story-trisomy-18.html

Annabel~http://annabelgrace.blogspot.com/ 

Battley~http://candturkey.blogspot.com/p/our-story.html

Brandon~http://www.brandonsmt18journey.com/blog.html 

Caleb~http://calebalex.blogspot.com/ 

Copeland~ http://conorbootheandgirls.blogspot.com/search?updated-min=2011-01-01T00:00:00-06:00&updated-max=2012-01-01T00:00:00-06:00&max-results=1

David~ http://davidandtrisomy18.blogspot.com/

Hannah~http://kwantfamilycorner.blogspot.com/

Jack~http://adventuresofjackandme.wordpress.com/2013/03/18/trisomy-18-awareness-day/ 

Jacob~ http://fahmer.blogspot.com/

Johnathon~ http://jonathanjarededwards.blogspot.com

Julia~http://jennychildress.blogspot.com/2013/03/trisomy-18-awareness-day.html 

Kayden~http://hopeintrisomy18.blogspot.com/ 

Kayli~ http://trisomy18.blogspot.com/

Keren~http://kerenowens.com/blog/ 

Lachlan~http://lachlanandt18.blogspot.com/p/trisomy-blogs.html 

Lane~ http://lanesedwardssyndromejourney.blogspot.com/

Lily~http://iseeloveblog.blogspot.com/

Lilly~ http://pray4lilly.blogspot.com/2012/01/trisomy-18-awareness-is-suddenly-up.html 

Magdalena~ http://noahandjulieroberts.blogspot.com/

Mikayla~ http://meetingmikayla.blogspot.com/

Nalah~ http://www.nalahsmith.blogspot.com/

Nolan~http://www.nolansmiracleoflife.blogspot.com/ 

Nora~ http://noraroseyusko.com/

Poppy~ http://poppyjoy.blogspot.com

Rebekah~http://buddzoo.blogspot.com/

Rowan Margaret~ http://nblo.gs/JqFeY

Samuel~ https://sites.google.com/site/adcetcetera/ 

Sloane~http://mynameissloaneelisabeth.blogspot.com/2012/11/trisomy-18.html 

Sydney~ http://amazingsydneygrace.blogspot.com/

Talia~ http://miracle-talia.blogspot.com/

Vivien~ http://merry-musings.blogspot.com/

Zane~ http://www.mylifewithzane.blogspot.com/

Trisomy 21

Pip~ http://www.happysoulproject.com/

Connect with other Trisomy Families on facebook

This page compiles a list of trisomy family facebook pages.  We are not responsible for any information shared on any of these sites.  Please feel free to contact us is you would like to be added to or taken off the list of facebook pages provided on this page.  Thank you, and enjoy reading about other families who have a loved one, with trisomy! 

Trisomy 1 Families 


Zahli ~ https://www.facebook.com/Zahli.Kuelahway/timeline

Trisomy 2 Families

Ethan~ https://www.facebook.com/RaisingAwarenessForTrisomy2p?fref=pb&hc_location=profile_browser and https://www.facebook.com/Trisomy2p 

Trisomy 5 Families

Ava~ https://www.facebook.com/avagracemcintyre

Kinley~ https://www.facebook.com/PrayersForKinleyGrace/info

Naylah~ https://www.facebook.com/pages/Trisomy-5Q/670124469673440

Teria~ https://www.facebook.com/pages/Terias-Troopers/758528570896001

Trisomy 7 Families 

Jacob~ https://www.facebook.com/pages/Prayers-for-Jacob-Aiden-A-miracle-baby/174147066069537?fref=pb&hc_location=profile_browser

Miley~ https://www.facebook.com/Mileysmilestones

Trisomy 8 Families 

Aralyn~https://www.facebook.com/Aralyn.Faith.vs.Trisomy.8/about 

Jacob~ https://www.facebook.com/groups/343305099084313/

Kiley~https://www.facebook.com/pages/Hope-for-Miley-and-Kiley/178625815550225 

Martha~ https://www.facebook.com/thelifetransparent

Trisomy 9 Families

Annabeth~ https://www.facebook.com/OurRareMoonBaby/info

Cole~ https://www.facebook.com/22qt9autisimandcole

Gia~ https://www.facebook.com/OurWarriorPrincess?fref=pb&hc_location=profile_browser

Jude~ https://www.facebook.com/FightingParkinsonWithATrisomy9Child?fref=pb&hc_location=profile_browser

Kaleb~https://www.facebook.com/groups/183571068419623/

Lily-Grace~ https://www.facebook.com/lilygraceamanda

Maggi~ https://www.facebook.com/maggiblairfans?directed_target_id=443507989023130

Owen~ https://www.facebook.com/owenprst9m

Paige~ https://www.facebook.com/pages/Trisomy-9-Syndrome-Support/146502402132360?fref=pb&hc_location=profile_browser

Trisomy 11 Families

Jayden~ https://www.facebook.com/Trisomy11q12

Simon~ https://www.facebook.com/pages/Simons-Hands/289522724401772?id=289522724401772&sk=info

Trisomy 12 Families

Ally~ https://www.facebook.com/pages/Trisomy-12p-Parent-Support/281058741283?fref=pb&hc_location=profile_browser

Miley~ https://www.facebook.com/pages/Hope-for-Miley-and-Kiley/178625815550225

Terry~ https://www.facebook.com/Trisomy12AwarenessTerrysStory?fref=pb&hc_location=profile_browser

Trisomy 13 Families

Addison~https://www.facebook.com/armyaddisonquinn 

Alexander~https://www.facebook.com/alexandersawareness 

Allison~ https://www.facebook.com/LilaClaireSurvivingAndThrivingWithT18?fref=pb&hc_location=profile_browser

Angela~ https://www.facebook.com/prayersforbabyangela

Annablle~ https://www.facebook.com/Prayforannabelle

Audrey~ https://www.facebook.com/pages/Princess-Audrey/456980091034074

Audrey~ https://www.facebook.com/AudreysBlossoms.10

Ayvah~ https://www.facebook.com/prayforbabyayvah

Bay~ https://www.facebook.com/pages/Bays-little-chain-prayer-FT13/779608108718979

Blake~ https://www.facebook.com/pages/Prayers-for-baby-Blake-born-with-Trisomy13/657348164311044

Brielle~ https://www.facebook.com/hopeforbrielle?fref=ts

Brilen~ https://www.facebook.com/BrilenJamesJenkinsJourney?fref=pb&hc_location=profile_browser

Bud~ https://www.facebook.com/WithGODAllIsPossible.CaringForBud.Avon.NSP/info

Carter~ https://www.facebook.com/prayersforcarterlee

Cora~ https://www.facebook.com/pages/Cora-Lynns-Journey-Life-Beyond-Diagnosis-Trisomy-13-Miracle-Baby/631290203555011?fref=pb&hc_location=profile_browser  and https://www.facebook.com/pages/Cora-Lynns-Journey-Life-Beyond-Diagnosis-Trisomy-13-Miracle-Baby/454758517936176?fref=pb&hc_location=profile_browser

Corbin~ https://www.facebook.com/teambabycorbin?fref=pb&hc_location=profile_browser and https://www.facebook.com/prayersforcorbinmchenry

Dalton~ https://www.facebook.com/pages/Prayers-for-Dalton/119679351487872?fref=pb&hc_location=profile_browser

Delainey~ 
https://www.facebook.com/DelaineyLivingWithTrisomy13?fref=pb&hc_location=profile_browser

Dominic~ https://www.facebook.com/DominicsJourney

Elizabeth~ https://www.facebook.com/TheElizabethExperience

Evelyn~ https://www.facebook.com/pages/Prayers-For-Evelyn/117362895109949?fref=pb&hc_location=profile_browser

Freya~ https://www.facebook.com/pages/Freyas-Footprints/1655675121322911?fref=ts

Grayson~ https://www.facebook.com/Hopeforgrayson?fref=pb&hc_location=profile_browser

Hadley~ https://www.facebook.com/pages/Pray-for-Hadley-Mae/289520334524139

Harlem~ (group) https://www.facebook.com/groups/1477603839156975/

Ivory ~ https://www.facebook.com/pages/Team-Ivory-MT13/517409641720767?ref=br_tf

Jameicka~ https://www.facebook.com/ILoveMySpecialNeedsChildren

John~https://www.facebook.com/groups/57563413486/

Julius~ https://www.facebook.com/JD.Journey?fref=ts

Kaitlyn~ https://www.facebook.com/KaitlynsMarch

Kaleb~https://www.facebook.com/kalebsjourney  

Kamry~ https://www.facebook.com/PrayForKamrySuperGirl?ref=profile

Katherine Ivy~ https://www.facebook.com/HopeForKatherineIvy?fref=pb&hc_location=profile_browser

Kylie~ https://www.facebook.com/pages/Team-Kylie-T-13-Princess/517343394978877?fref=pb&hc_location=profile_browser

Linken~ https://www.facebook.com/prayersandloveforlinken

Lorelle ~ https://www.facebook.com/LorelleFAITH

Lucy~ https://www.facebook.com/LucysJourney

Madelyn~ https://www.facebook.com/MadelynsPlace

Malachi https://www.facebook.com/pages/Given-a-Death-Sentence-Before-Having-Experienced-Life-BUT-Gods-Got-It/1401117316769153?fref=pb&hc_location=profile_browser

Maliki~ https://www.facebook.com/pages/Hope-for-Trisomy-13-and-18/139851616086108?fref=pb&hc_location=profile_browser

Mia~ https://www.facebook.com/MiraculousMia?fref=pb&hc_location=profile_browser

Muireann~ https://www.facebook.com/MuireannsTravels?fref=pb&hc_location=profile_browser

Natalia~ https://www.facebook.com/TRIsoMYfavoriteThings.13

Presley~ https://www.facebook.com/Trisomy13AwarenessPresley?fref=pb&hc_location=profile_browser

Trisomy 14 Families

Ava~ https://www.facebook.com/TeamCupCakeAva?fref=ts

Emma~ https://www.facebook.com/EmmaRoseMarieStone

Gabby~ https://www.facebook.com/Trisomy14awareness?fref=pb&hc_location=profile_browser

Trisomy 16 Families

Jacob~ https://www.facebook.com/jacobjrsjourney

Silas~ https://www.facebook.com/smalldude

Vylett~ https://www.facebook.com/Trisomy16?fref=pb&hc_location=profile_browser

Trisomy 17 Families

Avery Sue~ https://www.facebook.com/AverySuesJourney?fref=pb&hc_location=profile_browser

Bud~ https://www.facebook.com/WithGODAllIsPossible.CaringForBud.Avon.NSP/info

Piper~ https://www.facebook.com/PrayersForPiperJolie

Zane~ https://www.facebook.com/MyAmazingZane

Trisomy 18 Families

Aaliyah~ https://www.facebook.com/MiracleBabyAaliyah

Aaron~ https://www.facebook.com/CompatiblewithJoy.Trisomy18.13?fref=pb&hc_location=profile_browser

Abigail~ https://www.facebook.com/pages/Trisomy-18-Soldier/186722581381215?fref=pb&hc_location=profile_browser

Alexander~ https://www.facebook.com/Alexanderthegreatstory

Alexandria~ https://www.facebook.com/pages/Alexandrias-Army/859606894077700?fref=ts

Alfie~ https://www.facebook.com/pages/Alfies-journey/269887349819667?fref=pb&hc_location=profile_browser

Allison~ https://www.facebook.com/AllisonClayCarpenter

Alyssa~ https://www.facebook.com/hopeforalyssa?fref=pb&hc_location=profile_browser

Amadeo~ https://www.facebook.com/pages/Prayer-Page-for-Alicia-Mazzarese-and-Matthew-DeStefano-baby-boy-Amadeo/158561484160316?fref=pb&hc_location=profile_browser

Ameir~ https://www.facebook.com/teamameir?fref=pb&hc_location=profile_browser

Amy~ https://www.facebook.com/Trisomy18APreciousLife?ref=br_tf

Anahera~ https://www.facebook.com/pages/Letters-for-Anahera/556570871027881?fref=pb&hc_location=profile_browser

Angel~ https://www.facebook.com/pages/Angels-Trisomy-Journey/650385878311852?fref=pb&hc_location=profile_browser

Angelina~ https://www.facebook.com/pages/Prayers-For-Angelina-Rose/444677855616946?fref=pb&hc_location=profile_browser

Angelo~ https://www.facebook.com/pages/Angelo-Jacks-Special-Star/464223330303095?fref=pb&hc_location=profile_browser

Annabel~ https://www.facebook.com/TeamAnnabel/info

Araya~ https://www.facebook.com/hopeforaraya?fref=ts

Avah~ https://www.facebook.com/avahtrisomy18?ref=profile

Ayla~ https://www.facebook.com/AylasProject

Bobby~ https://www.facebook.com/pages/Pray-for-Baby-Bobby/239378372786099?id=239378372786099&sk=info

Brayden~ https://www.facebook.com/hopeforbraydent18?ref=profile

Brandon~ https://www.facebook.com/BrandonsMosaicTrisomy18Journey?fref=pb&hc_location=profile_browser

Brooklyn~ https://www.facebook.com/pages/Brooklynn-Jayde-Foundation/203728776327806

Caroline~ https://www.facebook.com/Sweetcarolinegrace

Colton~ https://www.facebook.com/ColtensJourney

Colton~ 

Cora~ https://www.facebook.com/Strengthforcora

Crystal~ https://www.facebook.com/OurPreciousCrystalFaith?fref=pb&hc_location=profile_browser

Damilola~ https://www.facebook.com/pages/Trisomy-18-Edwards-Syndrome-awareness-Lolas-little-gifts/349534631817090?fref=pb&hc_location=profile_browser

Danica~ https://www.facebook.com/DanicasHope

E~ https://www.facebook.com/PrayforbabyE

Easton~https://www.facebook.com/Easton-the-Warrior-958172807539268 

Eden~ https://www.facebook.com/pages/Letters-for-Anahera/556570871027881?fref=pb&hc_location=profile_browser

Eleonor~ https://www.facebook.com/Eleonors-journey-Just-began-446954172142374

Eliana~ https://www.facebook.com/ElianasJourney

Elizabeth~ https://www.facebook.com/joyofelizabethtrisomy18?ref=profile

Ella~ https://www.facebook.com/prayersforellagracerevere

Emily~ https://www.facebook.com/pages/Emily-Grace-beating-all-odds/556280101093407

Emma~ https://www.facebook.com/emmastrisomy18journey

Emmalin~ https://www.facebook.com/Each-Day-with-Emmalin-Kay-797084190418435/?fref=ts

Emmalynn~ https://www.facebook.com/BlessedByEmmalynnRae?fref=pb&hc_location=profile_browser

Everly~ https://www.facebook.com/EverlyHopkins

Ezekiel~ https://www.facebook.com/BabyEzekiel/info

Gabriel~ https://www.facebook.com/The-Joy-Gabriel-Brings-723144844481074

Giorgio~ https://www.facebook.com/prayersforgiorgio

Grace (Amazing) ~ https://www.facebook.com/prayersforbrowningtwins?fref=pb&hc_location=profile_browser

Grace (Baby)~ https://www.facebook.com/HelpBabyGrace?fref=pb&hc_location=profile_browser

Grier~ https://www.facebook.com/ThisGrierIsOnFire

Guiliana~ https://www.facebook.com/Trisomy18.13.Awareness.GiftofLife?fref=pb&hc_location=profile_browser

Harlie~ https://www.facebook.com/PrayersForHarlie?fref=pb&hc_location=profile_browser

Hayln~ https://www.facebook.com/pages/Embrace-the-Journey-with-Halyn-Marie/1433693783560502

Hope~ https://www.facebook.com/hopestarrtakenbytrisomy18?fref=pb&hc_location=profile_browser

Hope~ https://www.facebook.com/pages/Faith-in-Hope/592318544166995?ref=profile

Ily~ https://www.facebook.com/pages/Ily-Rae-Mathis-Benefit-Trisomy-18/523790047691394?ref=br_tf

Jace~ https://www.facebook.com/Hope.for.Baby.Jace?fref=pb&hc_location=profile_browser

Jaelyn~ https://www.facebook.com/hopeforjaelyn?ref=profile

Joey~ https://www.facebook.com/JoeyReneePagac

Jonah~ https://www.facebook.com/Jonahs-Journey-with-Trisomy-18-1666873503596188/?fref=nf

Josephine~ https://www.facebook.com/LoveforBabyCastillo

Journee~ https://www.facebook.com/JourneeKayHoover

Kara~ https://www.facebook.com/pages/Kisses-For-Kara/526634677354943

Karri~ https://www.facebook.com/KarriJTate

Karson~ https://www.facebook.com/keepingupwithkarson

Kayden~ https://www.facebook.com/KaydenTheHopeInTrisomy18?fref=pb&hc_location=profile_browser

Kayli~ https://www.facebook.com/kayliskrusade

Kaylie~https://www.facebook.com/pages/Kaylie-Daily/580679005292394?fref=pb&hc_location=profile_browser

Krissy~ https://www.facebook.com/pages/Krissys-Story/309251972431003?ref=profile

Lauren~ https://www.facebook.com/groups/894107860604070/

Lila~ https://www.facebook.com/LilaClaireSurvivingAndThrivingWithT18?fref=pb&hc_location=profile_browser

Lilliana~ https://www.facebook.com/groups/205258069513637/members/

Lizzie~ https://www.facebook.com/pages/Prayers-for-Baby-Lizzie/585917591419761?ref=profile

Lucas~ https://www.facebook.com/PrayersForLucas?fref=pb&hc_location=profile_browser

Madeline~ https://www.facebook.com/MadelinesLifeStory?fref=pb&hc_location=profile_browser

Madhuri~ https://www.facebook.com/MadhuriAdeleMoser?fref=pb&hc_location=profile_browser

Malakai~ https://www.facebook.com/pages/Malakais-Trisomy-18-Journey/1030404780307127?sk=timeline

Mason~ https://www.facebook.com/Mason.trisomy18

Melanie Rachel~ https://www.facebook.com/Melanie121613

Mollie~ https://www.facebook.com/pages/Mollie-Foster-Living-with-Trisomy-18/498854473502047?fref=pb&hc_location=profile_browser

Myla~ https://www.facebook.com/MylaFaithTrisomy18

Nalah~ https://www.facebook.com/pages/Nalah-Mari-Friesen-Smith/136094079803379?ref=profile

Natalie~ https://www.facebook.com/NatalieIsenhour

Nate~ https://www.facebook.com/Celebrating-Nate-814920561864691

Nathaniel~ https://www.facebook.com/pages/Trisomy-18/319542164747867?fref=pb&hc_location=profile_browser

Noah~ https://www.facebook.com/myuniqueflowers?ref=profile

Noelle~ https://www.facebook.com/pages/Baby-Noelle-Buller/560105340746115

Nolan~https://www.facebook.com/groups/49928567294/ 

Parker~https://www.facebook.com/ParkersAdventure 

Payton~ https://www.facebook.com/PaytonJewel

Phoebe~ https://www.facebook.com/PhoebeElisePsalm139

Rayelle~ https://www.facebook.com/haileyrayellesaunders 

Rebekah~ https://www.facebook.com/rebekah.budd

Rosalie~ https://www.facebook.com/rosaliejacquelinepare

Rylee~ https://www.facebook.com/pages/Team-Kylie-T-13-Princess/517343394978877?fref=pb&hc_location=profile_browser

Sean~ https://www.facebook.com/pages/Darling-Se%C3%A1n-Trisomy18-Awareness/760165467405872?sk=info

Serenity~ https://www.facebook.com/serenitytrisomy

Shelby~ https://www.facebook.com/shelbysstoryt18

Sienna~ https://www.facebook.com/PrayersForSienna

Simon~ https://www.facebook.com/pages/Simon-is-my-name/586171444750330?fref=pb&hc_location=profile_browser

Siomha~ https://www.facebook.com/pages/S%C3%ADomha-Joelie-Lost-to-Trisomy-18Edwards-Syndrome/581533828542845?fref=pb&hc_location=profile_browser

Sloane~ https://www.facebook.com/SloaneElisabethAFightAgainstTrisomy18?fref=pb&hc_location=profile_browser

Soleah~ https://www.facebook.com/pages/Soleahs-Heart-Trisomy-18/138649556211378?fref=pb&hc_location=profile_browser

Sophia~ https://www.facebook.com/teresa.moelk.5/about

Sophia~ https://www.facebook.com/teamsophiadicamillo

Valentina~ https://www.facebook.com/pages/Valentina-Mengual-t18/255437031246610

Vanessa~ https://www.facebook.com/PrayersForVanessaHallak/info

Willow~ https://www.facebook.com/pages/Willow-Rose-Wickham/510353515658916?id=510353515658916&sk=info

Trisomy 20 Families

Nalia~ https://www.facebook.com/NaliasHeart?fref=pb&hc_location=profile_browser

Trisomy 21 Families

Adeline~ https://www.facebook.com/AdelinesT21Journey

Annie~https://www.facebook.com/pages/Annie-Golden-Heart/213107108835830 

Ceris~https://www.facebook.com/IOAEC 

Citlaly~ https://www.facebook.com/pages/Trisomy-21/463027777082091?fref=pb&hc_location=profile_browser

Colton~ https://www.facebook.com/prayersforcoltonx/timeline

Darcie~https://www.facebook.com/DarcieODaniel/info 

Gauge~ https://www.facebook.com/prayersforbrowningtwins?fref=pb&hc_location=profile_browser

Hunter~ https://www.facebook.com/HugsForHunter

Ian~ https://www.facebook.com/LoveForIansLife?ref=profile

Isaac~ Eye on Isaac (Genetically Enhanced w/ Down Syndrome) 

James~ https://www.facebook.com/ChdAndDsAwareness/info

Jax~ https://www.facebook.com/jaxweiffenbach

Jenna~ https://www.facebook.com/pages/Keep-Calm-Its-Only-An-Extra-Chromosome/186603561518002?fref=ts

Josee~ https://www.facebook.com/pages/Faith-Hope-Love/330266613741095?fref=pb&hc_location=profile_browser

Karsen~ https://www.facebook.com/LifeWithKarsenHisJourneyWithDownSyndrome

Kayla~ https://www.facebook.com/pages/Kaylas-Journey/477074052358039?fref=pb&hc_location=profile_browser

Keyanni~ https://www.facebook.com/pages/Baby-Keyanni/376607892474298

Kian~ https://www.facebook.com/RaisingKian

Madison~ https://www.facebook.com/MadisonOurPreciousGiftOfLife?ref=profile

Pari~ https://www.facebook.com/suryodayadownsyndrome

Seth~ https://www.facebook.com/SingOfTheMercies

Trisomy 22 Families

Sophia~ https://www.facebook.com/SupportErinHughettAndBaby