Sunday, January 29, 2012

Rick Santorum's Daughter, Bella

Kayli and Bella share the same syndrome, along with many other survivors!  There is a wide spectrum of children surviving with Trisomy 13 and Trisomy 18!  Unfortunately, about 90% do not get a chance to thrive because the Moms are not given complete information during pregnancy and are pressured into TERMINATING their pregnancy or the babies are DISCRIMINATED against and DENIED life saving surgeries simply because the spectrum of the diagnosis is not recognized world wide!  There is a community of Surviving children (some in their 30's!) with Trisomy!  The oldest living Woman with Trisomy 18 was 47 years old, and had 2 college degrees!!! You are helping our children, simply by being aware of this Syndrome!  YOU can make a difference!  If you hear of anybody who has a pregnancy or loved one affected with Trisomy, please have them contact myself @,, or Kayli's blog (here) at  To see videos of children surviving with a Trisomy Diagnosis throughout the USA and Internationally, please visit the advocacy site at !  Thank YOU for making the difference in the LIFE of a child! <3

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