Tuesday, March 19, 2013

Trisomy 18

Trisomy 18 Awarness day, featuring Natalie, with Full Trisomy 18! 

Natalie is full T-18. She will be 5 years old on May 19th. She had to have heart surgery in November of 09. She had a VSD (double outlet right ventricle), pulmonary stenosis, another small hole, and an obstructed valve that were all repaired at MUSC in Charleston, SC. She has an arachnoid cyst on her brain which has been stable since birth. Natalie may be delayed but she is absolutely amazing. She couldn't open her hands when she was little, but now she picks up toys and is in to everything she can get her hands on. She is not mobile yet, but I don't think it will be long since we started Hippotherapy, which she loves. 

Natalie has been in PT and OT since she was 3 months old. She now gets PT, OT, and speech in school. She goes to a special needs Pre-K class. She goes to school full time and loves it. She has learned so much since she started. She loves to be around other children, but we have to be careful because she is an avid hair puller! Natalie can sit up by herself now and can roll over. She is doing absolutely amazing.
They say Trisomy 18 is incompatible with life, but there is nothing incompatible with my child! She is beating the odds every single day and proving doctors and texts books wrong with every breath she takes. And I have to say that she takes my breath away. My child is truly a miracle from God and has a purpose on this earth. My kid is pretty AWESOME and I couldn't imagine life without her!!!!!

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